Posted 9/23/2016 7:32 PM (GMT -7)
I am surprised to find myself writing this, because I've read so many "am I sunk?" posts over the years, and read (and offered) so many "never give up, there's hope, look at Todd for god's sake" type answers. But even in the darkest days right after my husband's diagnosis, I still felt optimistic, I knew there were examples of G9s going into remission, etc.
But this feels different. I got bad circulating tumor cell results today. There wasn't really discussion -- I was given a printout, and was told I should read it later, it'd give me some insight into what this means for his prognosis (not our doctor's fault, so I'm not crabbing about the delivery -- they have their reasons). That print out talks about differences in prognosis if you have a result under 5, or 5+. We are nowhere near 5 unfortunately. I've googled a little, and only found articles that break results at under vs. over 5, or in a few cases, under vs. over lower numbers.
I know we're not winning this battle, I've known that for a long time. I've just been hoping to drag out the fight. In a way that allows enough quality of life that you're glad to live to fight another day.
So with a really ugly CTC result, is it still worth "fighting" or at this point do you strictly focus on minimizing suffering?
At the same time, they said they want to switch from taxotere to mitazantrone. I read Beth's very encouraging post about Gary's surprise success with mitazantrone, but other stuff I read made me wonder what it means that they want to make this switch. Is mitazantrone usually used because it may work when taxotere has failed, or is it more of a thing you do when you don't want to put someone through harsher chemo anymore? (The way they put it made it sound like the upside was that mitazantrone is paired with steroids, and those would make him feel better.)
Sorry, I feel like I'm can't really express my question. I guess I'm just hoping someone who knows what it all means will help me understand what's going on.