I can relate to what you are describing, the situation sounds somewhat similar to mine, except mine has remained steady from about
end of year 1 or so until now, almost 4 years post op. Then again, I am absolutely terrible at keeping up the Kegels. I really have not done them at all regularly for years now. Probably because I can't really tell much difference since I stopped. But I am doing some right now out of guilt! LOL! If I could just remember to go back to the regularly, maybe my minor remaining problems would disappear? I doubt it, but maybe!
You describe "Now I get some of the annoying feelings again which I had during the first months postOP: Feeling that a drop is almost on its way. Feeling that I have to tighten my pelvic floor consciously when doing certain movements". I get similar "feelings" 3 or 4 times a day normally. But it seems to have nothing to do with how full the bladder is, or if it has been hours since I emptied, and little to do with movements, other than 1 specific movement: getting up from a chair. Often especially if I "jump" up. So that makes sense, right, not surprising that- if I don't Kegal/clamp down- that all that pressure from rapidly getting up from sitting would force some out? But hold on, it usually does not happen until about
30 seconds later. And I think by that time there is not any extra pressure from the movement upward. But I feel
something happening inside me, and know escaped drops are right at the door. It feels like a muscle has decided to contract on it's own. It feels like at the base of what is left of my penis, but I suppose it is actually the bladder deciding to spasm. Why it does so even after 4 years is a mystery. I suppose it is some sort of vagal(vagus nerve) response(that is the nerve that sets off the events that cause a strong man to pass out if he sees a needle, for example. Can also cause urination, sweating, slow heart, etc, etc) I know it is vagal related because anti-cholinergic(block the body's acetylcholine) drugs(aka anti-vagal) such as Vesicare(?) put an almost total stop to the problem. But since they are- like atropine and Robinul- blockers of acetylcholine, it has many of the same influence on other bodily functions. IOW, dry mouth(any one remember having a real dry mouth associated with either pro-op meds or surgery post op? Caused by Robinul or Atropine usually.
So it is some sort of weird screwed up vagal deal in my bladder or the muscles surrounding the urethra, or both. And, apparently at least, it has nothing to do with the strength of my pelvic muscles or sphincter. Since very soon after the catheter came out, I have been able to- while pissing like a race horse with a maximally full bladder, been able to instantly stop the fullest stream on command, repeat and do it again multiple times. I discovered this while training myself to exercise the correct muscles. They got stronger I'm sure, but they were always OK at least. I am convinced- in retrospect- that most of my incontinence during the 1st 6 months to a year, was not weak muscles nearly so much as a very frequent involuntary contraction of these bladder or whatever muscles. It would appear this is not going away for me. I still don't normally wear any pad, so it is not a huge problem, more of an irritant. When it happens, sometimes it requires a quick and max effort kegel to hold it in, and often a drop or 2 escapes anyway.
I don't know if your problem is of a similar origin, or totally different. I don't recall anyone else here having my exact same problem, at least not spelled out like that. So, maybe it is rare for it to last, and even if this is what is happening with you, there is a good chance it will finally stop. Good luck, and keep up the good fight!
Post Edited (BillyBob@388) : 11/12/2017 4:26:53 PM (GMT-7)