Three years since The Call

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halbert
Veteran Member


Date Joined Dec 2014
Total Posts : 3142
   Posted 12/5/2017 4:42 AM (GMT -7)   
Today marks 3 years since I came home from work to a message on the answering machine. "This is ___ at Dr. N's office, we have your biopsy results back, please call as soon as you can."

I called, and was told I had 3 positive cores, and life changed.

End result: RALP in February (a little over 2 months later), and I hit the Trifecta. I also joined this forum, got to know some of the guys really well, have (hopefully) talked a few newbies off the ledge, and life is good. I guess my message is--there IS life after diagnosis. And after treatment.
Age at Diagnosis: 56
RALP on 2/17/15, BJC St. Louis, Dr. Figenshau
58.5g, G3+4, 20%, 4 quadrants involved
PSA 3/10/15: 0.10
5/18/15: <.04
8/24/15: <.04
11/30/15: <.04
2/29/16: <0.04
8/30/16: <0.04
2/15/17: <0.006
8/22/17: <0.006
My Story: www.healingwell.com/community/default.aspx?f=35&m=3300024

SueCAll
Regular Member


Date Joined Jan 2015
Total Posts : 245
   Posted 12/5/2017 6:55 AM (GMT -7)   
Yes, life changes, Halbert. But I, for one, am very glad you found this board. You are such an inspiration with your welcomes to the new members and your well thought out comments every time you post. Here's to a lifetime on zeroes for you! Sue

John_TX
Veteran Member


Date Joined Jan 2015
Total Posts : 900
   Posted 12/5/2017 7:25 AM (GMT -7)   
The start of this journey is very difficult, some of the darkest days of my life and a huge strain on dear wife. I'm only couple three of years from diagnosis and the ordeal is pretty much forgotten; now I'm focused again on enjoying retired life smile
DX - 1-13-2015 (age 66) -- PSA 4.02 (9-16-2014) to 4.38 (12-5-2014)
RALP on March 2, 2015
G6 to G7(3+4) to G7(4+3)
Stage pT3aN1
10/2017 PSA < 0.1
7/31/2015 HT - six month's injection of Lupron
ART 11/2015, 33 sessions

Post Edited (John_TX) : 12/5/2017 7:28:04 AM (GMT-7)


Dogdays
Regular Member


Date Joined Jan 2017
Total Posts : 124
   Posted 12/5/2017 7:47 AM (GMT -7)   
I actually just finished reading your journal on your trip through this. Today is my one year anniversary of getting my 12.4 PSA back and call from my urologist. As you can see in my signature, our journey's have taken different treatment paths. I just finished up brachy followed by SBRT in late August. You and countless others on this board have and continue to provide support to everyone. I am no expert, but the feeling of talking someone down off the ledge, or offering personal experience hopefully helps new members. I try to do my best like you and others. It helped me immensely when I got diagnosed. Now a year out, I look forward. What was, was. What will be is still ahead of me. Keep up those fantastic numbers and the support you give to others.
Had to be tough moving from the mid-west to the Philly area, although if you're up near The Valley Forge area its nice. I'm on the other side of the bridge in Jersey. Anything outside of Philly.......sorry any of you Philly guys.........lol😋
Age at Dx. 63
PSA 1/08 1.4, 12/16 12.17, 4/17 3.8, 7/17 1.05, 10/17 <.05 (HT)
GS 9 (4+5)
CT Scan and bone scan 1/17 both negative
2/2/17 prostate MRI.
2/27/17 pelvic bone biopsy done. No mets
3/7/17 Started HT. Degarelix, 4/17 lupron (1-2 years)
7/7/17 LDR Brachy (Zelefsky MSK)
8/25/17 SHARP (SBRT) finished at MSK

ddyss
Regular Member


Date Joined Apr 2017
Total Posts : 144
   Posted 12/5/2017 8:09 AM (GMT -7)   
Halbert , congratulations! You are an inspiration to me and a lot of other relatively new folks and it motivates me to give back some knowldge as you have done !
May your trifecta be permanent !
DX@ 48 Yrs PSA 03/15 4.45 DRE: Firm Right Base
04/18 Biopsy Right: Base 4+3, Middle 3+4, Apex: HPIN
Left 6 cores : -ve
5/20 MRI: Pirads 5, ECE:+ve
RALP 05/26 Mt. Sinai Miami - Dr. A. Bhandari
Path:
Gleason downgraded to 3+4 !! Stage T2C
Prostrate Size: 49grams Tumor:20%
LN/SV/ECE: -ve PNI: +ve
Cath Removed : 6/1
Full continence: 7/4
PSA History :
7/7 <0.1
10/2 <0.006

three 5's and a jack
Regular Member


Date Joined Jul 2017
Total Posts : 226
   Posted 12/5/2017 8:28 AM (GMT -7)   
Halbert: Some anniversaries are good and some not so good. It sounds like both of those fit for you.

Be well and may we still be talking 30 years from now.

Roger
Looking for the 4th 5
69yo weight 7/1-283# on 10/17 216# projected 200# by treatment time
PSA 6.01 6/17 & 6.07 on 10/11/17 and 5.56 on 11/17/17
BX 8/04/17 DX 8/11/17 5/16 cores positive all on left
L mid/base 4/6 4+3=7 25%
L apex 1/2 3+4=7 30%
Sec opinion from UofW same GS7 but called overall 3+4=7
Markers and scans Dec 7/8 SBRT Dec 18-22 Swedish in Seattle Dr. Robert Meier

NKinney
Veteran Member


Date Joined Oct 2013
Total Posts : 740
   Posted 12/5/2017 9:03 AM (GMT -7)   
Nobody forgets receiving the message that "you have cancer" which jolts one into an emotional roller-coaster.

It also becomes a life experience which one learns much from...looking back, I am morally stronger & more tolerant, wiser, and more loving, caring and empathetic in part due to that experience.

Post Edited (NKinney) : 12/5/2017 9:30:42 AM (GMT-7)


Mack54
Regular Member


Date Joined Mar 2016
Total Posts : 82
   Posted 12/5/2017 9:45 AM (GMT -7)   
Halbert,
Happy anniversary in the club we wished we hadn't joined. But most of all, thank you for your wisdom and help on the forum. Merry Christmas too!
Mack
Age at diagnosis 61, now 63
PSA 10/15 4.80
PSA 01/16 6.72
RALP 3/21/16
Gleason 6 upgraded to 7
PSA post op .001

InTheShop
Veteran Member


Date Joined Jan 2012
Total Posts : 7966
   Posted 12/5/2017 9:48 AM (GMT -7)   
Keep living life!

Andrew
I'll be in the shop.
Age 57, 52 at DX
PSA:
4.2 10/11, 1.9 6/12, 1.2 12/12, 1.0 5/13, .6 11/13,
.7 5/14, .5 10/14, .5 4/15, .3 10/15, .3 4/16, .4 10/16, .4 5/17, .3 10/17
G 3+4
Stage T1C
2 out of 14 cores positive
Treatment IGRT - 2/2012
My latest blog post

tennisplayer
Regular Member


Date Joined Nov 2016
Total Posts : 323
   Posted 12/5/2017 10:39 AM (GMT -7)   
Three good years after diagnosis and treatment. Happy, Happy! I'm glad you're still an active member on the forum, sharing your story and knowledge.

All the best in the coming year, and longer.
Age at diagnosis-66 Diagnosed 6/16
RALP 10/16 at U of Chicago, Dr. Shalhav. Experienced internal bleeding post op requiring transfusion of 2 units.
Pathology Gleason 3+4=7, tumor volume 15% Margins negative except for one focal margin, .1mm
pT2c,N0,MX,R1
PSA @ 6 wks <0.02;16 wks <0.02; 5/17 <0.02; 10/17 <0.02
My storywww.healingwell.com/community/default.aspx?f=35&m=3777359

Pratoman
Veteran Member


Date Joined Nov 2012
Total Posts : 4981
   Posted 12/5/2017 11:02 AM (GMT -7)   
congratulations Hal, on 3 years of <'s. May it continue for many decades. We grew up in this club together.
Dx Age 64 Nov 2014, 4.3
BX 3 of 12 cores positive original pathologyG6, G6, G8 (3+5)
downgraded to 3+3=6 by tDr Epstein, JH
RALP with Dr Ash Tewari Jan 6, 2015
Post surgical pathology – G7 (3+4), ECE, Margins, LN, SV all negative
PSA @ 6 weeks 2/15, .<02, remained <0.02 until January 2017, .02, repeat Feb 2017, still .02. May 2017-.033, August 2017- .033 November .046
Decipher test, low risk, .37 score

Big Tasty
Regular Member


Date Joined Nov 2017
Total Posts : 29
   Posted 12/5/2017 12:02 PM (GMT -7)   
Happy for you Halbert, keep that awesome attitude and spirit for ever.

dbell
Regular Member


Date Joined Nov 2017
Total Posts : 30
   Posted 12/5/2017 12:46 PM (GMT -7)   
Great news Halbert best wishes for a great 2018 as well! Thank you for welcoming me to the club nobody wants to join! I see you and other veterans here have helped many new members! The big guy upstairs will reward for that!
G 3+3, 1 core of 12 - 35%

Paxton
Veteran Member


Date Joined Aug 2016
Total Posts : 912
   Posted 12/6/2017 8:47 AM (GMT -7)   
Congratulations, halbert! I've followed your journey, and have been a beneficiary of your wisdom.

I wish you many, many more good years like these.
Age 68 at Dx
PSA history: 2000-2012 0.9-1.2; 06/2012 started T replacement
2013-2015 3.0-3.3 (new normal); 11/2015 4.6; 05/2016 5.7
Biopsy: 12-core biopsy 07/2016; 3 cores G3+3, 5% or less; 1 core 3+4, 15%; 1 core HGPIN; 2% of gland involved. Summary G3+4.
CyberKnife SBRT with Dr. Hirsch; start 11/15/16, finish 11/23

Redwing57
Veteran Member


Date Joined Apr 2013
Total Posts : 2306
   Posted 12/6/2017 11:47 AM (GMT -7)   
Congratulations, halbert! So glad you're doing well. I think it is important and helpful to observe these important milestones. That's such a life-changing moment, it's hard to ever forget it and I don't suppose we ever really can.

It has been a pleasure getting to know you and Mrs. halbert through the GFMPH gatherings. A very special "family"!
55@Dx 4/16/13
Bx: 6/12 pos, G9=5+4 (80%, 60%), 4+5 (2@100%, 80%, 10%), PNI+
cT3a (3T mpMRI: Bilateral EPE, NVB+, SV-, LN-)

Pre:
Date PSA fPSA
9/12 4.1 15%
3/13 5.2 12% PCA3=31

Tx:
IGRT by IMRT, 44 done 8/28/13: 50.4 Gy pelvic nodes, 79.2 Gy prostate
ADT2 3 yrs: Lupron/Casodex, ended 3/16

PSA <0.1 : 8/13 - 5/16;
steadying! - 0.2-8/16, 0.5-12/16, 0.7-3/17, 0.8-5/17, 0.8-7/17, 0.7-10/17

Almost a 10
Veteran Member


Date Joined Mar 2014
Total Posts : 877
   Posted 12/6/2017 10:23 PM (GMT 0)   
Congrats to you. Wishing you many many more years of success.
11/13 psa 240
DX 10/2013 PSA 187.5
PSA HIST 07/11,3.31;3/10,1.87,3/06,.87
Biopsy 10/28/13; 11/12 cores positive gs 9 (4+5)
BNSCN 12/09/2013 2 hot spots in spine
ADT 12/17/2013 22mg lupr, 50 mg Cas
BN biopsy 01/09/2013 neg
RALP 2/19/14 NN,LVI,Path T3BNX,MX, pros size 4.2 X 4 X 3 cm, 31 grm.Post Op PSA 3/14 .6, 6/14<.1;9/8,;.6;12/8, 1.2;3/9/15 3.9;6/2/15 23
12/14 CT SCAN; 1/15 BNSC

Jaybee&GG
Regular Member


Date Joined Jul 2016
Total Posts : 262
   Posted 12/7/2017 3:36 AM (GMT -7)   
What they all said Halbert! We are so glad you're here.
Congrats on an awesome result, and here's to many more! We are lucky to have you on the board.
All the best from down under!
Jaybee&GG
Dx May 2016 age 57. PSA 23.4
DaVinci RARP 1 July 2016
G 4(50%)+3 = 7 (Grade group 3)
Large TZ Tumour (apex to base) = 10% of prostate
pT2c N0
PNI- EPE- SVI-
Lymph invasion (x 8) not identified. No positive margins.
PSA's to June 2017 = <0.01
28 June - Aug '17 = 0.01 :-(
Nov '17 = <0.01!

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4039
   Posted 12/7/2017 5:47 AM (GMT -7)   
Halbert: I so agree with you Im 8 years out and life is good for us. Big bonus was getting to know and become friends with so many guys on this board.

Be well my friend.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better
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