Today I reached out to the MOs office and requested a visit from hospice. I received a call back immediately, and she (the hospice worker) couldn't have been sweeter to me about
going down this path. So it seemed the right time to begin this thread, with the sincere hope that it will provide some insight to others facing the inevitability of making this journey themselves, or facing the loss of someone they love.
I decided the best way to do this is to post what Gary and I are experiencing from the day treatment ended. I will update periodically.
May 10th. PSA has risen to over 900 and it is clear that mitoxantrone has quit working. His red blood count is extremely low so he gets two units of whole blood. After that he comes home and sleeps for two full days, eating one whole bagel total, but does drink herbal tea. He is processing. Sleep is the way he does it.
The past several months on this "hail Mary" chemo, mitoxantrone, has extended Gary's life and we have had many opportunities to make more memories together, including a trip to Colorado to see the aspen turn and visit family and a trip to Yosemite with sister and nieces, who have grown from children to adults since Gary's dx.
The dues he paid has been decreased heart function, blood transfusions, and critically low platelets, with bruising all up and down his arms and chest, especially at elbows, from turning over in bed.
He has also developed a chronic cough and throws up mucous regularly, so he takes mucinex twice a day.
Gary's sister Donna has been here almost every week since Christmas, driving home four hours away on weekends, and her presence allows me to work and do normal activities without worry about
Gary being alone.
She is our angel.
DH 52@dx 2010
PSA:1983 G 4+5=9 multiple mets bones and nodes
Xgeva lupron Docetaxel, Zytiga 2012 Smarium, Xtandi 2013 xofigo 2014 Cabazitaxel, Zytiga
RT sacrum X 10
PSA 1/15 100
2/15 liver mets
DRibbles trial 3/15 PSA:259
docetaxil PSA 7/15:1054 9/15:921;12/15:1008
xtandi 1/16:665 3/16:1316 ascites
Mitoxantrone 8/16:792 Oct:590 Dec:532 1/17:412 jaw necrosis 5/17 psa 900+ end tx
Post Edited (celebrate life) : 5/26/2017 12:15:58 AM (GMT-6)