My joint pain really started about 6 months into Lupron/Casodex. My MO believes it was due to Casodex. I stopped Casodex 10.31.2017 and the joint pain has improved. I also drink 100% grape juice and that seems to help as well. Yes.. I had SEs on both Lupron and Casodex. Lupron gives me hot flashes. I'm trying soy milk for that. I also have ED big time from the Lupron. Casodex gave me brain fog and joint pain. I'm better since stopping Casodex. My last injection was 2.1.2018 and my MO indicated that I might continue Lupron beyond my 2 year therapy plan because it seems to be working. Not ideal but I'm dealing with it okay. G9 cells can become resistant to HT at some point so I'm taking what I can get. Good luck and don't look back. This is our best shot to delay metasticising.
Thanks, Naples! Hang in there!
I started IMRT/IGRT, 2/20/18, for 37 treatments, at 66 Gy. My RO shocked me at the beginning, by suggesting I talk to a MO about
doing Docetaxel (6 infusions), a couple of weeks after RT. This is based on the latest studies, which are probably the CHARRTED and STAMPEDE studies. I have been studying the concept and will have to be convinced before I consider Chemo or Zytiga, which is competing with Chemo. Will meet with an MO in the next couple of weeks to discuss it.
69yr,1948 Troy MO-W of St. Louis
PSA 3.2 7/08
DRE hd lft, 31g 7/24
Biopsy8/11 0 PNI GS 8s & 7s, 9/12
NUC/CT Scans 8/29 (-)
Prolaris 9/11 T2b, 3.8/10, 10yr Mort Rsk 23.5%, Met Rsk 29.6%.
MRI 3T Ca in gland?
70G Pc 40%
Axumin 1/2/18 (-)
StartRT2/20, 37 tx
Post Edited (john4803) : 2/24/2018 9:15:20 PM (GMT-7)