Now before you guys shoot me
I do realize and accept that it is the right choice for quite a number of us, most especially the luckier among us. That is, you ( like me ) chose surgery, and even if you got the **** end of the stick when it came to SEs, it is still the choice that was right for you and your needs and psyche going with the information you had at the time. OTOH, if you came out on the lucky end, and still have a sex pleasurable sex life and dry pants to boot, along with a post op path that virtually guarantees a long term cure, you might even be deliriously happy with how right your choice- made under duress- worked out for you. So the title of this thread is not to challenge whether or not surgery was right for you, it was, period.
OTOH, there are guys like me who sort of felt they were making the wrong decision ( just not sure at all but time seemed to be a wastin) what with a G9, rapidly rising PSA( most recently from 8.1 to 10.9 while awaiting appointment with Uro) and a negative DRE, I felt like I better decide on something. In the end, I could not go against the advice of the massively published department head at Vanderbilt(Joseph Smith) who said he thought, at least in my case, surgery was a slam dunk. Because:
1: After he dis another DRE, he felt my tumor was tiny and there was a good chance despite my G9, I was still contained, and if I was contained he could offer me a cure and
2: If I had RT, and had already spread out to the lymph nodes, RT would not get the job done and it might be quite a while before we knew that for sure.
3: If I was not contained, we would probably know it by the path report and be primed to take additional action if needed, plus there were some studies out there indicating that even men who were not contained often did better with the main tumor removed.
I think that was the gist of it. And though I dreaded surgery because of the likely SEs plus feared I would need RT anyway, in the end I went with his advice.
So when the path report showed that though my nodes were clear, I was not contained and had SV+ and margin+, and I was now very likely to need RT to go with all my surgery SEs, I just felt like I would have been better treated with RT which would have gotten the margins, though we still would not know about
the lymph nodes. Then when I had bad incontinence for most of a year, and realized my sex life was kaput most likely forever, I simply was no fan of surgery under any circumstances, not for me, but too dang late.
However, in the next post, I am copying Bobby Mac's post from the thread about
nerve sparing by JayMot. He may be the very patient my surgeon was talking about
PSA 10.9 ~112013
Bx on 112013 at age 64 yrs 11 months, with 5 of 12 pos with one G9(5+4), 1 PNI, T2B.
RALP with lymph nodes at Vanderbilt 021914. (nodes clear, SV+, still G9 but down graded to 4+5, cut wide, but 1 tiny foci right at the edge of margin ) Pros. 106.7 gms!
At 15 months, not wearing a pad most days, mostly dry
PSA <.01 on 6/11, 8/20/14 and 3/4/15, up to .01 on 9/1/15, .01 3/10/16
Post Edited (BillyBob@388) : 6/7/2016 6:35:54 PM (GMT-6)