Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies & Asthma Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Fatigue Chronic Illness Crohn's Disease Cystic Fibrosis Depression Diabetes Epilepsy
Fibromyalgia GERD & Acid Reflux Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Parkinson's Disease Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log InJoin Us
Close main menu ×
  • Home
  • Health Conditions
  • Support Forums
  • Login
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

GFMPH Cajun Style just one month away April 26-29

Chronic Illness Forums
>
Prostate Cancer
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
Cajun Jeff
Veteran Member
Joined : Mar 2009
Posts : 4131
Posted 3/26/2018 4:54 PM (GMT -7)
Those of you that are planning on being here please confirm so I can have a solid head count for food, it is all about the food right? If you have a significant other attending with you I should know that as well.


Any of you with questions feel free to ask here.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better
profile picture
142
Forum Moderator
Joined : Jan 2010
Posts : 7298
Posted 3/27/2018 11:52 AM (GMT -7)
I'm in.
And a bump.
profile picture
Steve n Dallas
Veteran Member
Joined : Mar 2008
Posts : 4900
Posted 3/28/2018 2:13 AM (GMT -7)
I'm probably coming.
profile picture
Subdenis
Veteran Member
Joined : Aug 2017
Posts : 707
Posted 3/28/2018 2:24 AM (GMT -7)
I am in! turn
profile picture
Worried Guy
Veteran Member
Joined : Jul 2009
Posts : 3766
Posted 3/28/2018 6:58 AM (GMT -7)
We're coming! We bought the tickets a month ago!

I probably won't be stuffing myself silly this time since I need to let my colon heal.

Guys! Listen to your mother! Eat more fiber!

J & B
Age: 65, Mar. 42 yrs, 56 dx, PSA: 4/09 17.8, 6/09 23.2
Biop.: 6/09 Pos 7/12, 20-70%, G4+3; Bone, CT Neg
DaVin RP: 7/09, U of Roch Med Ctr
Path Rpt: G3+4, pT3aNOMx; 56g, Tumor 2.5x1.8 cm both lobes and apex
EPE, PNI extensive; Sem Ves, Vas def clear, Lymph 0/13
AdVan Sling 1/11
ED total
PSA: 10/09 .04, 7/10 <0.01, 7/11 <0.01, 1/12 <0.02, 4/13 <0.02, 3/14 <0.02, 4/15 <0.02, 5/16 <0.02, 6/17 <0.02!
profile picture
Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 7401
Posted 3/28/2018 3:38 PM (GMT -7)
I'm gonna have to pass guys. I hope to make the next one. I'll miss being there
Dx Age 64 Nov 2014, 4.3
BX 3 of 12 cores positive original pathologyG6, G6, G8 (3+5)
downgraded to 3+3=6 by tDr Epstein, JH
RALP with Dr Ash Tewari Jan 6, 2015
Post surgical pathology – G7 (3+4), ECE, Margins, LN, SV all negative
PSA @ 6 weeks 2/15, .<02, remained <0.02 until January 2017, .02, repeat Feb 2017, still .02. May 2017-.033, August 2017- .033 November .046
Decipher test, low risk, .37 score
profile picture
Cajun Jeff
Veteran Member
Joined : Mar 2009
Posts : 4131
Posted 3/29/2018 12:44 PM (GMT -7)
Pratoman we are sorry you can not make it this year. Hope to see you in September.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better
profile picture
halbert
Veteran Member
Joined : Dec 2014
Posts : 4355
Posted 3/29/2018 3:05 PM (GMT -7)
We won't be able to make it either, sorry to say.

WG Jeff, email me please....
Age at Diagnosis: 56
RALP on 2/17/15, BJC St. Louis, Dr. Figenshau
58.5g, G3+4, 20%, 4 quadrants involved
PSA 3/10/15: 0.10
5/15: <.04
8/15: <.04
11/15: <.04
2/16: <0.04
8/16: <0.04
2/17: <0.006
8/17: <0.006
3/18: <0.006
My Story: www.healingwell.com/community/default.aspx?f=35&m=3300024
profile picture
Cajun Jeff
Veteran Member
Joined : Mar 2009
Posts : 4131
Posted 3/29/2018 5:43 PM (GMT -7)
FHal we will miss you guys also.
profile picture
Grinnell86
Regular Member
Joined : Feb 2010
Posts : 274
Posted 4/2/2018 4:23 PM (GMT -7)
For anyone who has never attended one of these, it is a blast! It is not a pity party, but it is a party. Knowledge is key to fighting this disease and its side effects. You have a wealth of knowledge here with people from Gleason 6 to 9. We do this over some drinks and great food. I don't know of anyone who didn't think this was a positive experience. You don't know these people when you arrive, but they become lifelong friends from all over the country and from all walks of life. Louisiana is awesome this time of year. Several couples will be enjoying New Orleans in the days preceding the event. If you are on the fence, jump on in.

Cheers,
Paul
Age 53
PSA 10/09=4.60, Biopsy 12/09
Left side benign, Rt side 3of 4 pos, 70%
Gleason 3+4
DaVinci 2/16/10,
Gleason 4+3
Pos marg
T2C PNX PMX
PSA 5/10 <.05, 8/10 .12, 9/10 .12, 12/10 .16, 1/11 .15,
02/11 .17, 03//11 .19
SRT 4/11
PSA 7/11 .16, 10/11 .14, 2/12 =.081, 6/12=.034, 12/12=.013, 6/13=.015. 1/14=.017, 7/14=.029, 1/15=.032, 1/16=.044, 7/16=.049, 1/17=.045, 7/17=.063, 11/17=.051
profile picture
JNF
Veteran Member
Joined : Dec 2010
Posts : 4429
Posted 4/2/2018 7:56 PM (GMT -7)
It is a pity if you don’t come to this party!!!

Lee and I are warming up in Natchez for the weekend, then meeting up with several friends on Monday in NOLA. We start at noon at the Acme Oyster House for Mollusks and Mojitos. After a few days in the Crescent City we travel up the river to Brusly and will receive the world class hospitality of Mama Pat and Cajun Jeff. And for several days we will Laissez Les bons temps rouler!!!

We encourage all to attend and live life to the fullest.
PSA 59 on 8-26-2010 age 60. Biopsy 9-8-2010 12/12 positive, 20-80% involved, PNI in 3 cores, G 3+3,3+4,and 4+3=G7, T2b.
Eligard and Jalyn started on 10-7-2010. IMRT to prostate and lymph nodes started on 11-8-2010, HDR Brachytherapy December 6 and 13, 2010.
PSA < .1 since February 2011. Located in Cumming Georgia north of Atlanta

Post Edited (JNF) : 4/3/2018 4:03:53 AM (GMT-6)

profile picture
Cajun Jeff
Veteran Member
Joined : Mar 2009
Posts : 4131
Posted 4/3/2018 3:34 PM (GMT -7)
We can’t wait. Plan to see you guys at Acme for lunch.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better
profile picture
Dutchtown Kenny
New Member
Joined : Mar 2018
Posts : 14
Posted 4/4/2018 12:16 PM (GMT -7)
Planning to be there. Changed the time of my follow up appt with my surgeon in NOLA that day, hopefully to get back to BR in time for lunch. Look for an update to my situation momentarily.

Dutchtown Kenny
AKA achyNblue
Borrn April 1961
Jan 2013 PSA 1.17
beg t-shots 1mm 2weeks
Feb 2017 PSA elevated, digital negative
vasectomy Oct 2017 final T-shot
Nov 2017GP shared 6.0 PSA with urologist, digital negative
retest PSA 4.0
Biop 1 of 12 pos
Gleason 3+4
began cilalis 5mg 2/12/18
Lap\Robo surgery 2/28/18
cath out 3/8/18
Path 5%
Doc said he got it all, but will monitor PSA
profile picture
gardener55
Regular Member
Joined : May 2017
Posts : 45
Posted 4/5/2018 7:15 AM (GMT -7)
Won't be able to make this one, maybe next year or in the fall.

Those of you going to Acme Oyster House, have a dozen for me.
profile picture
Cajun Jeff
Veteran Member
Joined : Mar 2009
Posts : 4131
Posted 4/10/2018 8:08 PM (GMT -7)
Sure wish you could be with us.
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better
profile picture
logoslidat
Veteran Member
Joined : Sep 2009
Posts : 6602
Posted 4/11/2018 8:42 AM (GMT -7)
Nawlins is a great place...spent some time there pre Katrina with family...the heat and humidity...makes it for me...sultry...a temptation balanced with a governor{auto kine}.... a dialect of its own...much like hawaii...Hawaii has the malasada...a beignet with granulated sugar instead of powdered...both onolicious...our malasada is associated with fat Tuesday and arrived with the portugese immigrants who came to work in the sugar cane fields back in the day...of course...that[sugar cane fields) is another "rainbow connection"
in joy yourseleves...the rest of the forum will breathe your air... smile
gleason 9 contained stopped psa testing jan 2015 with two consecutive psa's a year apart at 0.15
surgery 10/09 only treatment...eyes wide open...no sand...gonna live til I die...not the reverse forgive my virtues as well as my sins...
profile picture
Cajun Jeff
Veteran Member
Joined : Mar 2009
Posts : 4131
Posted 4/11/2018 11:38 AM (GMT -7)
Yes sir logoslidat you got a good discription for nawlins there.
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better
✚ New Topic ✚ Reply

Forum Information

Currently it is Thursday, December 05, 2019 6:27 PM (GMT -7)
There are a total of 3,101,392 posts in 337,719 threads.
View Active Topics

Who's Online

This forum has 165397 registered members. Please welcome our newest member, Cignet.☄️.
188 Guest(s), 3 Registered Member(s) are currently online.  Details
mattam, ChristianWithLyme, Bohemond




HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
FacebookFacebook TwitterTwitter PinterestPinterest LinkedInLinkedIn
© 1997-2019 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.