started to reply this to a post started by P34 titled "Don't be me". Thank you P34 for your reflections of your journey .I didn't want to hijack your thread so I started a new one.
I would say that pretty much anyone that reads this will automatically recall in their minds their own journeys and could probably tell of wanting to spread the word to as many as they could on how important it is to have regular check ups and have PSA checks.
After my Dx I recall the comments. "your lucky it's only PC" and "oh my Dr doesn't believe in PSA testing" Even from my brother and my best friend! I felt shocked, and thought.... well.... OK? Don't they realize how serious my Dx is? Don't they realize this could effect them?
The fact is they don't for many reasons.
For starters..."overtreatment" of low risk PC after the discovery of the PSA test has swung the pendulum way over to the other side, and that's not good
Another is ….it's cancer we are talking about
. I think that people don't want to think about
or are in denial that cancer can happen to them. There are many in my life that never want to acknowledge the fact that I have been Dx'd with cancer. They couldn't/can't talk about
it. It's uncomfortable.They don't know what to say. They will say "how you doing?" or "How you feeling?" I know what they mean and I'll reply something like …"I'm feeling good" and that will pretty much be it and that's OK. A few of my acquaintances who I thought were good friends have just disappeared. Haven't heard from them at all since Dx.
People don't want to talk about
"CANCER".... I understand...I was one of those people. What do you say? It's scary.
Back ten years ago my wife convinced me to get a colonoscopy. Didn't want it ...Didn't need it....Don't want that done to me period!!! I ended up also getting an endoscopy..... They found a very large tumor in my small intestine. Had it resected.Spent 10 days in the hospital. Thank God it wasn't cancer! Could have been, would have been had it not been found! I'm telling this story because after I healed I told my oldest brother "you know ...you should have an endoscopy. This type of thing runs in families." His response to me was ....If it gets me,it gets me.........It got him.... and he died from cancer of the mouth and throat. I didn't understand. Couldn't figure it out. Now I am beginning to understand. It isn't always pride....It isn't always the money....
it's mostly "FEAR"
My best friend, finally had his PSA checked. It has been rising steady for 2 years now and it is up 16.5 . He has had 2 negetive biopsies . MRI showed pi-rad 5. He is now facing a saturation biopsy. He told me the other evening he isn't sure he is going continue going through these biopsies especially a saturation Bx. It's a tough situation. He said he will wait and if it gets worse he will deal with it then.......I argue with him to find another URO. Stop going to the guy I just fired... the guy that didn't even know what treatment I had ...... I didn't have surgery!!! I tell him to find a PC specialist and give him the name of the guy I found in Seattle. My friend says..." It's up to God".....I'm a man of faith... but COME ON!
I get frustrated at how PC gets minimized. Most guys I talk to really don't want to hear it. They will tell me of a friend who had it and had surgery and has never looked back and that's correct. Not many high risk guys. I guess I might feel different if I wasn't a high risk G9. I guess it's not up to me how guys will take my suggestions. Maybe I just need to tell them my story and hope that they will "get it ".That it is important to be checked.
I'm frustrated that my friend is starting to minimize his situation. I don't want to be that guy that tells him what he needs to do and sound like I know it all, because I know I don't.........I just don't want him to end up like my brother.
Battle On Brothers!
The Artistic One - Mark
Dx 6/3/2016 PSA 3.42 %fPSA 7.6
Bx 6/1/2016 G9 ... 8 of 12 cores positive (70% - 60% - 30% - 30%)
4+5 =G9 (4 cores) 5+4 =G9 (2 cores) 3+4 =G7( (2 cores) PNI..
4/16 ct scan ,Bone scan..neg
Stage T2c NO MO Grade 5
1/17 Docetaxel x4
PSA 8/18 0.02 10/2 0.04
My story PSA 3.5 %fPSA 7.6 abnormal DRE Biopsy or wait?