Since I participated in the Lupron hatefest (which I honestly enjoyed
) I thought I'd post a little more about
my experience with ADT and also encourage those who are facing this treatment and may be really anxious or afraid of it like I was.
I was considering calling this thread "I love Lupron" but NO WAY! That's not true really. Love is much too strong of a word. So instead, I just thought about
how I really miss my testosterone. We all know what testosterone does for men so I don't need to go into the details. But once I found out that it was killing me, my attitude changed a lot. Fortunately, I had the kind of prostate cancer which most people have, the kind that's "hormone sensitive" meaning it depends a great deal on this androgen to survive. If it's the kind that isn't hormone sensitive, your treatment options become significantly reduced. In that case, it becomes much less treatable like a lot of other cancers. So those of us with hormone sensitive prostate cancer are lucky we have this kind of cancer. I know, it's hard to feel lucky when you have cancer. I had to roll my eyes when my oncologist told me "You have the best kind of cancer you can have!" Wow! I was thrilled! Thank you!
But the truth is, my oncologist was right. When I first went into her office, I hadn't started treatment yet and was in a lot of pain, barely able to walk. I remember how devastated I was.
Just days before I had sat down with my primary care doctor who gave me the "bad news". I had never seen a bone scan, but I knew right away that mine was really bad. My entire skeleton was lit up like a christmas tree. I knew my cancer was really advanced and I probably wasn't going to live much longer. My primary care doctor didn't know what to say other than "It's going to be hard but we'll get through it. blah, blah blah". I was completely devastated.
So when I got see my oncologist, I figured I'd be told even more bad news. I was really shocked when she told me that despite my grim prognosis and PSA of 400, I had a very high probability of a good recovery and a lot of my bone metastases would actually heal. The reason: I could start on ADT Lupron right away. The likelihood was that my response would be fast. As a lot of us already know, ADT therapy is the foundation of treatment for hormone sensitive metastatic prostate cancer, accounting for a large amount of the overall survival time for those of us unfortunate enough to advanced PCa. It's really the only reason we can talk in terms of years and not months of additional life expectancy.
So while I can't say I love Lupron, I am so grateful that it is available. And yes I miss the testosterone, I miss being interested in sex. But then, unless you're Ted Bundy, dead people don't make good sex partners.
Prostate Cancer, multiple bone mets, PSA 400
3/6/2017 ADT Lupron first shot
3/31/2017 PSA 12
4/7/2017 Docetaxel start
4/27/2017 PSA .6
Post Edited (starfinder) : 5/5/2017 4:44:35 PM (GMT-6)