I try to check in here on many of you but don't seem to spend much time here lately. It's great to see many good reports amid some struggles. I had some excellent correspondence with another warrior over the last 3+ years that lost his battle after 12 years. He had a great story and documented it well in his blog (cycleforlife.ca).
I think I last posted about
my proton treatments that I had late summer 2016. My PSA dropped for a couple monthly readings after that but I was noticing some increased pain in my pubic bones as well as my shoulders and even my ribs. In early December, my PSA was still very low at 0.48** but my C-11Choline scan confirmed that I've got some issues again in my bones to deal with. The newest spots were my ribs on both sides, as well as recurrence in my pubic bones and sternum. I had to leave a scan early due to severe anxiety and the need to urinate so we didn't get to examine my shoulders, however, I suspect that's also an area that needs attention (due to bone pain there also). So, not great news but I guess I've been expecting it for a long time and have been blessed to have a 2&1/2 year stretch with clean scans.
The anxiety inside the scanner was new for me. I have had dozens of scans before and they've never been a problem for me. But, the last C-11 and the followup MRI were very difficult. The anxiety started for me during my C-11scan. I started the next MRI ( which was clear for liver mets, yay!) and panicked. They stopped right away and prepared another machine for me which was bigger on the inside and more..... comfortable? I'm surprised they wouldn't schedule the bigger machine anyway, I'm not tiny. Anyway, got it done.
So....I start chemotherapy this first week of 2017. I got a 3 month Lupron shot in early December. Seems like I just finished my last round of etoposide/cisplatin but that was just over 3 years ago. The plan, for now, is to get ahead of this crap again by 6-8 treatments of Jevtana (cabazitaxel). So, at least it's during the cold winter this time instead of summertime. And although I felt pretty wrecked from my last bout with chemo, it was effective and I responded well. We are hoping I get that good response again.
** I corrected this after looking at my PSA history. I incorrectly listed 0.67 first. My signature is correct now too.
Dx Jan 2013 age 46 PSA 12.4
14/14 cores positive T4 N1 M1b G9= 5+4
Firmagon, Taxotere - (6/13)
Etoposide/Cisplatin - (10/13)
PSA's 9/13 0.18, 12/13 0.36
open RP 1/21/14 -7/18 nodes +
2014 & 2015<0.10 Lupron, Xtandi 8 Mo's
6/16 0.18 quit Lupron
8/16 0.67 stop casodex/proton
Post Edited (Gunner34) : 1/4/2017 9:09:11 AM (GMT-7)