I hope your DH qualifies for EMBARK-
if the scans how metastases, and you want to try for NIH- you probably are already set-up for quick review at NIH-
make sure you ask for CDs of the scans up front day of the scans, they should be able to deliver them soon as radiology has filed report, if not that day- NIH will need these I expect; I also suspect all of your file prep for EMBARK will fill most of the needs for the NIH study-
I sent my materials FED-EX to NIH and got a call two days later; my screening appointment was set up for the next week; once admitted to the program, my first treatment was done as soon as it could be done (had to wait four weeks post ADT start to begin) all of this occurred within about
My experience may be unique, but I found NIH to be very quick and responsive to someone like me- having metastatic Gleason 10 pathology, I was very anxious to get into aggressive therapy ASAP- and I have had outstanding care there; I feel so safe when I am there.
I know (or anticipate) how depressing a climbing PSA can be, but you say DH is not yet hormone refractory- that means there is still room to fight back with powerful tools; I would like to think there are quite a few more rounds to go for your hubby, quite a few more days where feeling well can be the focus for the day.
I know intimately how long term ADT is a depressing thought, but I am so in love with my wife, and she with me, that life-long ADT becomes acceptable, even embraceable, if it gives me more time with her. Nothing else matters so much. And surely this crisis in our lives has stripped everything else away between us, emphasizing how pleasant and special is each moment we spend together.
Your love and concern for your husband are evident in your posts. He is a lucky man in that regard. Nothing else matters.
Keep on fightin' guys. Keep on lovin'. Nothing else matters.
Dx @ 62yo
2012-15: PSA 6-14, 2x neg Bx
3/16 PSA 19.4 Bx G10
5/9 PSA 29.5 ADT
5/24 PSA 16.4 NIH: PROSTVAC/chemo/ADT
6/22 PSA 0.92 vax2 chemo1
7/12 PSA 0.45 vx3 ch2
8/2 PSA 0.16 vx4 ch3
8/23 PSA 0.10 vx5 ch4
9/13 PSA 0.06 vx6 no chemowww.healingwell.com/community/default.aspx?f=35&m=3634829