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NowhereMan
New Member


Date Joined Sep 2017
Total Posts : 14
   Posted 10/8/2017 11:11 AM (GMT -7)   
Does anyone here participate in Movember?

Gave your thread a subject line. You'll get more responses. -- PeterDisAbelard

Post Edited By Moderator (PeterDisAbelard.) : 10/8/2017 5:25:48 PM (GMT-6)


Wings of Eagles
Veteran Member


Date Joined May 2013
Total Posts : 612
   Posted 10/8/2017 5:42 PM (GMT -7)   
Yes many here will participate in Movember. A prime veteran poster here reminded everyone and started a list of those that participated last Movember, thanks for the early reminder this year. You could probably find that thread in the "custom search" box at the top center of this Forum page.

I will remember to grow out my wisdom whiskers gray stache Nov 1st.
Wings
DX PCa-Nov/2012,age 57=GS 3+4=7 & 4+3=7 w/mets PSA=71.2 start Lupron PSA=,

1/13=2.7 2/13=0.7 3/13=0.2 6 /13=0.1
9/ 13=0.7 11/13=1.4 12/13=2.7 4/14=2.7
6/14=3.8 8/14=5.2
Start Zytiga:
9/14=1.4 11/14=<0.06 12/14=<0.06 1/15=<0.06 3/15=<0.06 6/15=<0.06
9/15=<0.06 12/15=<0.06 3/16=<0.06 6/16=<0.06 9/16=<0.06 12/16=<0.06
3/17=<0.06 8/17=<0.06

NKinney
Veteran Member


Date Joined Oct 2013
Total Posts : 686
   Posted 10/8/2017 6:40 PM (GMT -7)   
Yes! It'll be here before you know it, too! Prostate cancer has a "bad name," but Movember is a great way to bring it out of the shadows. I'm very encouraged that so many younger people take initiative with it. Surprisingly, it's gotten only lukewarm support and interest among the old guys here at this PC site in the past...most seem fine keeping it in the shadows.
-Norm

Post Edited (NKinney) : 10/9/2017 6:41:38 AM (GMT-6)


halbert
Veteran Member


Date Joined Dec 2014
Total Posts : 3107
   Posted 10/9/2017 4:18 AM (GMT -7)   
Interestingly, a young man at my workplace said something about it a week or so ago.
Age at Diagnosis: 56
RALP on 2/17/15, BJC St. Louis, Dr. Figenshau
58.5g, G3+4, 20%, 4 quadrants involved
PSA 3/10/15: 0.10
5/18/15: <.04
8/24/15: <.04
11/30/15: <.04
2/29/16: <0.04
8/30/16: <0.04
2/15/17: <0.006
8/22/17: <0.006
My Story: www.healingwell.com/community/default.aspx?f=35&m=3300024

alephnull
Veteran Member


Date Joined Dec 2013
Total Posts : 703
   Posted 10/9/2017 7:22 AM (GMT -7)   
Its bow season, so maybe I'll combine the two.........
PSA at diagnosis 20.6, age 54 in 2013, 12 out of 12 cores positive
My PSA Curve
Robotic prostatectomy 11/2013, all positive except bladder neck invasion
Degarelix two months, 2 years Lupron, Radiation after 18 months
GS 9 - 4+5 , Stage pT3b N1 M1c - Undetctable 41 months
PSA rise <0.1 to 0.18 to .71, last rise in 4 months
Csodex n Lupron

NowhereMan
New Member


Date Joined Sep 2017
Total Posts : 14
   Posted 10/10/2017 6:58 AM (GMT -7)   
My son told me about it. I've had full beard for years and he now has one too. Hes the one that told me about Movember. Like some of you others have said the youth seem to be very interested, but hes only in mid 20s. He said lets both completely shave on Nov 1 then grow back stache during Nov to start conversation and awareness for prostrate cancer. Cool idea

DYank
Regular Member


Date Joined Jul 2013
Total Posts : 217
   Posted 10/10/2017 8:07 AM (GMT -7)   
DH is planning on it--not shaving is in his plans. I've been collecting mustache stickers and cake decorations in support smile
67
12/11 PSA 1.2 1/12 PSA 2.4 biopsy neg
12/12 PSA 4.5
4/13 PSA 8.5 biopsy pos 70%
7/1/13 RRP G 9 (5+4) T3a, N1, 1 pos LN
11/13 RT--37
2/14 PSA 9.8 pet scan clean
3/14 Lup/Cas.
6/14 PSA und.
10/14 PSA .3
2/15 PSA 14.2
monthly Lupron PSA 2.8
9/15 changed MO--3 month Lupron for as long as it works
PSA continues at less than .01
3/17 HT vacation!

NowhereMan
New Member


Date Joined Sep 2017
Total Posts : 14
   Posted 10/14/2017 5:38 AM (GMT -7)   
I talked to my son on the phone again last night and I think we are going to do this together. Shave our full beards completely off Nov 1 and grow a stache for Movember. I have had a full beard for many years. Not quite sure what it looks like under there haha. He said the idea is to have a noticeable change, and that starts awareness discussion. Not sure I know what that discussion is yet. I forgot to ask him and maybe you guys know, what do you do when the month is over?

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6747
   Posted 10/14/2017 6:36 AM (GMT -7)   
The reason that we do not follow it here is that it is a fundraiser for a competing entity / website. A total ban on that sort of mention used to be in the rules, but over time has drifted into a more general area, as it is common sense. Fundraising on HW is limited to being for HW.

Here is the rule text:

4. No advertising or links to advertising or "Spam" is permitted.
Advertising or spam is defined as posting a link for the purpose of selling, soliciting or promoting something.

Links promoting fundraising, advocacy, etc. are not permitted.



I've never pressed that rule so strongly as to ban the generic discussion of Movember, but please remember that Peter Waite also depends on money to keep HW running.

We do edit out direct solicitation links.
NOTE _ MY EMAIL HAS CHANGED!
Moderator - Prostate Cancer
(Not a medical professional)
DaVinci 10/09
IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808
HT (Lupron) 6-mo injection 9/12, 6/14 to present
Prolia 6-mo inj 12/12 to present
Casodex started 12/14, end 3/15 after psa 30% rise
Zytiga 04-07/15 Xtandi 04/16-8/17
IV chemo being planned

NowhereMan
New Member


Date Joined Sep 2017
Total Posts : 14
   Posted 10/15/2017 12:18 PM (GMT -7)   
Oh no, Im sorry. I didn't know it was against the site rules. I didn't know it was a fundraiser. I don't think my son knew there was money involved. He told me it was for prostate cancer awareness. The thing he told me about talking about it, because people don't like to talk about it. I will probably have a call with him again later this week, and I'll tell him no. Not a good idea at this site. Sorry again, my fault.

prostate begone
Regular Member


Date Joined Sep 2017
Total Posts : 45
   Posted 10/15/2017 12:27 PM (GMT -7)   
75 percent of the money they raise goes to funding men's health programs. I guess that could me a lot of different things to different people, but I don't see the conflict with this site.
62 yrs
PSA: 2/4/15: 3.5;
1/21/16: 3.8
2/13/17: 5.1
3/27/17: 5.45
3/27/17: 5.5
4/17/17: 2 of 16 pos., 15 and 4 percent. GS 8.
Bone Scan clear.
Robotic RP May 24, 2017, NYU Hospital, Samir Taneja M.D.
Margins clear, SV and LN negative, Focal EPE, GS 4+5
Prostate 44.6 grams, tumor 5% of prostate
1 pad a day after about 3 weeks. ED near total.
7/26/17 PSA <.01
9/7/17 .01
10/7/17 .01

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6747
   Posted 10/15/2017 6:15 PM (GMT -7)   
prostate begone said...
75 percent of the money they raise goes to funding men's health programs. I guess that could me a lot of different things to different people, but I don't see the conflict with this site.


Movember does not contribute to HW, and it is for fundraising. I quoted the rule above.

NowhereMan
New Member


Date Joined Sep 2017
Total Posts : 14
   Posted 10/30/2017 8:53 AM (GMT -7)   
142 said...
prostate begone said...
75 percent of the money they raise goes to funding men's health programs. I guess that could me a lot of different things to different people, but I don't see the conflict with this site.


Movember does not contribute to HW, and it is for fundraising. I quoted the rule above.




Talked to my son this weekend. They've been doing Movember at his place of work for several years and it's got nothing at all to do with fundraising.

He tells me it's about men shaving off their beards or moustaches or starting clean shaven and growing a moustache during the month of November in order to draw attention and have conversation about prostate cancer and men's health issues. He says the changes in appearance are conversation starters. Seems like a great idea. It's about raising awareness. I assume that's ok here.

He and I are doing it either way.

Wings of Eagles
Veteran Member


Date Joined May 2013
Total Posts : 612
   Posted 10/30/2017 11:57 AM (GMT -7)   
142,
I might be misinterpreting what you said initially in response to Nowhereman, but I respectfully disagree with the interpretation or implication that simply wanting to participate in Movember by growing mustaches and making people aware of why we do it would in any way violate any rule here. Technically if no one posts the Link to that organizations website, we have not violated any rule. Frankly I was not aware of any organizational fundraising effort, and have not gone there in the past, I've just doing it 'generically' as you state.

I do respect that Mr. Waite's healing Well site here depends on donations and fundraising and would not want to do anything to diminish or compete here with that. Thanks for pointing that out.

Thank you also for being liberal enough to let posters post about it. Heck we made a big list last year just of the individuals here growing the stache. So I agree with Nowhereman and I will being growing a stache just to make those aware that I have PCa, Sometimes it is hard subject to bring up and discuss with other.
Winging it
aka Dan in Stache Cal
DX PCa-Nov/2012,age 57=GS 3+4=7 & 4+3=7 w/mets PSA=71.2 start Lupron PSA=,

1/13=2.7 2/13=0.7 3/13=0.2 6 /13=0.1
9/ 13=0.7 11/13=1.4 12/13=2.7 4/14=2.7
6/14=3.8 8/14=5.2
Start Zytiga:
9/14=1.4 11/14=<0.06 12/14=<0.06 1/15=<0.06 3/15=<0.06 6/15=<0.06
9/15=<0.06 12/15=<0.06 3/16=<0.06 6/16=<0.06 9/16=<0.06 12/16=<0.06
3/17=<0.06 8/17=<0.06

Post Edited (Wings of Eagles) : 10/30/2017 1:34:07 PM (GMT-6)


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6747
   Posted 10/30/2017 1:31 PM (GMT -7)   
I'm not saying we can't talk about it or individually participate. Just that promoting it as a fundraising is not allowed on HW.

And yes, on their page there is a big "Donate" button.

Wings of Eagles
Veteran Member


Date Joined May 2013
Total Posts : 612
   Posted 10/30/2017 1:39 PM (GMT -7)   
142,
Thanks for the rescue, I think I fell into my own trap! And keep up your great work, we appreciate the Mods!
Wings aka MDK
DX PCa-Nov/2012,age 57=GS 3+4=7 & 4+3=7 w/mets PSA=71.2 start Lupron PSA=,

1/13=2.7 2/13=0.7 3/13=0.2 6 /13=0.1
9/ 13=0.7 11/13=1.4 12/13=2.7 4/14=2.7
6/14=3.8 8/14=5.2
Start Zytiga:
9/14=1.4 11/14=<0.06 12/14=<0.06 1/15=<0.06 3/15=<0.06 6/15=<0.06
9/15=<0.06 12/15=<0.06 3/16=<0.06 6/16=<0.06 9/16=<0.06 12/16=<0.06
3/17=<0.06 8/17=<0.06

InTheShop
Veteran Member


Date Joined Jan 2012
Total Posts : 7921
   Posted 10/30/2017 4:25 PM (GMT -7)   
I tried growing a beard once. Last three days before I couldn't stand it and shaved it off.
I'll be in the shop.
Age 57, 52 at DX
PSA:
4.2 10/11, 1.9 6/12, 1.2 12/12, 1.0 5/13, .6 11/13,
.7 5/14, .5 10/14, .5 4/15, .3 10/15, .3 4/16, .4 10/16, .4 5/17, .3 10/17
G 3+4
Stage T1C
2 out of 14 cores positive
Treatment IGRT - 2/2012
My latest blog post

halbert
Veteran Member


Date Joined Dec 2014
Total Posts : 3107
   Posted 10/30/2017 4:39 PM (GMT -7)   
I tried a beard once and it wasn't good. I've had the 'stache for years, and I'm thinking about shaving it off and then let it all go and see how nasty it looks in the first few days.
Age at Diagnosis: 56
RALP on 2/17/15, BJC St. Louis, Dr. Figenshau
58.5g, G3+4, 20%, 4 quadrants involved
PSA 3/10/15: 0.10
5/18/15: <.04
8/24/15: <.04
11/30/15: <.04
2/29/16: <0.04
8/30/16: <0.04
2/15/17: <0.006
8/22/17: <0.006
My Story: www.healingwell.com/community/default.aspx?f=35&m=3300024

Artist Mark
Regular Member


Date Joined Apr 2016
Total Posts : 242
   Posted 10/30/2017 5:55 PM (GMT -7)   
I 've been trying to grow my mustache back for months now. Chemo took it out. So, I guess I be involved but not sure anyone will be able to tell.!
Age 60
Dx 6/3/2016 PSA 3.42 %fPSA 7.6
Bx 6/1/2016 G9 ... 8 of 12 cores positive (70% - 60% - 30% - 30%)
4+5 =G9 (4 cores) 5+4 =G9 (2 cores) 3+4 =G7( (2 cores) PNI.. present
4/16 ct scan neg 6/13/16 Bone scan..neg
Stage T2c
6/16 Zoladex,Lupron, 9/116,1/17,4/17
8/30/16 IMRT 79gy 39 fractions
PSA 1/17 0.02 ,2/17,0.02 ,2/13/17,0.02 2/23/17 0.02 3/15/0.02 4/5/17 <0.01
4/5/17 Docetaxel complete

NowhereMan
New Member


Date Joined Sep 2017
Total Posts : 14
   Posted 10/31/2017 6:59 AM (GMT -7)   
142 said...

And yes, on their page there is a big "Donate" button.


Thank you for letting us know. I had been unaware there was a fundraising piece to Movember, but now I've found the web site and have given a donation. I guess you can organize a team, but I just gave a general donation.

I'll say I am a bit apprehensive about shaving off my beard tomorrow but I am going to go through with it. Actually, I think it will take a little time so I am planning to do it tonight. I have had a full beard and havent shaved it off in something like 10 years. Not sure what it will look like under there, the change could be big. Talked to a couple other guys at lunch during work and they already knew about Movember and two of them were also going to grow moustaches.

Wish me luck. I thought that there might be more people here who might participate in Movember. It starts tomorrow.

Almost a 10
Veteran Member


Date Joined Mar 2014
Total Posts : 871
   Posted 10/31/2017 7:59 AM (GMT -7)   
Chemo took away my eyebrows, eyelashes, and, beard. Zytiga and Lupron keep it away. If I could, I would but as it goes, it would take two weeks for any facial hair to show up so I will participate in spirit. However, my two sons sport full beards and are totally supporting me for this month. smile
11/13 psa 240
DX 10/2013 PSA 187.5
PSA HIST 07/11,3.31;3/10,1.87,3/06,.87
Biopsy 10/28/13; 11/12 cores positive gs 9 (4+5)
BNSCN 12/09/2013 2 hot spots in spine
ADT 12/17/2013 22mg lupr, 50 mg Cas
BN biopsy 01/09/2013 neg
RALP 2/19/14 NN,LVI,Path T3BNX,MX, pros size 4.2 X 4 X 3 cm, 31 grm.Post Op PSA 3/14 .6, 6/14<.1;9/8,;.6;12/8, 1.2;3/9/15 3.9;6/2/15 23
12/14 CT SCAN; 1/15 BNSC

garyi
Regular Member


Date Joined Jun 2017
Total Posts : 242
   Posted 10/31/2017 8:10 AM (GMT -7)   
I can't shave off something I've had for 45 years, but I plan to support anything that brings awareness to PCa, including Movember, which is it's primary goal.

IMHO the few good PCa sites around should be working together, for the common good, and I, for one, don't understand the conflict. It all comes back to the almighty buck, I guess.

With all the good that is done on these few sites, I think most all of us would make donations to supplement advertising revenue. Given a bit more transparency, I sure would.

Thanks for the insights, 142.
70 years old @ Dx, LUTS for 7 years
PSA's never over 3.0
Ulcerative Colitis since 1973
TURP 2/16, G3+4 discovered,
3T MRI fusion guided biopsy 6/16
14 cores; G 3+3, one G3+4, Grade T1b
Second 3T MRI 1/17
RALP 7/17 Dr. Gonzaglo The Univ of Miami
G3+4 Organ confined
pT2c pNO pMn/a
Mostly Dry
10 week PSA .32
12 week PSA .40
14 week PSA .42
It's called Persistent PSA
Decipher & DCFPyL PET Scan

NKinney
Veteran Member


Date Joined Oct 2013
Total Posts : 686
   Posted 10/31/2017 4:27 PM (GMT -7)   
None of this wishy-washy, half-way, wish-I-could-do-it-but-no-motivation stuff for me...I'm in with both feet!

-Norm

Post Edited (NKinney) : 10/31/2017 5:30:26 PM (GMT-6)


InTheShop
Veteran Member


Date Joined Jan 2012
Total Posts : 7921
   Posted 10/31/2017 4:33 PM (GMT -7)   
NKinney said...
I'm in with both feet!


wow, you're going to shave your feet?
turn smilewinkgrin
I'll be in the shop.
Age 57, 52 at DX
PSA:
4.2 10/11, 1.9 6/12, 1.2 12/12, 1.0 5/13, .6 11/13,
.7 5/14, .5 10/14, .5 4/15, .3 10/15, .3 4/16, .4 10/16, .4 5/17, .3 10/17
G 3+4
Stage T1C
2 out of 14 cores positive
Treatment IGRT - 2/2012
My latest blog post

Dewayne
Regular Member


Date Joined Oct 2014
Total Posts : 492
   Posted 10/31/2017 5:33 PM (GMT -7)   
I started today. To the guys who've had chemo, that's the original intent of "No Shave November"; to grow out facial hair in honor of those men who CAN'T because of chemo.
Age: 51
Father - Beat six cancers but passed at 82.
PSA: '13 - 2.5, '14 - 4.5, Jan. '15: 1.7, May '15: 1.4, Sept. '15: 2.1, Nov '15 1.3, March '16: 1.4, July '16: 0.90. Oct. '16: 0.70. Jan. '17 0.40. June '17: 0.30.
Dx'd 10/2014
'Intermediate'
HDR Brachy 12/14 ATL
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