5 year Proton treatment update

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stixandstonz
Regular Member


Date Joined Nov 2012
Total Posts : 177
   Posted 1/3/2018 7:49 AM (GMT -7)   
Just had my 5 year post Proton treatment PSA and it came back 0.6, it has been at 0.6 for a year. I will take it. No lingering side effects from treatment. Happy New Year to all.
Regards,
Kris
Diagnosed at 51, 7/12 PSA 4.0, DRE negative.
GS 8, 3 of 12 cores positive. L Apex GS 4+3=7 10%, L Mid GS 4+4=8 10%, L Lateral Apex GS 3+4=7 60%, Began HT 2 mo prior to RT, 6 mo total
Proton at UFPTI 10/12, finished 1/13, no incont or ED
PSA 01/13 .1; 4/13 .3; 7/13 .3; 10/13 .3; 01/14 .4; 04/14 .5; 07/14 .6; 10/14 .6; 01/15 1.0(PSA bounce at 24mo); 04/15 thru 7/16 .3, 1/17, 7/17 & 1/18 .6

hrpufnstuf
Regular Member


Date Joined Mar 2012
Total Posts : 333
   Posted 1/3/2018 2:57 PM (GMT -7)   
Good on you B.O.B
Age 69 DX 06/14 1 of 24 cores positive, 5% involved, (3+4), psa 6.2
2nd opinion from JH (3+3)
3rd opinion from UFPTI (3+4)
mpMRI Duke: 50% chance of SV spread
SV fusion biopsy Duke 10/2014 negative
proton at UFPTI 11/14-01/15
PSA:
06/14 6.2 (at diagnosis)
11/14 11.19
01/15 6.62
07/15 2.50
01/16 1.28
07/16 2.56 (bounce)
01/17 .75

stixandstonz
Regular Member


Date Joined Nov 2012
Total Posts : 177
   Posted 1/3/2018 3:05 PM (GMT -7)   
Hope to see you next week. Glad you are doing well.
Regards,
Kris
Diagnosed at 51, 7/12 PSA 4.0, DRE negative.
GS 8, 3 of 12 cores positive. L Apex GS 4+3=7 10%, L Mid GS 4+4=8 10%, L Lateral Apex GS 3+4=7 60%, Began HT 2 mo prior to RT, 6 mo total
Proton at UFPTI 10/12, finished 1/13, no incont or ED
PSA 01/13 .1; 4/13 .3; 7/13 .3; 10/13 .3; 01/14 .4; 04/14 .5; 07/14 .6; 10/14 .6; 01/15 1.0(PSA bounce at 24mo); 04/15 thru 7/16 .3, 1/17, 7/17 & 1/18 .6

hrpufnstuf
Regular Member


Date Joined Mar 2012
Total Posts : 333
   Posted 1/3/2018 3:30 PM (GMT -7)   
I assume you mean in Jacksonville. I missed last year and have no plans to go this year either. I have my local urologist perform the DRE and discuss any SE's with him. Up until recently my SE's have been minor but here lately I have been experiencing urges to urinate during long walks. No problem any other time. I dont get up at night anymore. I can't walk more than 4 miles now without a pit stop in the woods. It's becoming very annoying. Glad to hear you're well.
Age 69 DX 06/14 1 of 24 cores positive, 5% involved, (3+4), psa 6.2
2nd opinion from JH (3+3)
3rd opinion from UFPTI (3+4)
mpMRI Duke: 50% chance of SV spread
SV fusion biopsy Duke 10/2014 negative
proton at UFPTI 11/14-01/15
PSA:
06/14 6.2 (at diagnosis)
11/14 11.19
01/15 6.62
07/15 2.50
01/16 1.28
07/16 2.56 (bounce)
01/17 .75

browntrout
Veteran Member


Date Joined Apr 2014
Total Posts : 546
   Posted 1/4/2018 6:14 AM (GMT -7)   
Don't hear a lot from Proton guys but when we do, it sounds promising. Congrats on your read and may it stay there or trend down.
Age 65, Steadily rising PSA with a jump from 3.32 to 4.3 in 5 months, April 2014 Bx May 9, 2014 4/12 cores 3%, 15%, 30%, .5mm, 3mm, 5mm G3+4=7 PI not id'd Vol25g Ultrasound Findings: No discrete nodules. BT 7/16/14 81 pSeeds, nausea, urine blood, burning, 1/2 day, bruising, mild urinary/bowel 2 wks PSA: 8/14 1.19, 10/14 .41, I/15 .36, 4/15 .33, 7/15 .37, 11/15 .35, 5/16 .15, 10/16 .16, 5/17 .04

JNF
Veteran Member


Date Joined Dec 2010
Total Posts : 3433
   Posted 1/4/2018 6:42 AM (GMT -7)   
The use of Proton for PCa has declined significantly over the last five years as Medicare and most insurance companies have all but stopped reimbursing due to the greater costs and no advantage compared to IMRT/IGRT/SBRT and brachytherapy.

The center here in Atlanta is finally opening after more than three years of delays and near financial failure during construction. PCa is on the list, but my radiation oncologist says they don't expect to do much PCa business due to the lack reimbursement approvals by most third party payors..
PSA 59 on 8-26-2010 age 60. Biopsy 9-8-2010 12/12 positive, 20-80% involved, PNI in 3 cores, G 3+3,3+4,and 4+3=G7, T2b.
Eligard and Jalyn started on 10-7-2010. IMRT to prostate and lymph nodes started on 11-8-2010, HDR Brachytherapy December 6 and 13, 2010.
PSA < .1 since February 2011. Located in Cumming Georgia north of Atlanta

hrpufnstuf
Regular Member


Date Joined Mar 2012
Total Posts : 333
   Posted 1/4/2018 6:46 PM (GMT -7)   
Kris, looking at your PSA history I see you were down to .3 for a 15 month stretch, then went up a bit to .6 for the past year.

.6 is good but I wonder if your doctor at UFPTI had any comments about the increase. Does he think you just had another bounce? I have my next PSA coming up in a few days and as much as I'd like to see a decrease I realize PSA does not always move in a straight line down for us radiation guys. Curious if your doctor there had anything to say about your particular history.
Age 69 DX 06/14 1 of 24 cores positive, 5% involved, (3+4), psa 6.2
2nd opinion from JH (3+3)
3rd opinion from UFPTI (3+4)
mpMRI Duke: 50% chance of SV spread
SV fusion biopsy Duke 10/2014 negative
proton at UFPTI 11/14-01/15
PSA:
06/14 6.2 (at diagnosis)
11/14 11.19
01/15 6.62
07/15 2.50
01/16 1.28
07/16 2.56 (bounce)
01/17 .75

stixandstonz
Regular Member


Date Joined Nov 2012
Total Posts : 177
   Posted 1/5/2018 7:22 AM (GMT -7)   
hrpufnstuf,
My RO said that it is not uncommon to have the PSA bounce around a bit. Since there is still a Prostate gland that produces PSA. He said he would not be concerned unless it jumped up to nadir + 2. So in my case 2.3 . I have not had my 5 year consult yet, that is next week. But no movement is good. I feel that minor fluctuations are not concerning. Just part of the mindset when you choose radiation. Your numbers look good, and I wish you continued downward trends. Just remember to abstain from sex, running, long walks, bike rides for a few days before the blood draw. If nothing else, you won't have to consider if the activities negatively affected the PSA test.
Side note: I retired last year before .6, walk or ride everyday, and have lost +30lbs. I am curious if that had any effect. I don't really expect an answer.

Cheers to everyone this holiday season. Kris
Diagnosed at 51, 7/12 PSA 4.0, DRE negative.
GS 8, 3 of 12 cores positive. L Apex GS 4+3=7 10%, L Mid GS 4+4=8 10%, L Lateral Apex GS 3+4=7 60%, Began HT 2 mo prior to RT, 6 mo total
Proton at UFPTI 10/12, finished 1/13, no incont or ED
PSA 01/13 .1; 4/13 .3; 7/13 .3; 10/13 .3; 01/14 .4; 04/14 .5; 07/14 .6; 10/14 .6; 01/15 1.0(PSA bounce at 24mo); 04/15 thru 7/16 .3, 1/17, 7/17 & 1/18 .6

hrpufnstuf
Regular Member


Date Joined Mar 2012
Total Posts : 333
   Posted 1/5/2018 8:50 AM (GMT -7)   
Thanks for the response. My next PSA is Monday, January 8. I dont bike this time of year and I dont run anymore. I avoid sex, and weight lifting for a week or so before the test but I had not heard of the walking restriction before. I usually walk 5 miles every morning. Maybe I'll take a break from that Saturday and Sunday. By the way, who is your RO there in FL?
Age 69 DX 06/14 1 of 24 cores positive, 5% involved, (3+4), psa 6.2
2nd opinion from JH (3+3)
3rd opinion from UFPTI (3+4)
mpMRI Duke: 50% chance of SV spread
SV fusion biopsy Duke 10/2014 negative
proton at UFPTI 11/14-01/15
PSA:
06/14 6.2 (at diagnosis)
11/14 11.19
01/15 6.62
07/15 2.50
01/16 1.28
07/16 2.56 (bounce)
01/17 .75

stixandstonz
Regular Member


Date Joined Nov 2012
Total Posts : 177
   Posted 1/5/2018 7:09 PM (GMT -7)   
Dr. Bill, William Mendenhall.
Diagnosed at 51, 7/12 PSA 4.0, DRE negative.
GS 8, 3 of 12 cores positive. L Apex GS 4+3=7 10%, L Mid GS 4+4=8 10%, L Lateral Apex GS 3+4=7 60%, Began HT 2 mo prior to RT, 6 mo total
Proton at UFPTI 10/12, finished 1/13, no incont or ED
PSA 01/13 .1; 4/13 .3; 7/13 .3; 10/13 .3; 01/14 .4; 04/14 .5; 07/14 .6; 10/14 .6; 01/15 1.0(PSA bounce at 24mo); 04/15 thru 7/16 .3, 1/17, 7/17 & 1/18 .6
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