Just dx with metastasis in Brain...any advice?

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New Member

Date Joined Dec 2017
Total Posts : 2
   Posted 12/4/2017 10:11 PM (GMT -6)   
Good Evening,

My Father-in-law had been having issues for over a year, but refused to go see a doctor. My husband made a heartfelt letter and his father went. He was diagnosed with prostate cancer after biopsy in August. He started hormonal therapy as it had already spread to his bones. He was in an incredible amount of pain and eventually could not get out of bed. He has never been sick and would not take the painkillers. An ER visit confirmed it had spread to his spine and without radiation he would be paralyzed within 6 days without radiation. Radiation for over a week and he was feeling better, but still not able to walk without assistance. Woke up this morning to him being confused. My mother-in-law took him to the ER where an MRI confirmed it had spread to his brain. An EEG was just performed. Although I work in Healthcare (administrative), I do not have any knowledge of cancer (thankfully). We live in NJ and want to take him to Sloan, however they need al records before accepting him. Does anyone have any positive stories of someone living a semi-normal life when the cancer is this advanced? Right now they are offering radiation for the brain, however we really just want to get him to Sloan for the second opinion. Thank you everyone for reading this and continue to fight!! You are all inspirations!!

Regular Member

Date Joined Dec 2008
Total Posts : 369
   Posted 12/4/2017 11:34 PM (GMT -6)   
I’m sorry for your pain, this is a difficult time for you and your family. As a healthcare provider I have seen this situation every day for 34 years. Every cancer is different, everybody is different. A lot depends on what your father in law wants to do. Does he want aggressive treatment to extend his life as long as possible? It’s impossible to predict on an individual basis what the side effects maybe. Certainly he could start any treatments availabile and play it by ear from there. If side effects aren’t too bad he might be satisfied by that. Others start treatments and stop when they become tired of the process. At that point hospice might be appropriate. Hospice is a wonderful program for those who want to pass in a peaceful way. Some people can accept that, others cannot and want continued treatment. We will all have to face this decision someday, I wish your father in law the best with his decision...
My age= 52 at time of diagnosis
PSA went from 1.9 to 2.85 in one year, biopsy ordered,
2 cores positive, one 5%,one 25% G=6
Bilateral nerve sparing robotic surgery on 09/11/08, pathological stage T2A,
No signs of spread, organ confined,
all PSA'S 0 since surgery, diagnosed with low T, doing TRT now, still using trimix for ED

Veteran Member

Date Joined Jan 2012
Total Posts : 8191
   Posted 12/5/2017 10:47 AM (GMT -6)   
Welcome to HW, sorry you're father-in-law is having to deal with this. That's a very advanced case. In most cases HT buys time, but it is a palliative treatment. Radiation can help with the localized mets. There are chemo options, but you need to get to someplace like Sloan for that. There is a chance that chemo can buy him more time, and possibly a better quality of life.

There is always hope, and examples of men surviving for many years with advanced PC.

But each case is different and you have to balance hope with what can realistically be done.

I'll be in the shop.
Age 57, 52 at DX
4.2 10/11, 1.9 6/12, 1.2 12/12, 1.0 5/13, .6 11/13,
.7 5/14, .5 10/14, .5 4/15, .3 10/15, .3 4/16, .4 10/16, .4 5/17, .3 10/17
G 3+4
Stage T1C
2 out of 14 cores positive
Treatment IGRT - 2/2012
My latest blog post

JkorourkeRN for husband
Regular Member

Date Joined Sep 2017
Total Posts : 37
   Posted 12/5/2017 12:53 PM (GMT -6)   
So sorry to hear this you are in my thoughts my brother in law had amazing success with radiation for mets to the brain Best of luck to you and your family
Dx. 6/2017
GS 9 4 + 5
Davinci 8/23/17
L bladder neck pos
nodes L 4/5 Pos
Margins Pos
extensive perineural invasion nerves not spared
Bilat seminal vesicles involved

Veteran Member

Date Joined Mar 2014
Total Posts : 2788
   Posted 12/5/2017 2:01 PM (GMT -6)   
JkorourkeRN for husband said...
So sorry to hear this you are in my thoughts my brother in law had amazing success with radiation for mets to the brain Best of luck to you and your family

Very sorry to hear about this. Tis post from JK maybe gives some hope? May it be so.
PSA 10.9 ~112013
Bx on 112013 at age ~65yrs, with 5 of 12 pos with one G9(5+4), 1 PNI, T2B.
RALP with lymph nodes at Vanderbilt 021914. (nodes clear, SV+, G9 down graded to 4+5, cut wide, but 1 tiny foci right at the edge of margin ) Pros. 106.7 gms!
At 15 months, not wearing a pad most days, mostly dry
PSA <.01 on 6/14 and all until 9/15 = .01, still .01 9/16, .02 on 3/17,6/17,10/17

Regular Member

Date Joined Oct 2016
Total Posts : 221
   Posted 12/5/2017 2:20 PM (GMT -6)   
Sorry to learn of this, sounds like hormone treatment just started. This will slow progression down giving you more time to weight the different options with the Doc.

Post Edited (Gear) : 12/5/2017 7:01:56 PM (GMT-7)

Regular Member

Date Joined Apr 2016
Total Posts : 475
   Posted 12/8/2017 3:28 PM (GMT -6)   
SBRT i.e. stereotactic radiation to the brain has less side effects than whole brain radiation. This study concludes:
Among patients with 1 to 3 brain metastases, the use of stereotactic radiosurgery alone, compared with stereotactic radiosurgery combined with whole brain radiotherapy, resulted in less cognitive deterioration at 3 months. In the absence of a difference in overall survival, these findings suggest that for patients with 1 to 3 brain metastases amenable to radiosurgery, stereotactic radiosurgery alone may be a preferred strategy. HTH


three 5's and a jack
Regular Member

Date Joined Jul 2017
Total Posts : 351
   Posted 12/9/2017 7:16 PM (GMT -6)   
Look in to Gamma knife. That is basically SBRT for the brain.

May all beings be well.

Looking for the 4th 5
69yo weight 7/1-283# on 10/17 216# projected 200# by treatment time
PSA 6.01 6/17 & 6.07 on 10/11/17 and 5.56 on 11/17/17
BX 8/04/17 DX 8/11/17 5/16 cores positive all on left
L mid/base 4/6 4+3=7 25%
L apex 1/2 3+4=7 30%
Sec opinion from UofW same GS7 but called overall 3+4=7
Markers and scans completed Dec 7/8 SBRT Dec 18-22 Swedish in Seattle Dr. Robert Meier
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