2 years ago I was experiencing extreme edema. I had tremendous swelling in my feet ,calves ,thighs and abdomen. I had extreme fatigue and difficulty breathing. I had all the normal exams.. lungs, heart, dvt, sleep apnea.(which I found out I had). I had gained about
30 lbs in a very short time. Eventually all this led to my Dx of PC. Needless to say most attention became focused on treating PC.
I continued to ask about
what to do with the edema. Even brought it up here many times.
The only time I got any releif from it was after chemo. I noticed that it was gone.
Anyway... for the past 2-3 months the edema has gotten worse. I've put back on the 30 lbs. My PCP has me on lasics and spiroltanactine (sp). I have shortness of breath and my stomach is huge.Fatigue is bad. (thought that would get better after ADT)
My reasearch has lead me to ascites which from what I understand can be a result of prostate cancer in rare cases. Most of the time it comes in late stage metastic patients.It has presented as a symtom in very rare cases before Dx of PC. The main causes of ascites is usually gastrointestinal cancer or liver disease. I have issues with duodenal tumors. I have been dealing with that for the last 10 years also with no cancer detected there.
I've set up an appointment to see Dr. Peter Nelson at the University of Washington. He specializes in early and late stage PC treatments. (any one know of or had experience with him?)
I need to find out what's causing this extreme edema. It's wearing me down. For 2 years now ,I've been dealing with this.
I have wanted to find a MO that specializes in PC only.
Hoping that someone might have some insight on this.
Dx 6/3/2016 PSA 3.42 %fPSA 7.6
Bx 6/1/2016 G9 ... 8 of 12 cores positive (70% - 60% - 30% - 30%)
4+5 =G9 (4 cores) 5+4 =G9 (2 cores) 3+4 =G7( (2 cores) PNI.. present
4/16 ct scan neg 6/13/16 Bone scan..neg
6/16 Zoladex,Lupron 9/16-12//17
8/30/16 IMRT 79gy 39 fractions
PSA 1/17- 3/17 0.02, 4/5/17-11/17 0.01
18 months HT completed 12/17
Post Edited (Artist Mark) : 1/22/2018 10:58:24 AM (GMT-7)