Hello HW brothers and sisters. Really hope this finds you all doing well.
Just an update from us after GG's 1-year visit with his surgeon today. Not the news we were hoping for - he has lost his < sign. Gone from <0.01 to 0.01.
I realise this will seem completely irrelevant to many people here who are dealing with far more serious issues, however it felt like a major body blow to us both.
His uro has demanded a re-test in 6 weeks to look at the trend (if any) and start formulating plans (if any) regarding next steps.
The thought of having to wait 6 weeks for his next results makes me feel sick, but nought we can do except grit our teeth and sit tight.
Let's just hope it's that famed "white noise" we've heard mentioned. Is that REALLY a thing? Yes- I'm grasping at straws here...
Peace and healing wishes to you all.
Hey there, Jaybe, been there, and I did not like it. Lost mine and got to .01 at 18 months, then 18 months later went up again to the next level. Of course, with my G9, SV+ margin+, I feel it is a miracle mine has gone up so slowly
. As I originally was expecting some additional treatment fairly soon after surgery, but so far have not had it. So I know what you mean when you mention how you felt and how agonizing the wait can be for the next test. But try not to get to anxious about
it if possible. Because for all you know, you could be a long time yet before any additional treatment is called for, if ever. Heck, PSAs occasionally even go back down for a while or for good. Or at least go up a bit and then don't go up anymore for a long time. Just look at some of the signatures on here and you will see that. Main thing is just to keep an eye on it as you are doing. So don't panic yet! There is plenty of time to panic later, and we(or better yet your doc) will let you know when! ;)
PSA 10.9 ~112013
Bx on 112013 at age ~65yrs, with 5 of 12 pos with one G9(5+4), 1 PNI, T2B.
RALP with lymph nodes at Vanderbilt 021914. (nodes clear, SV+, G9 down graded to 4+5, cut wide, but 1 tiny foci right at the edge of margin ) Pros. 106.7 gms!
At 15 months, not wearing a pad most days, mostly dry
PSA <.01 on 6/14 and all until 9/15 = .01, still .01 9/16, .02 on 3/17,6/17
Post Edited (BillyBob@388) : 7/3/2017 10:43:19 AM (GMT-6)