I'm sorry about
your diagnosis. When it is so recent it can be impossible to cool your mind down. Prostate cancer, even high risk prostate cancer, progresses slowly at first, so you have plenty of time to let your emotional temperature cool. Do yourself a favor and take that time. Decide not to decide anything for several months.
In the meantime, it's a good idea to get a second opinion from Epstein's lab at Johns Hopkins. It may cost you $250, but is worth it for the assurance that will provide.
Both suggest radiation would be a bad long term outcome for me as a first treatment option and I should definitely avoid it before doing some other option whether it be removal or not.
That's because you were talking to urologists who know next to nothing about
radiation. Don't blame them for being woefully ignorant - it's not their job; it's your job to go out and talk to experts in each kind of therapy.
I think surgery (either
open or robotic) should work fine on your borderline "favorable intermediate risk" prostate cancer. Your young age is prognostic for a good recovery. But that is true of SBRT and brachytherapy also, but with a lot less potential side effects. All of those therapies have a 90+% chance of curing you, and they all have salvage therapies in case they don't work. Remember that the downside of being diagnosed at a young age is that you will have more time to live with any lasting side effects of treatment.
There is a myth that radiation side effects occur later. That has been disproven:/pcnrv.blogspot.com/2016/09/patient-reported-outcomes-from-protect.html
If you tell us where you are located, we might be able to recommend appropriate specialists.
Allen - not an MD
•PSA=7.3, prostate volume=55cc, 8/17 cores G6 5-35% involvement
•SBRT 9 yr onc. results
•SBRT 7 yr QOL results
•treated 10/2010 at age 57 at UCLA,PSA now: 0.1,no lasting urinary, rectal or sexual SEsmy PC blog