Looking for Incontinence Suggestions

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

tdnjam
Veteran Member


Date Joined Jan 2013
Total Posts : 516
   Posted 1/2/2018 8:30 PM (GMT -7)   
So I am essentially 100 percent incontinent. Thank goodness for the penile clap. However, because I limit usage of the clamp to about 8-9 hours a day, I can still easily go through 10 pads a day. Without using the clamp that number can double. So I am looking for any ideas or recommendations in an attempt to get some type of control over my incontinence and type of product to use. I currently use Depends Guards but it is getting so expensive. Also I have had a few accidents where I completely soaked my pants and the pads just didn't do the job. Mighty embarrassing when I am out shopping and it happens. So do you heavy leakers have any suggestions or have you found something better than what I am using?

(Edited to provide subject)

Post Edited By Moderator (Tudpock18) : 1/3/2018 5:24:08 AM (GMT-7)


Saipan Paradise
Regular Member


Date Joined Sep 2017
Total Posts : 195
   Posted 1/2/2018 8:50 PM (GMT -7)   
Have you looked into getting an AUS, artificial urinary sphincter? If you search AUS on HW, you’ll find several threads about them.

oldbeek
Regular Member


Date Joined Sep 2017
Total Posts : 111
   Posted 1/2/2018 10:51 PM (GMT -7)   
Good friend has an AUS. Had it for 7 years. Says it is the best thing he ever did. He was telling me about it when I was just out of surgery.
76 very active. Physically fit. PSA 6, MRI Targeted biopsy 6/17 Gl 4+3 9%, Chose RP without consultation 7/28/17 Post RP <.02 PSA ,16 lymph nodes & nerves removed, pT3a, pin, negative margins, Total ED using bimix, still one pad a day

tdnjam
Veteran Member


Date Joined Jan 2013
Total Posts : 516
   Posted 1/3/2018 12:12 AM (GMT -7)   
Thanks for the suggestion, but I have been down the AUS road and it was a nightmare. I posted about it last summer. Sadly for me it is not an option.
Age 62, Diagnosed at 58
6/12-PSA 4.6, Biopsy 12/19/12 Positive 4 of 12
DaVinci 2-14-13
Updated Gleason 4+3=7
First post op PSA 4-5-13 Undetectable
15 month post op PSA 5-16-14 0.3
Started SRT 6-25-14
Ended SRT 8-12-14
1st post SRT PSA 9-24-14 0.1
1year post SRT PSA 9-18-15 <0.1
18 month post SRT 3-10-16 <0.1
2 year post SRT 9-26-16 <0.1
31 month post SRT 5-1-17 <0.1

Saipan Paradise
Regular Member


Date Joined Sep 2017
Total Posts : 195
   Posted 1/3/2018 2:36 AM (GMT -7)   
tdnjam said...
Thanks for the suggestion, but I have been down the AUS road and it was a nightmare. I posted about it last summer. Sadly for me it is not an option.

I’m out of suggestions, tdnjam. I assume you’ve looked into the sling too, then. Just curious, what’s your urologist have to say? Also, have you measured how many ml of urine you’re passing into pads daily? When I was using pads, I felt like Depend Guards could hold a heck of a lot of pee. It really surprises me to hear you’re going through 8-9 a day.
Sorry I can’t be more helpful. Hopefully someone else will chime in with an idea.

tdnjam
Veteran Member


Date Joined Jan 2013
Total Posts : 516
   Posted 1/3/2018 5:40 AM (GMT -7)   
Saipan, yes I discussed everything with my Urologist. After the failed AUS he suggested the penile clamp. You are right, the pads do hold a significant amount of urine, for me approximately 8 to 10 ounces and I can fill a pad in less than an hour. I was hoping to find a less expensive option. I appreciate all of your suggestions.
Age 62, Diagnosed at 58
6/12-PSA 4.6, Biopsy 12/19/12 Positive 4 of 12
DaVinci 2-14-13
Updated Gleason 4+3=7
First post op PSA 4-5-13 Undetectable
15 month post op PSA 5-16-14 0.3
Started SRT 6-25-14
Ended SRT 8-12-14
1st post SRT PSA 9-24-14 0.1
1year post SRT PSA 9-18-15 <0.1
18 month post SRT 3-10-16 <0.1
2 year post SRT 9-26-16 <0.1
31 month post SRT 5-1-17 <0.1

RobLee
Regular Member


Date Joined Apr 2017
Total Posts : 450
   Posted 1/3/2018 6:22 AM (GMT -7)   
tdnjam, I am sorry to hear about your situation. I was near fully incontinent for a year and went thru a dozen diapers a day. Pads and shields just didn't hold enough. Early on I started using external catheters. My best choice was /www.amazon.com/Freedom-Clear-Advantage-Aloe-Vera/dp/B00XTBSX56/ref=sr_1_sc_2_s_it?s=hpc&ie=UTF8&qid=1514985064&sr=1-2-spell&keywords=external+catheters+ffeedom+silicone+aloe

If the link doesn't work they are Freedom Advantage Silicone w/Aloe. They're a buck or two each and last a couple days. The best leg bags are Rusch 1000ml also around two buck each. Clamps didn't work for me at all, but I would go a day or two a week with diapers to allow little Dicky to air out.

Now I have the AUS. It's been six months or so and still becoming accustomed to it, but life is definitely much easier now. I'm guessing that you are probably not a candidate for the sling. Good luck with whatever you decide to do. Both the icons under my name should work if you'd like more info.
2014-15: PSA's 9, 12, 20, 25... Neg DRE's, false neg TRUS biopsy
6/16: MRI Fusion biopsy, Right Base, 2x40%+2x100% all G8 (4+4)
8/16: DaVinci RP, 6mm EPE, PNI, 25% G4, BL SVI, stage T3B N0M0

1/17: started 18 months Lupron ADT, PSA's ~.03
5/17: AMS800 AUS implanted, revised 5/30
39 tx RapidArc IMRT (70 Gy) Aug-Oct 2017

tdnjam
Veteran Member


Date Joined Jan 2013
Total Posts : 516
   Posted 1/3/2018 6:37 AM (GMT -7)   
Thanks RobLee. I remember you were undergoing your AUS last summer about the same time as my failed AUS surgery. So happy that AUS is working for you. Forgive me, but I just can't go the catheter route. My experience with catheters during my AUS nightmare has scared me away from them. The biggest help for me so far has been the penile clamp. It does work for me, but it starts causing a bit of irritation after about six hours.
Age 62, Diagnosed at 58
6/12-PSA 4.6, Biopsy 12/19/12 Positive 4 of 12
DaVinci 2-14-13
Updated Gleason 4+3=7
First post op PSA 4-5-13 Undetectable
15 month post op PSA 5-16-14 0.3
Started SRT 6-25-14
Ended SRT 8-12-14
1st post SRT PSA 9-24-14 0.1
1year post SRT PSA 9-18-15 <0.1
18 month post SRT 3-10-16 <0.1
2 year post SRT 9-26-16 <0.1
31 month post SRT 5-1-17 <0.1

RobLee
Regular Member


Date Joined Apr 2017
Total Posts : 450
   Posted 1/3/2018 11:32 AM (GMT -7)   
Just so you understand, the external cath is not in any way like the kind of catheter that goes inside you. It is like a condom with a small tube on the end of it. You roll it on just like a condom, but it has a mild adhesive coating so it seals and keeps urine from leaking out. Your pee goes out the end, thru a hose and into the leg bag.

Some guys get scared away because it is a lot of plumbing to manage, but in many ways it is better than pads because you don't have the wet padding against your skin. Actually I had very few problems during the year that I used them. The hardest part was finding the style and size that I liked best.
2014-15: PSA's 9, 12, 20, 25... Neg DRE's, false neg TRUS biopsy
6/16: MRI Fusion biopsy, Right Base, 2x40%+2x100% all G8 (4+4)
8/16: DaVinci RP, 6mm EPE, PNI, 25% G4, BL SVI, stage T3B N0M0

1/17: started 18 months Lupron ADT, PSA's ~.03
5/17: AMS800 AUS implanted, revised 5/30
39 tx RapidArc IMRT (70 Gy) Aug-Oct 2017

tdnjam
Veteran Member


Date Joined Jan 2013
Total Posts : 516
   Posted 1/3/2018 12:03 PM (GMT -7)   
Thanks for the clarification, RobLee. I will look into it.
Age 62, Diagnosed at 58
6/12-PSA 4.6, Biopsy 12/19/12 Positive 4 of 12
DaVinci 2-14-13
Updated Gleason 4+3=7
First post op PSA 4-5-13 Undetectable
15 month post op PSA 5-16-14 0.3
Started SRT 6-25-14
Ended SRT 8-12-14
1st post SRT PSA 9-24-14 0.1
1year post SRT PSA 9-18-15 <0.1
18 month post SRT 3-10-16 <0.1
2 year post SRT 9-26-16 <0.1
31 month post SRT 5-1-17 <0.1

tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 417
   Posted 1/4/2018 8:13 PM (GMT -7)   
I have aus successfully for 7 years. Sorry it did not work for you.
If you have not tried Tena pads you should. They have 4 levels and the level 4 hold a lot more than Depends.
66 yr old male 2008
PSA jumped 3 to 8 Jan 2008
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP, 7/23/08. Tumor type: Acinar
Incontinence & ED. Dry nights , no control during day.
FUDS and cystourethroscopy testing 10/09.
Virtue sling surgery 2/3/10 NYU med center
Appeared to help but returned to pre sling condition.
AMS 800 AUS implanted 7/8/10 at U of MI
AMS 800 still working fine 12/1/16

tdnjam
Veteran Member


Date Joined Jan 2013
Total Posts : 516
   Posted 1/5/2018 1:16 AM (GMT -7)   
tallguy, I have not tried Tena pads. I will certainly look into them. Thanks!
Age 62, Diagnosed at 58
6/12-PSA 4.6, Biopsy 12/19/12 Positive 4 of 12
DaVinci 2-14-13
Updated Gleason 4+3=7
First post op PSA 4-5-13 Undetectable
15 month post op PSA 5-16-14 0.3
Started SRT 6-25-14
Ended SRT 8-12-14
1st post SRT PSA 9-24-14 0.1
1year post SRT PSA 9-18-15 <0.1
18 month post SRT 3-10-16 <0.1
2 year post SRT 9-26-16 <0.1
31 month post SRT 5-1-17 <0.1
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, January 16, 2018 10:12 PM (GMT -7)
There are a total of 2,917,857 posts in 320,173 threads.
View Active Threads


Who's Online
This forum has 159257 registered members. Please welcome our newest member, Iem Overit.
318 Guest(s), 4 Registered Member(s) are currently online.  Details
Revmet, ppm guy, Jiangkong, Iem Overit