Philco, welcome to our forum. With a Gleason 9 and a high initial PSA you're already aware this is a significant situation, in the "very high risk" category due to multiple factors. There is a lot that can be done; there are a number of us G9 folks here, most doing quite well. If you've been consulting Dr. Google, and don't we all, you may be rather freaked out right now.
Have you had any staging, say by a multiparametric MRI? That's another important point that may affect your treatment decisions.
Have you considered a second opinion on your biopsy slides? With a G9 it may not be so important, since that's already about
as serious as it gets. You'll be firing all guns at this one. I had a second opinion on mine just because the diagnosis was rather serious, and it made me more comfortable that the situation really was what it appeared to be.
I've added you to our G9 Crew thread. It's a gathering place for those of us with this diagnosis, since our concerns tend to be more technical regarding treatments. We're not usually as concerned about
side effects of surgery, incontinence, ED, advice about
surgery recovery and so on. The G9 concerns are often more along the lines of what is the most we can do, how can we be most aggressive, what's the best chance of success, what are follow up treatments, pretty much "How do I survive this?". Here's a link to the thread, where you can see some others there.The Gleason 9 Crew -- Part 2, continued.
[Moderators: Could one of you update Philco's post's subject line to attract some appropriate support? Thanks!]
Bx: 6/12 pos, G9=5+4 (80%, 60%), 4+5 (2@100%, 80%, 10%), PNI+
cT3a (3T mpMRI: Bilateral EPE, NVB+, SV-, LN-)
Date PSA fPSA
9/12 4.1 15%
3/13 5.2 12% PCA3=31
IGRT by IMRT, 44 done 8/28/13: 50.4 Gy pelvic nodes, 79.2 Gy prostate
ADT2 3 yrs: Lupron/Casodex, ended 3/16
Post: (age now 59)
PSA <0.1 : 8/13 - 5/16; rising - 0.2-8/16, 0.5-12/16, 0.7-3/17, TBD-5/17
Post Edited (Redwing57) : 5/7/2017 3:08:19 PM (GMT-6)