For those people like myself, who are not able to go to the places
where the pca experts are - and thus must use community oncologists -
can that mean that we will not get the best advice as to treatment
and sequencing and so on, in context of recurrent and advanced pca treatment ?
and that this in itself can have an impact on our lives ?
(in that we might not be offered the best or most appropriate treatments,
esp sequencing of treatments re advanced pca)
And have found that even if one is able to go one time to a pca expert -
that not all of these experts are willing to communicate ongoing with
one's local oncologist. And of course one can't know in advance what the
pca expert (or their institution/practice) policy is on that.
Since if not, it would mean going to these experts is just a one time
visit with their advice based just on the facts as they are that moment, which might not be the same
that day as they could be a month later.
(I have had this experience seeing pca experts at a well known place)
Or is it that with things like nccn and other guidelines and protocols,
that even community oncologists have data to advise on the best treatment
and sequencing ?
I wonder about
this since nccn is more of a summary with lots of possibilities
but without the real complexity related to sequencing and so on of treatments.
Am not able to go to other places due to needing to be a caregiver for spouse
and not set up or can afford, people to come in to care for her
and no friends or relatives around either.
I realize I may not like the answers I might hear to this question,
and maybe its obvious that seeing an expert is better, but would
hope in my heart that seeing local oncologist would not have such
a negative impact on my treatment as I am imagining. (compared with seeing
(added a subject for you, but it can't be as long as you wanted - 142)
Post Edited By Moderator (142) : 4/8/2018 4:22:49 PM (GMT-6)