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Posted 7/5/2018 7:59 AM (GMT -7)
Thanks all for the replies! One more question, maybe it is too early to ask, what is the best way to find a good doctor for the second opinion? I am in great Boston area and I know there are lots of good ones out there.
Posted 7/5/2018 9:00 AM (GMT -7)
You should have your urologist's office send the biopsy slides to Johns Hopkins to review the slides. Your urologist's office would know how to do this. Unfortunately, it's most likely out-of network, so the cost is $250.00 to JH but well worth it.
Posted 7/5/2018 12:34 PM (GMT -7)
Don't worry too much about getting a second opinion until you have the first one. After that, IF you come back positive, then have your slides sent down to Johns Hopkins for a second read.

THEN, for second opinions about treatment options, you have a great place to go in Boston--Dana Farber. They are as good as it gets with treatment options.
Posted 8/3/2018 7:04 AM (GMT -7)
Did biopsy on July 31. Got a call from doctor this morning and the pathology report comes back with negative. No cancer found this time. The ultrasound detects my prostate size 58cc, which is large. This might explain the elevated PSA and PHI (there are some limited studies showing the larger prostate volume is the key factor of the higher PSA and PHI). As for BHP, doctor decides not to teat for now. Set up a follow-up blood test and visit in 6 months. Temporary relief for now.

By the way, the biopsy is an easy part and the anxiety is the main 'killer'.
Posted 8/3/2018 8:45 AM (GMT -7)
The biopsy result should be a BIG relief. Are you still anxious about the size of your prostate?
Posted 8/3/2018 8:45 AM (GMT -7)
That was kind of expected, but still good. BPH would explain the rise. The monitoring plan sounds good.

If it gets worse, you can get some meds for BPH.

Some day (years) you may need to repeat the biopsy, maybe, possibly.

Andrew
Posted 8/3/2018 9:28 AM (GMT -7)
I am not so worry about BHP but lots of reports of 'first biopsy negative' with repeated ones that find out cancer is something I need to watch for. My doctor said they will do genomic screen on the tissue and report back with risk level in few days.
Posted 8/3/2018 9:57 AM (GMT -7)
That's a prudent thing to do. Unless you come back high risk, you likely could wait a couple of years for a repeat biopsy, depending on any PSA rises.

Let us know what the tests say,
Andrew
Posted 2/8/2019 9:12 AM (GMT -7)
6 month passed. I did my PSA and PHI on Monday. PSA is 5.8 (6.22 last July) and PHI 35% (38% last July). Doctor is happy about the result. He did finger exam on prostate and nothing changes. He explained to me that last biopsy was negative and they did DNA (genomic test) which can tell if the surrounding cells are exposed to cancer or sort of things. The result is also negative. As my prostate size is 59cc he thinks it is possible the elevation is due to BHP. No treatment for now. Redo lab in 6 months and if it goes up he will ask me do MRI. Office visit in one year.

Post Edited (Jiangkong) : 2/8/2019 9:18:27 AM (GMT-7)

Posted 2/8/2019 10:26 AM (GMT -7)
That's good news!
Posted 2/8/2019 10:53 AM (GMT -7)
congratulations on the great news.

larry
Posted 2/8/2019 10:56 AM (GMT -7)
Breathe a big sigh of relieve, there is no concerning data or trend. Congratulations on great news
Posted 8/8/2019 7:53 AM (GMT -7)
Another 6 months. The lab comes back: PSA is elevated to 6.4 but PHI drops to 24% which puts the lowest risk to be cancer. My doctor is happy and will re-check in 6 month with a office visit.

JK
Posted 8/8/2019 7:56 AM (GMT -7)
Good news👍
Posted 2/14/2020 10:12 AM (GMT -7)
Another 6 months go by. PSA 6.46, PHI 32.18. Dr. says it is still at low risk range so repeat lab in 6 months.
Posted 2/14/2020 10:17 AM (GMT -7)
Sounds like good news to me.
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