Welcome to our forum, sorry you need to be here. You have found a place with a lot of very supportive people, many can relate very much with what you're about
to do, and how traumatic your recent experience has been. It is a shock, though once you get into the treatment phase it can become easier to handle as you're engaged in the battle.
You have embarked on a pretty standard plan for your situation. There is some discussion about
the best way to do the radiation part of your plan, and I'm sure some others will chime in soon. Brachytherapy is often added, and there are radiation plans that are shorter with higher doses per session. Others here can give you pros and cons of the options.
I had a similar plan, 2 months of hormone therapy, then radiation, then almost 3 years of continued hormone therapy. I had Lupron and Casodex the whole time, though commonly the Casodex is dropped after the first month or so, once the Lupron has taken hold. Two years is more common today, since some studies seem to show it is as effective as three. My MO wasn't convinced of that, and I stuck it out for the whole 3 years.
Hormone therapy is a long marathon, and the side effects can grow tiresome. It helped me to think of the hot flashes and ongoing fatigue as continuing evidence that the hormone therapy was doing its job, suppressing my testosterone. One of our forum's most gifted writers/humorists, Peter DisAbelard, described it as being replaced by a pod-person version of himself! (PeterDA routinely cracks me up).
We have a thread for the Gleason 9 folks, a gathering place for those of us facing this diagnosis. I've added you to the roster in the 4+5 group. There are quite a few there, with links to their initial threads. Most are doing well, and have been around for a while.The Gleason 9 Crew -- Part 2, continued.
Stay with us, ask any questions you may have. A number of us have already walked the path you're on, though everyone experiences it differently.
All the best!
Bx: 6/12 pos, G9=5+4 (80%, 60%), 4+5 (2@100%, 80%, 10%), PNI+
cT3a (3T mpMRI: Bilateral EPE, NVB+, SV-, LN-)
Date PSA fPSA
9/12 4.1 15%
3/13 5.2 12% PCA3=31
IGRT by IMRT, 44 done 8/28/13: 50.4 Gy pelvic nodes, 79.2 Gy prostate
ADT2 3 yrs: Lupron/Casodex, ended 3/16
PSA <0.1 : 8/13 - 5/16;
rising - 0.2-8/16, 0.5-12/16, 0.7-3/17, 0.8-5/17, TBD-7/17