Being G9 (5+4) these studies are interest me.
It has been suggested by some that one should not focus so much on studies after treatment and there can be some validity to that. But , I believe that those of us that are in the very high risk group (G9/10) may have a different opinion.
Let me be clear. I would much rather not be in this group that consists of less than 10% of all PC dx. In fact guys that have a G9/10 along with a PSA of less than 4.0 at Dx, constitute less than 10% of that 10% very high risk group. That puts me into a very small % of men with very high risk PC. The low PSA aside,my high volume # of G9 cores just adds to that.When you put all the factors together you realize that you belong to a very small group of very high risk guys. I also know that there are guy's that have a much tougher battle going on than I and don't ever want to diminish that fact.
I wish that I could just put this behind me and move on. I try to do that. I try to not think of this cancer and be confident that I don't have much to worry about
. It just lurks there in the back of my mind.
You might say reading these studies doesn't help the thoughts that lurk in the back of my mind. They probably don't. But the not knowing is much worse. There is such a scant amount of info about
us G 9/10 very high risk guys.
Obviously researchers and Drs, don't know that much about
us , (except that 80 % of those that die of PC come from this group,if I understood Dr D'Amico correctly).
It's the "not knowing" that each and everyone of us on this journey must deal with and it can be the most difficult part after treatment. I'm right there...2 years post Rt.... 18 months post Lupron. I'm waiting for the answer. The answer that will allow me to put this behind me but....I fear that might never happen. Or maybe the realization that the answer might not ever come, is the answer.
Just some things going through my mind.....Thanks for listening.
Battle On Brothers!
Dx 6/3/2016 PSA 3.42 %fPSA 7.6
Bx 6/1/2016 G9 ... 8 of 12 cores positive (70% - 60% - 30% - 30%)
4+5 =G9 (4 cores) 5+4 =G9 (2 cores) 3+4 =G7( (2 cores) PNI..
4/16 ct scan ,Bone scan..neg
Stage T2c NO MO Grade 5
1/17 Docetaxel x4
PSA 8/18 0.02 10/2 0.04
My story PSA 3.5 %fPSA 7.6 abnormal DRE Biopsy or wait?