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NEW UPDATE 12-16-17

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Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 12/16/2017 12:17 PM (GMT -8)
Sorry for a long delay on an update here.

Much has taken place.

Was dx. with my 5th cancer. Had MOHS cancer surgery done this past Monday. I had a fast growing lump on my forehead above my left eye. They thought it was the dreaded porocarcinoma again, but instead, was a Basel cell tumor. The surgeon said he got all of it after a 2 1/2 hour surgery. Still healing from it, got 6 stiches.

After months of testing with 2 neurologists, dx. finally made, I do have Parkinson's Disease, and probably what they call Parkinson's Plus. There are at least 5 variants of the Plus, won't know for sure which until about 3 months from now. All of them lead to rapid progression, and can hasten dementia. Still stunned with this dx. For you other Viet Nam Vets, Parkinson's is already on the Agent Orange disease list.

Monday, having a contrasted CT done of my colon on the left side. My PCP is worried I may have a tumor growing there, or it could be some new adhesions from my prior radiation damage. Said it was possible my PC has made its way there. Sure don't want another major surgery ahead.

Still in therapy with VA for major PTSD, been going over 1 1/2 years weekly sessions. My Double Depression has been reduced to just Major Depression, the Lithium seems to be keeping me somewhat in balance.

All for now. I lurk on rare moments.
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English Alf
Veteran Member
Joined : Oct 2009
Posts : 2237
Posted 12/16/2017 1:02 PM (GMT -8)
Wow David your list of troubles is getting to be too long to comprehend. I hardly know how to respond!
All I can say is that you are regularly in my thoughts, and I hope you can enjoy the holidays in some way or other.
I know you don't drink, but maybe you can find something festive to enjoy and to raise a glass with, something like the very tasty non-alcoholic Ginger wine from the UK that I've been enjoying when I don't feel like the alcoholic version, or maybe one of the very good non-alcoholic beers I can get in the Netherlands these days. A mulled wine can also work if you leave it to boil for too long so the alcohol all evaporates. (I used to do that when the children were little to make a version that they could try - the opposite of what a Scottish friend used to do of adding brandy to the mix to make up for the fact that a bit of alcohol might have disappeared due to the heat!)

All the best
Alf
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Progressing
Regular Member
Joined : Aug 2017
Posts : 334
Posted 12/16/2017 1:38 PM (GMT -8)
David,
Wishing you well. Good news about the basal cell.
I would second Alf’s suggestion of mulled wine, with spices.
Thank you for your service.
Richard
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John_TX
Veteran Member
Joined : Jan 2015
Posts : 1245
Posted 12/16/2017 1:50 PM (GMT -8)

Purgatory said...
.. For you other Viet Nam Vets, Parkinson's is already on the Agent Orange disease list.....

I had no idea of that linkage. Did you read about liver flukes discovered in Nam vets from eating undercooked fish and shellfish? I'm almost positive I never ate any seafood while I was there.
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Bobby Mac
Veteran Member
Joined : Mar 2016
Posts : 804
Posted 12/16/2017 2:01 PM (GMT -8)
Wishing you the best!

Bobby Mac
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Magaboo
Veteran Member
Joined : Oct 2006
Posts : 1215
Posted 12/16/2017 2:57 PM (GMT -8)
Hi David,
Once again I'm speechless about this terrible journey that you have to bare. I do, however, wish you all the very best possible under the circumstance.
Please try and enjoy the holiday season as best you can. My thoughts are with you.
Your old friend and soldier in this obscene battle, Magaboo.
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lapilot
Veteran Member
Joined : Nov 2012
Posts : 992
Posted 12/16/2017 3:26 PM (GMT -8)
Welcome back!

darn, you are really going through the ringer. At least it is Basal cell!
profile picture
three 5's and a jack
Veteran Member
Joined : Jul 2017
Posts : 707
Posted 12/16/2017 5:17 PM (GMT -8)
Purgatory: I know you only from your posts but I wish you well and hope that you can find some peace.

May you share in the blessings springing from the good I have done.

Roger
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Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 9382
Posted 12/16/2017 5:37 PM (GMT -8)
Wow. Tough road to hoe. You are one tough guy David. So sorry for all of your troubles.
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Wings of Eagles
Veteran Member
Joined : May 2013
Posts : 1216
Posted 12/16/2017 6:02 PM (GMT -8)
David,
I hope only for healing of both your body and mind, you are a very courageous person and an inspiration to us all on this site and on others. Some things we all try to fight off, some things will just follow a natural course no matter what, but coming from this man of faith to you, from my heart, I say just keep the Faith, keep fighting, keep strong and I know you will posting to us for a long time to come.

Wings of Eagles aka Dan in So Cal.

Post Edited (Wings of Eagles) : 12/17/2017 2:13:22 PM (GMT-7)

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60Michael
Veteran Member
Joined : Jan 2009
Posts : 2527
Posted 12/16/2017 6:10 PM (GMT -8)
Good to hear from you David, and I hope that you find moments of peace through all of this.
Michael
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browntrout
Veteran Member
Joined : Apr 2014
Posts : 683
Posted 12/16/2017 6:55 PM (GMT -8)
Purgatory: Glad to hear even the slightest bit of good news for you. As always, you are in my prayers.
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tdnjam
Veteran Member
Joined : Jan 2013
Posts : 586
Posted 12/16/2017 9:02 PM (GMT -8)
David, I think I am as stunned as everyone else. How I wish something good for you. You continue to be in my prayers and I can only hope those prayers are answered in a positive way for you.
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MDNative
Regular Member
Joined : Nov 2015
Posts : 183
Posted 12/16/2017 10:24 PM (GMT -8)
My aunt's husband is a retired 34 year USMC bird colonel. Much over in 'Nam. He's had colon cancer, which seems to have been successfully treated, and now has Parkinson's, which is getting increasingly worse, and now some early dementia issues. And his PSA is slowly rising.... The VA approved the colon cancer and Parkinson's disease for his payments, but what a shame! He's 80. Nasty stuff our government was dropping on their own.
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Skypilot56
Veteran Member
Joined : Mar 2017
Posts : 1452
Posted 12/17/2017 3:59 AM (GMT -8)
Good Morning David I'm pretty new on here only been just a year but your story and what you have had to endure is more than what 20 people should experience in their lifetime! I'll be starting SRT tomorrow and am also on ADT when I was reading thru some of your posts saw that you lost about 15lbs during SRT was wondering were the radiation techs ok with this? They told me the most they wanted me to change my weight up or down was 5 to 8 lbs when I was getting my synchronization as this would move things around to much inside. Wishing you and your family a very very good Christmas!!

Larry
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Saipan Paradise
Veteran Member
Joined : Sep 2017
Posts : 1371
Posted 12/17/2017 8:35 AM (GMT -8)
David,
I too am fairly new here, but I always value your posts and was glad to see your name again. I’m astounded by your strength in the face of more hardship than one should have to bear. Will keep you in my thoughts.
—Richard in Saipan.
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Lynnwood
Forum Moderator
Joined : May 2005
Posts : 8110
Posted 12/17/2017 10:41 AM (GMT -8)
David,

Thanks so much for posting an update. I check your profile every few days to see if you've posted, so it's good to hear from you.

So sorry to hear things are not getting any better - life is often a tough pill to swallow. I wish I could offer you solace of some sort, but I am at a loss other than to say I think of you often, as I do of our mutual friend Barb. May peace find you and give you some respite from these trials.

My Lupus is remaining quiet, as long as I concentrate on restful sleep, moderate exercise, and healthy eating. Any kind of stress is an issue, so I remain as low-key as possible, while still trying to enjoy life. Just had a couple of friends help me plant 100 tulips, so am looking forward to spring.

Gentle hugs and healing thoughts,
Lynnwood
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An38
Veteran Member
Joined : Mar 2010
Posts : 1170
Posted 12/17/2017 5:54 PM (GMT -8)
So sorry to hear of your most recent troubles David. Only positive thing was that the MOHS surgery was for a Basel cell carcinoma not a squamous cell or even worse a melonoma. A friend of mine had a MOHS for a melonoma on his face and he is doing well.

Would you say that these new diagnosis explain all of your mysterious symptoms?
I specifically mean the nerve issues/loss of strength and the accelerating weight loss?

Regards, and best wishes,
An
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81GyGuy
Veteran Member
Joined : Oct 2012
Posts : 3549
Posted 12/18/2017 7:53 AM (GMT -8)
David –

With the passing of another year, we again take stock of ourselves and where fate and time have brought us.

For you we see that your fight continues, but also that your remarkable resolve and determination do as well. This in spite of serious medical issues, some of them unfortunately newly found, that would overwhelm a lesser man.

But you continue to persevere. God bless you for that.

I chose this greeting card because of its inclusion of the word "healthy" in it. May it be so for you in 2018!

/www.flickr.com/photos/khl_kew_01/25027112468/

May 2018 indeed be the year when, despite the daunting challenges you face, it all turns around for you, the road becomes smoother, and your burden becomes lighter!
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DJBearGuy
Veteran Member
Joined : Dec 2008
Posts : 882
Posted 12/18/2017 8:12 AM (GMT -8)
Hello David,

Sorry about your problems but I'm glad to hear you're still with us.

I've been gone so long that the forum seems not to have my profile any longer, so we'll see if it lets me post this.

DJ
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Tim G
Veteran Member
Joined : Jul 2006
Posts : 3057
Posted 12/19/2017 10:22 AM (GMT -8)
Thanks for your message, David. Take care, hang in there and keep us updated.
profile picture
HitchHiker
Regular Member
Joined : Nov 2015
Posts : 209
Posted 12/19/2017 10:47 AM (GMT -8)

Purgatory said...
After months of testing with 2 neurologists, dx. finally made, I do have Parkinson's Disease, and probably what they call Parkinson's Plus. There are at least 5 variants of the Plus, won't know for sure which until about 3 months from now. All of them lead to rapid progression, and can hasten dementia. Still stunned with this dx. For you other Viet Nam Vets, Parkinson's is already on the Agent Orange disease list.

Sorry to hear of your continued adversity in the health department dude. My uncle, also a VV and career army helicopter pilot, has very bad tremors due to exposure to AO during the war. His docs have gone back and forth on whether he has PD or not, but it's clearly gotten worse over the years. No problems with dementia or speech yet thankfully.

Here's to hoping you find some joy during the holiday season brother.
profile picture
worriedabouthubby
Regular Member
Joined : Aug 2012
Posts : 358
Posted 12/19/2017 7:12 PM (GMT -8)
Thank you for sharing your news David. I'm so sad to hear that your troubles have multiplied. You remain in my thoughts and prayers. For the festive drink suggested above try this- (we had it at our wedding 40 years ago yesterday)- 2 2-liter bottles of cheerwine soda and 1 large can of pineapple juice. Makes a great Christmas punch.
Have a Merry Christmas and a Healing New Year.
profile picture
Sleepless09
Veteran Member
Joined : Jul 2009
Posts : 1268
Posted 12/20/2017 6:16 PM (GMT -8)
David,

I am sorry to hear of your latest troubles, but I know you will conquer them or knock them down, as you have so many other setbacks.

I first 'met' you when I joined near nine years ago. Then, and now, are one of my heroes and one of the strongest, bravest men I've ever had the privilege of knowing. And, to top it off, you're an accomplished, writer, accountant and weekend sailor.

Blessings and Merry Christmas,

Sheldon (AKA Sleepless)
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Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 1/2/2018 3:55 PM (GMT -8)
January 2, 2018

Wanted to thank each and everyone you that read my update and to those that replied.

Still fighting the fight, seems endless after all these years.

Last Friday, went to have the stitches removed from the skin cancer surgery, no problem, but they noticed a large area at the top of my neck at the back of my head. Just like that, a new biopsy was taken. Going to take 10 days to get results. Doctor was puzzled at what it looked like.

Friday, I go for a special MRI of my lower spine my neurologist ordered. Two appointments with the VA tomorrow. Like being a full time patient.

Thanks again
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