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Progressing
Regular Member


Date Joined Aug 2017
Total Posts : 37
   Posted 11/11/2017 12:12 PM (GMT -7)   
My advice to all would be keep gathering information, especially from this forum, that bears on your situation.

Eleven weeks ago a urologist at Bassett Hospital in Cooperstown, NY told me, based on flawed data, misintrepretation, and refusal to follow up as suggested by radiologist, that all he could offer for treatment was Lupron shots that might hold my cancer at bay for 5 years. “Anyway,” he added, “at your age we shouldn’t even have tested your PSA.”

Eleven days ago, thanks to corrected interpretation of biopsy slides at Johns Hopkins, confirmed at Memorial Sloan Kettering, plus follow-up reviews of CT and also MRIs at MSKCC, Dr. Karim Touijer removed my prostate (one of 200 he completes every year). Pathology report said no spread to lymph nodes, seminal vesicles, or bladder, and no cancer at any of the surgical margins. Two days ago the catheter came out, and thanks to 6 weeks of Kegels, I am continent.

Without the counsel offered here, plus Dr. Walsh’s book (“you only get one primary treatment so choose as well as you can”), I would not have had the courage to keep pressing for more information, filling in the unknowns.

Thanks to all.
Age 75, excellent health except PCa
7/20/17, Biopsy, 5/12 cores PCa all right side, none on left, Gleason 4+3, PNI, suspicion of EPE
PSA 20.44
MRI and CT no evidence of metastasis, no lymph nodes, no seminal vesicles, focal bulge
Laparoscopic surgery 10/31/17, left nerves spared
11/9/17 catheter out, little leakage, pathology report T3aN0, G4+3, focal EPE, no cancer at any surgical margins

Bobby Mac
Veteran Member


Date Joined Mar 2016
Total Posts : 665
   Posted 11/11/2017 12:32 PM (GMT -7)   
Welcome to the other side -

Best wishes for a complete cure!

Bobby Mac
Age: 69 at PC dx, PSA 6.7 Biopsy: 2/16 13 of 14 Positive, - RALP 4/16 Path:EPE, 2 + margins, Gleason 4+3=7, 50% of gland, Stage pT3a N1, nodes 2/10,+, 68 Ga PSMA 8/16 left node +, bed +, Lupron 8/16 - 6/17, Firmagon 7/17, uPSA 6/16, 2.41, SRT completed 12/16, PSA 6/2016, 2.6, 7/16, 2.2, 8/16 .6, <0.1. since 10/16, 1/17 T=43 5/17 T=34, 6/17 T=25, 7/17 T=25, 9/17 T=48

Saipan Paradise
Regular Member


Date Joined Sep 2017
Total Posts : 60
   Posted 11/11/2017 2:03 PM (GMT -7)   
Great news, Progressing! Keep your spirits high and your PSA low!
Except that I’m G8, our T3aN0 post RP pathology reports are quite similar. What schedule are you on for post RP PSA checks? Any talk of adjuvant RT?
Age 60 at dx
Dx July 2017 after biopsy G8 (4+4), 5/13 cores, bone scan clear
RARP Aug 11, 2017 (Dr Patel)
Post surgery pathology: pT3a, tumor 30% of gland, ETE, seminal vesicles and 3 lymph nodes clear
PSA 1/2016, 2.9
4/2017, 7.2
9/25/2017 (first post-RARP), 0.13
10/10/2017, <0.05

Progressing
Regular Member


Date Joined Aug 2017
Total Posts : 37
   Posted 11/11/2017 2:39 PM (GMT -7)   
Saipan Paradise,
Post RP check at next visit with surgeon in mid-December. Earlier he was cautious about adjuvant RT unless PSA rises, but we’ll discuss.
Age 75, excellent health except PCa
7/20/17, Biopsy, 5/12 cores PCa all right side, none on left, Gleason 4+3, PNI, suspicion of EPE
PSA 20.44
MRI and CT no evidence of metastasis, no lymph nodes, no seminal vesicles, focal bulge
Laparoscopic surgery 10/31/17, left nerves spared
11/9/17 catheter out, continent, pathology report T3aN0, G4+3, focal EPE, no cancer at any surgical margins

George_
Regular Member


Date Joined Apr 2016
Total Posts : 408
   Posted 11/11/2017 2:45 PM (GMT -7)   
Progressing said...
no cancer at any surgical margins

I would not consider adjuvant RT.

George
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