The Gleason 9 (and 10) Crew - Welcome and how ya doin'? (Part 3, continued thread)

New Topic Post Reply Printable Version
161 posts in this thread.
Viewing Page :
 1  2  3  4  5  6  7 
[ << Previous Thread | Next Thread >> ]

Redwing57
Veteran Member


Date Joined Apr 2013
Total Posts : 2501
   Posted 12/2/2017 5:09 PM (GMT -6)   
bertb, that's good to hear! This is encouraging for anyone that lands here, since there's so much discouraging stuff out on the interwebz about the high Gleason cases. There is much hope!
55@Dx 4/16/13
Bx: 6/12 pos, G9=5+4 (80%, 60%), 4+5 (2@100%, 80%, 10%), PNI+
cT3a (3T mpMRI: Bilateral EPE, NVB+, SV-, LN-)

Pre:
Date PSA fPSA
9/12 4.1 15%
3/13 5.2 12% PCA3=31

Tx:
IGRT by IMRT, 44 done 8/28/13: 50.4 Gy pelvic nodes, 79.2 Gy prostate
ADT2 3 yrs: Lupron/Casodex, ended 3/16

PSA <0.1 : 8/13 - 5/16;
steadying! - 0.2-8/16, 0.5-12/16, 0.7-3/17, 0.8-5/17, 0.8-7/17, 0.7-10/17

cspivak
Regular Member


Date Joined Aug 2014
Total Posts : 207
   Posted 12/4/2017 9:56 AM (GMT -6)   
Hey Mrs. jkoRN and all

Just wanted to say hi, another G9 wife here. My DH was diagnosed three years ago. It’s been a huge change in life and we’re among the very lucky ones: he hit the genetics lottery, qualified for Keytruda (pembrolizumab) and has been PSA undetectable for a few months now.

The importance of knowing that you have (almost certainly) a good number of years with current treatments, is that research is genuinely moving at this point. When your husband needs them, there will probably be other better (more effective, less life impacting) treatments available in the future. That’s what happened to us! And olaparib is another good example. Barring the total collapse of Society, there will be more.

Dave may have some some thyroid stuff going on, this is one of the hazards of immunotherapy. I’ll post elsewhere once we know more.

— Carolyn
Dx 8/14, age 58, PSA 29, G9 (4+5), 11/12 cores, 3 bone mets
Lupron 9/14, Xgeva 10/14-12/14
10/14 PSA 2.0, 12/14 1.1, 6/15 6.87, 6/15 Provenge,9/15 0.8
9/15 osteonecrosis, 6 wk iv antibiotics
1/16 PSA 4.8, 3/16 2, 10/16-6/17 Xtandi, 12/16 IMRT
5/17 PSA 8.6, 6/17 PSA 13, 6/17 lymph node biopsy MSI-H
6/17 Keytruda(pembrolizumab), 7/17 PSA undetectable, 9/17 lymph nodes almost resolved

john4803
Regular Member


Date Joined Sep 2017
Total Posts : 69
   Posted 12/24/2017 8:05 PM (GMT -6)   
Add me to the 4+5 list, please.

69yr,1948 Troy MO-W of St. Louis
PSA 3.2 7/08
PSA 51.2(7/11/17)
DRE hd lft, 31g 7/24
Biopsy8/11 No PNI GS 4-8s, 4-7s/12
NUC Scan/CT Urogm8/29-CLEAR
Prolaris 9/11 T2b, 3.8/10, 10yr Mort Risk 23.5%, Met Risk 29.6%.
Consult 9/11 Rec RT/BT/RALP
MRI 3T Ca in gland?
RALP11/15
PATH11/16
T3b,GS 9(4+5)
70G Pc 40%
PLN+Rt-1/1,Lt-2/6
+Margins-apex,ureth,blad nk,SV
Lupron/Cas11/21
Axumin1/2/18,RT?

Post Edited (john4803) : 12/24/2017 6:14:46 PM (GMT-7)


Noggin2u2
Regular Member


Date Joined Jul 2017
Total Posts : 33
   Posted 12/30/2017 10:23 AM (GMT -6)   
Add me to the 4+5 list also.
DX @ Age 64 4-17; Fusion biopsy Gleason 7 Bone and CAT Neg
1999 PSA 3.0 enlarged prostate chronic prostatitus ongoing
PSA 4-2015 7.7
PSA 11-9-2015 8.9
Biopsy 12-2015 Neg
1-11-2017 13.7
2-3-2017 14.7
RALP 6-14-2017 final path Gleason 9 4+5; pT3a
PSA 7-7-2017 .11
PSA 8-10-2017 .1
PSA 9-20-2017 .11
PSA 10-31-2017 .01
HT Casodex 11-27-2017; RT 12-4-2017, 39 treatments total

john4803
Regular Member


Date Joined Sep 2017
Total Posts : 69
   Posted 12/30/2017 11:21 AM (GMT -6)   
Noggin2u2 said...
Add me to the 4+5 list also.


Noggin,

Did you have Adjuvant RT? And what radiation levels did you have?

I am having the Axumin Pet scan next week and if I have no met's outside of the pelvis, I will start Adjuvant RT in February/March. I am on Lupron/Casodex, also.

69yr,1948 Troy MO-W of St. Louis
PSA 3.2 7/08
PSA 51.2(7/11/17)
DRE hd lft, 31g 7/24
Biopsy8/11 No PNI GS 4-8s, 4-7s/12
NUC Scan/CT Urogm8/29-CLEAR
Prolaris 9/11 T2b, 3.8/10, 10yr Mort Risk 23.5%, Met Risk 29.6%.
Consult 9/11 Rec RT/Brh/RALP
MRI 3T Ca in gland?
RALP11/15
PATH11/16
T3b,GS 9
70G Pc 40%
PLN+Rt-1/1,Lt-2/6
+Margins-apex,ureth,blad nk,SV
Lupron/Cas11/21
Axumin1/2/18,RT?

Noggin2u2
Regular Member


Date Joined Jul 2017
Total Posts : 33
   Posted 12/30/2017 1:11 PM (GMT -6)   
"Did you have Adjuvant RT? And what radiation levels did you have?"

Not sure the answer to either question but will find out next week.

Good luck with your scan!
DX @ Age 64 4-17; Fusion biopsy Gleason 7 Bone and CAT Neg
1999 PSA 3.0 enlarged prostate chronic prostatitus ongoing
PSA 4-2015 7.7
PSA 11-9-2015 8.9
Biopsy 12-2015 Neg
1-11-2017 13.7
2-3-2017 14.7
RALP 6-14-2017 final path Gleason 9 4+5; pT3a
PSA 7-7-2017 .11
PSA 8-10-2017 .1
PSA 9-20-2017 .11
PSA 10-31-2017 .01
HT Casodex 11-27-2017; RT 12-4-2017, 39 treatments total

Redwing57
Veteran Member


Date Joined Apr 2013
Total Posts : 2501
   Posted 12/30/2017 1:52 PM (GMT -6)   
Noggin2u2 and John4803, you're on there. The list is sorted by date of diagnosis, as close as I can find it in signatures and so on. Welcome to the least favorite chapter of the club no one wants to join. Here's hoping for your situations to respond well to treatment!
55@Dx 4/16/13
Bx: 6/12 pos, G9=5+4 (80%, 60%), 4+5 (2@100%, 80%, 10%), PNI+
cT3a (3T mpMRI: Bilateral EPE, NVB+, SV-, LN-)

Pre:
Date PSA fPSA
9/12 4.1 15%
3/13 5.2 12% PCA3=31

Tx:
IGRT by IMRT, 44 done 8/28/13: 50.4 Gy pelvic nodes, 79.2 Gy prostate
ADT2 3 yrs: Lupron/Casodex, ended 3/16

PSA <0.1 : 8/13 - 5/16;
steadying! - 0.2-8/16, 0.5-12/16, 0.7-3/17, 0.8-5/17, 0.8-7/17, 0.7-10/17

Naples
Regular Member


Date Joined Dec 2016
Total Posts : 76
   Posted 1/3/2018 8:58 AM (GMT -6)   
Fairwind,
I didn't see your reply until now. Yes I'm still on ADT/Lupron. My original therapy plan called for 24 months and I'll be inside 9 months to go on February 1. My MO took me off Casodex after 1 Year because SEs were difficult. I feel better as a result. If my PSA stays down, I will likely pause on Lupron this summer. At this point my biggest challenge is joint pain. I don't like taking pills as a rule so I'm trying to make it to Lupron free to further evaluate additional meds. Considering my advanced diagnosis, I'm going strong. I hope you are hanging tough and feeling well yourself. Thank you for reaching out. Happy New Year and Good Health.
DX 7/2016. 61 years of age. Radical Prostate Surgery 9/28/2016. G9 5+4. 3 nodes positive. T3b, Casodex & Lupron 2 years. Radiation, 39 completed 3/17/2017.
PSA 7/2016 4.5
PSA 10/2016 1.87gg
PSA 4/2017 0.0t
PSA 7/2017 0.0
PSA 10/2017 0.0

Noggin2u2
Regular Member


Date Joined Jul 2017
Total Posts : 33
   Posted 1/3/2018 9:13 AM (GMT -6)   
Redwing, thanks for adding me. This is a really good place for getting information. I've learned a lot the last two weeks. Some good, some not so good, but I have a lot better understanding of what I'm up against. Thanks to all who post.
DX @ Age 64 4-17; Fusion biopsy Gleason 7 Bone and CAT Neg
1999 PSA 3.0 enlarged prostate chronic prostatitus ongoing
PSA 4-2015 7.7
PSA 11-9-2015 8.9
Biopsy 12-2015 Neg
1-11-2017 13.7
2-3-2017 14.7
RALP 6-14-2017 final path Gleason 9 4+5; pT3a
PSA 7-7-2017 .11
PSA 8-10-2017 .1
PSA 9-20-2017 .11
PSA 10-31-2017 .01
HT Casodex 11-27-2017; RT 12-4-2017, 39 treatments total

john4803
Regular Member


Date Joined Sep 2017
Total Posts : 69
   Posted 1/3/2018 3:23 PM (GMT -6)   
Naples said...
Fairwind,
I didn't see your reply until now. Yes I'm still on ADT/Lupron. My original therapy plan called for 24 months and I'll be inside 9 months to go on February 1. My MO took me off Casodex after 1 Year because SEs were difficult. I feel better as a result. If my PSA stays down, I will likely pause on Lupron this summer. At this point my biggest challenge is joint pain. I don't like taking pills as a rule so I'm trying to make it to Lupron free to further evaluate additional meds. Considering my advanced diagnosis, I'm going strong. I hope you are hanging tough and feeling well yourself. Thank you for reaching out. Happy New Year and Good Health.


Naples,

What caused your joint pain? I had RALP 11/15/17 and started lupron & casodex 11/21/17, possibly for 2 - 3 years depending on how radiation goes, I guess, starting in Feb. possibly. What were your SE's on both, if you don't mind sharing?

69yr,1948 Troy MO-W of St. Louis
PSA 3.2 7/08
PSA 51.2(7/11/17)
DRE hd lft, 31g 7/24
Biopsy8/11 No PNI GS 4-8s, 4-7s/12
NUC Scan/CT Urogm8/29-CLEAR
Prolaris 9/11 T2b, 3.8/10, 10yr Mort Risk 23.5%, Met Risk 29.6%.
Consult 9/11 Rec RT/Brh/RALP
MRI 3T Ca in gland?
RALP11/15
PATH11/16
T3b,GS 9
70G Pc 40%
PLN+Rt-1/1,Lt-2/6
+Marg-apex,ureth,blad nk,SV
Lupr/Cas11/21
Axumin 1/2/18 negative, RT 2/18?

john4803
Regular Member


Date Joined Sep 2017
Total Posts : 69
   Posted 1/3/2018 3:27 PM (GMT -6)   
Noggin2u2 said...
"Did you have Adjuvant RT? And what radiation levels did you have?"

Not sure the answer to either question but will find out next week.

Good luck with your scan!


Noggin2u2, thanks!

My scan was negative. So, I assume my RO will recommend radiation in Feb. Meet 1/9/18.

69yr,1948 Troy MO-W of St. Louis
PSA 3.2 7/08
PSA 51.2(7/11/17)
DRE hd lft, 31g 7/24
Biopsy8/11 No PNI GS 4-8s, 4-7s/12
NUC Scan/CT Urogm8/29-CLEAR
Prolaris 9/11 T2b, 3.8/10, 10yr Mort Risk 23.5%, Met Risk 29.6%.
Consult 9/11 Rec RT/Brh/RALP
MRI 3T Ca in gland?
RALP11/15
PATH11/16
T3b,GS 9
70G Pc 40%
PLN+Rt-1/1,Lt-2/6
+Marg-apex,ureth,blad nk,SV
Lupr/Cas11/21
Axumin 1/2/18 negative, RT 2/18?

Skypilot56
Veteran Member


Date Joined Mar 2017
Total Posts : 740
   Posted 1/3/2018 9:50 PM (GMT -6)   
John4803- Am I understanding that you started Lupron and Casodex a week after you had surgery?

Larry
Male 61 DX @ 60
Father had PC
2002. Psa. .08 Enlarged Prostrate
2014. Psa. 3.8
2016. Psa. 19
3-08-17 RP Mayo in Mn
Path Report: Gleason 9, pt3b, Seminal vessels and one nerve removed, neg.margins, 35 LN removed no cancer, Prostrate 45 grams
4-20-17 Incarcerated Umbilical Hernia
6-13-17 psa 0.13
7-19-17 psa 0.12 MRI clear
10-11-17 psa 0.16
10-12-17 Lupron
12-13-17 psa <0.10
12-18-17 SRT

john4803
Regular Member


Date Joined Sep 2017
Total Posts : 69
   Posted 1/4/2018 12:12 AM (GMT -6)   
Skypilot56 said...
John4803- Am I understanding that you started Lupron and Casodex a week after you had surgery?

Larry


That's correct, Larry. They wanted to hold off any mets occurring from the upgraded GS, until I was healed enough for RT.

69yr,1948 Troy MO-W of St. Louis
PSA 3.2 7/08
PSA 51.2(7/11/17)
DRE hd lft, 31g 7/24
Biopsy8/11 No PNI GS 4-8s, 4-7s/12
NUC Scan/CT Urogm8/29-CLEAR
Prolaris 9/11 T2b, 3.8/10, 10yr Mort Risk 23.5%, Met Risk 29.6%.
Consult 9/11 Rec RT/Brh/RALP
MRI 3T Ca in gland?
RALP11/15
PATH11/16
T3b,GS 9
70G Pc 40%
PLN+Rt-1/1,Lt-2/6
+Marg-apex,ureth,blad nk,SV
Lupr/Cas11/21
Axumin 1/2/18 negative, RT 2/18?

Skypilot56
Veteran Member


Date Joined Mar 2017
Total Posts : 740
   Posted 1/4/2018 10:31 AM (GMT -6)   
Ok very interesting haven't ever run across that scenario in all the reading I've done

thnx
Male 61 DX @ 60
Father had PC
2002. Psa. .08 Enlarged Prostrate
2014. Psa. 3.8
2016. Psa. 19
3-08-17 RP Mayo in Mn
Path Report: Gleason 9, pt3b, Seminal vessels and one nerve removed, neg.margins, 35 LN removed no cancer, Prostrate 45 grams
4-20-17 Incarcerated Umbilical Hernia
6-13-17 psa 0.13
7-19-17 psa 0.12 MRI clear
10-11-17 psa 0.16
10-12-17 Lupron
12-13-17 psa <0.10
12-18-17 SRT

december21
New Member


Date Joined Jan 2018
Total Posts : 18
   Posted 2/16/2018 8:37 AM (GMT -6)   
I too, had Gleason 9. Here is my summary:

PSA 4.3 May, 2017 via annual physical.
MRI - July, 2017, but the first Dr. forgot to call me with the results, so I called him 3 months later.
Biopsy with Gleason 9 identified in several cores, October, 2017
Robotic Surgery 12/21/17. 10-15% of the prostate had cancer. Significant Perineural Invasion.
Catheter Removed 1/2/18
Clean Margins & Lymph Nodes 1/9/18.
First PSA post surgery 2/5/18 at Roswell Park, the place that invented the PSA: Less than 0.04 (Undetectable) That's the lowest their machine goes.
Next PSA: June 27, 2018.

Currently no ED, almost dry at 8 weeks post surgery / 6 weeks post catheter removal, after a progression from diapers to heavy pads, to lighter pads, etc.
NOTE: Surgery was:
-Nerve Sparing with:
-Bladder Neck Preservation.

The Bladder Neck Preservation is highly recommended, as it enables incontinence to be quickly resolved. Very few Urologists perform it. I've found only 3 in most of Upstate NY.
I've noticed that the Urologists performing it are very adept, having done well over 1,000 Radical Prostatectemies on the Davinci robot, plus many, more difficult surgeries.

Redwing57
Veteran Member


Date Joined Apr 2013
Total Posts : 2501
   Posted 2/16/2018 7:58 PM (GMT -6)   
Hi december21, thanks for posting. It's helpful for all of us G9 folks when people update this thread. I added you to the illustrious roster at the top of this thread. Welcome to the least favorite chapter of the club no one wants to join...

It sounds like you're doing well, congrats! Experience is really critical with surgeons, and apparently you found a good one. Incontinence is one of the things that people do find hard to live with, and the recovery seems quite variable. A procedure that improves recovery is always welcome.

Here's to a long series of undetectable PSAs!

Mike2420
Regular Member


Date Joined Oct 2014
Total Posts : 22
   Posted 2/24/2018 4:51 PM (GMT -6)   
Ursolic Acid, Resvaratrol and Curcumin

https://www.nature.com/articles/s41698-017-0024-z

I thought there might be a thread on combining these supplements to starve PCa. I couldn't find a thread here but my navigation skills might be lacking. As a G5, I'm looking for any edge I can get and am interested in what others might know about this novel approach.
1/5/2015
Left G 9 (4+5) 96% OF Vol
Right G 9 (5+4) 30% OF Volume
Perineal Invasion
1/15,C-11 scan 2 regional L+
Femara 5/16
1/15 -7/16 Lupron, Casodex
7/16 PSA <0.015, T=11
2/21/17 ... remission
pescatarian diet

Naples
Regular Member


Date Joined Dec 2016
Total Posts : 76
   Posted 2/24/2018 6:18 PM (GMT -6)   
John,

My joint pain really started about 6 months into Lupron/Casodex. My MO believes it was due to Casodex. I stopped Casodex 10.31.2017 and the joint pain has improved. I also drink 100% grape juice and that seems to help as well. Yes.. I had SEs on both Lupron and Casodex. Lupron gives me hot flashes. I'm trying soy milk for that. I also have ED big time from the Lupron. Casodex gave me brain fog and joint pain. I'm better since stopping Casodex. My last injection was 2.1.2018 and my MO indicated that I might continue Lupron beyond my 2 year therapy plan because it seems to be working. Not ideal but I'm dealing with it okay. G9 cells can become resistant to HT at some point so I'm taking what I can get. Good luck and don't look back. This is our best shot to delay metasticising.
DX 7/2016. 61 years of age. Radical Prostate Surgery 9/28/2016. G9 5+4. 3 nodes positive. T3b, Casodex & Lupron 2 years. Radiation, 39 completed 3/17/2017.
PSA 7/2016 4.5
PSA 10/2016 1.87
PSA 4/2017 0.0
PSA 7/2017 0.0
PSA 10/2017 0.0
PSA 2/2018 0.0

Jerry L.
Veteran Member


Date Joined Feb 2010
Total Posts : 3072
   Posted 2/24/2018 7:36 PM (GMT -6)   
Mike2420,

For what it’s worth...I have been taking Curcumin and Resveratrol for years..not sure if it makes any difference but it is part of my diet and supplements

Jerry L.
11/09 Dx at Age 44 ----- 4.03
12/09 DaVinci Surgery,t3b,g9 <.05
2/10 Adj. Radiation ----------- <.05
3/11 PSA Rise/Scans/Spot ---- .09
on Pelvic Bone
4/11 HT/XGEVA/Spot Radiation -- .06
2011-2012: ADT3: 15 months
2013-2015: ADT3 VACATION #1: 36 Months
2016: Spot on Rib; .07; ADT3; Spot Rad
2017-?: ADT3 VACATION #2:

john4803
Regular Member


Date Joined Sep 2017
Total Posts : 69
   Posted 2/24/2018 9:03 PM (GMT -6)   
Naples said...
John,

My joint pain really started about 6 months into Lupron/Casodex. My MO believes it was due to Casodex. I stopped Casodex 10.31.2017 and the joint pain has improved. I also drink 100% grape juice and that seems to help as well. Yes.. I had SEs on both Lupron and Casodex. Lupron gives me hot flashes. I'm trying soy milk for that. I also have ED big time from the Lupron. Casodex gave me brain fog and joint pain. I'm better since stopping Casodex. My last injection was 2.1.2018 and my MO indicated that I might continue Lupron beyond my 2 year therapy plan because it seems to be working. Not ideal but I'm dealing with it okay. G9 cells can become resistant to HT at some point so I'm taking what I can get. Good luck and don't look back. This is our best shot to delay metasticising.


Thanks, Naples! Hang in there!

I started IMRT/IGRT, 2/20/18, for 37 treatments, at 66 Gy. My RO shocked me at the beginning, by suggesting I talk to a MO about doing Docetaxel (6 infusions), a couple of weeks after RT. This is based on the latest studies, which are probably the CHARRTED and STAMPEDE studies. I have been studying the concept and will have to be convinced before I consider Chemo or Zytiga, which is competing with Chemo. Will meet with an MO in the next couple of weeks to discuss it.

69yr,1948 Troy MO-W of St. Louis
PSA 3.2 7/08
PSA 51.2(7/11/17)
DRE hd lft, 31g 7/24
Biopsy8/11 0 PNI GS 8s & 7s, 9/12
NUC/CT Scans 8/29 (-)
Prolaris 9/11 T2b, 3.8/10, 10yr Mort Rsk 23.5%, Met Rsk 29.6%.
MRI 3T Ca in gland?
RALP11/15
PATH11/16
T3b,GS 9
70G Pc 40%
PLN+Rt-1/1,Lt-2/6
+Marg-apex,ureth,blad nk,SV
Lupr/Cas11/21
Axumin 1/2/18 (-)
Markers 1/3
Simulation 2/6
StartRT2/20, 37 tx

Post Edited (john4803) : 2/24/2018 9:15:20 PM (GMT-7)


Naples
Regular Member


Date Joined Dec 2016
Total Posts : 76
   Posted 2/25/2018 8:44 AM (GMT -6)   
John,

My MO also said there may be some new ideas at a conference coming up in March. So I’ll be interested to see what’s next. Take care.
DX 7/2016. 61 years of age. Radical Prostate Surgery 9/28/2016. G9 5+4. 3 nodes positive. T3b, Casodex & Lupron 2 years. Radiation, 39 completed 3/17/2017.
PSA 7/2016 4.5
PSA 10/2016 1.87
PSA 4/2017 0.0
PSA 7/2017 0.0
PSA 10/2017 0.0
PSA 2/2018 0.0

Break60
Veteran Member


Date Joined Jun 2013
Total Posts : 1865
   Posted 2/25/2018 6:37 PM (GMT -6)   
Caratop
Always sad to hear of a young guy getting this disease. Feel free to ask us anything but remember that most of us are just patients not docs and everyone is different !
Bob
DOB January 1944
8/’12 PSA 2.7; 5/’13, PSA 6.6 (actually double due to finasteride)
7/’13 Bx GS 4+5=9 , 2 of 6 cores, 10%, 40%; stage Pt1c
9/’13 ORRP, pathology GS 4+5=9, EPE and margin+ at base (4mm, GS7), BLSVIs+, 10 lymph nodes resected (clear); stage upgraded to Pt3bN0M0
11/’13 - 5/’14, PSA 0.1 to 0.3
6/’14 SRT by IMRT/IGRT (68.2 grays/38 Fx) to prostate bed, ADT (6 months Lupron)
9/’14 - 8/’15: PSA: <.1, to 1.2
9/’15 MRI, CT-PET finds two iliac lymph nodes suspicious for PCa; started 13 months of ADT3 (Lupron, bicalutamide, dutasteride) plus plus metformin, cabergoline, estradiol patches, prolia , vitamin D3, calcium. IMRT/DART (75 grays/50 Fx) to pelvic lymph nodes. Stopped ADT3 11/’16.
11/’15 - 5/’17: PSA .03 to 2.3.
2/’17: Rx finasteride added
5/’17: F-18 Fluciclovine (axumin) PET/CT scan finds 9 mm femur met. Restart ADT3; start monthly Xgeva, stopped finasteride.
6/’17 SBRT via IMRT (27 grays/3 Fx) to femur met.
6/’17 - 10/’17 PSA .3 to <.1

john4803
Regular Member


Date Joined Sep 2017
Total Posts : 69
   Posted 2/26/2018 12:18 PM (GMT -6)   
Northfoot said...
i have been very blessed so far. Retested 2 weeks ago.


Northfoot,

you are truly an inspiration for us 4+5's. Would you mind sharing more of your path, ie., positive margins, bladder neck, sv's, lymph nodes, etc.?

Stay blessed!
69yr,1948 Troy MO-W of St. Louis
PSA 3.2 7/08
PSA 51.2(7/11/17)
DRE hd lft, 31g 7/24
Biopsy8/11 0 PNI GS 8s & 7s, 9/12
NUC/CT Scans 8/29 (-)
Prolaris 9/11 T2b, 3.8/10, 10yr Mort Rsk 23.5%, Met Rsk 29.6%.
MRI 3T Ca in gland?
RALP11/15
PATH11/16
T3b,GS 9
70G Pc 40%
PLN+Rt-1/1,Lt-2/6
+Marg-apex,ureth,blad nk,SV
Lupr/Cas11/21
Axumin 1/2/18 (-)
Markers 1/3
Simulation 2/6
StartRT2/20, 37 tx

PeterDisAbelard.
Forum Moderator


Date Joined Jul 2012
Total Posts : 6080
   Posted 3/3/2018 8:31 AM (GMT -6)   
Added new member AbsAZ to the roster. Put him in the 4+5 group since I dunno his primary and secondary Gleason types.
65 Slow PSA rise 2007-2012: 1.4=>8
4 bxs 2010-2012: 1&2 neg, 3 pos 1/14 6(3+3) 3-4% (2nd opn. 7(3+4)), 4 neg
DaVinci 6/14/12. "some" nerve sparing on left
Path: pT3a pN0 R1 GS9(4+5) Pos margins on rt
24 mo ADT3 7/12 - 7/14
Adj IMRT 66.6 Gy 10/17/12-12/13/12
8/2012-3/2015: Incont., Trimix, VED, PSA<0.015.
AUS & IPP installed 3/5/2015
Forum Moderator - Not a medical professional

yk
Veteran Member


Date Joined Aug 2013
Total Posts : 633
   Posted 3/27/2018 9:38 PM (GMT -6)   
Update:
Greetings to bros of Gleason 9 crew,
Did my blood work yesterday...still good <.03
Apart from some lite side effects received from radiation, I m still doing fine.
Entering the 5th year of PCA
Just a word of encouragement...keep going bros...
Age:65 PCA: 60
04/24/13 dx PSA 30.3 06/26/13 biopsy
5/10 cores positives G9
RALP 08/02/13. post path
Tumour : 5% on both lopes G:5+4= 9
PNI/EPE(T3) PT3A 29 lym nodes, nerve b'dles,
seminal ves removed neg negative margins
4th wk back to continent
3rd & 6th mos PSA<0.03
10.5Mos PSA 0.06
17.5Mos PSA 0.17
18.5Mos SRT (66 gy)
21 mos PSA 0.04
27 mos 32 mos 40 mos 46 mos 55mos<0.03

Post Edited (yk) : 3/28/2018 2:11:13 AM (GMT-6)

New Topic Post Reply Printable Version
161 posts in this thread.
Viewing Page :
 1  2  3  4  5  6  7 
Forum Information
Currently it is Sunday, September 23, 2018 1:14 AM (GMT -6)
There are a total of 3,005,796 posts in 329,263 threads.
View Active Threads


Who's Online
This forum has 161803 registered members. Please welcome our newest member, nadadot.
221 Guest(s), 1 Registered Member(s) are currently online.  Details
garyi