I will start Firmagon next week. It's a monthly injection in the abdomen. The first shot is a double and I suspect is not pleasant. Trying to keep positive.
Like others here I think there might have been something defective in your Eligard or its administration. I suspect you will have better results from your Firmagon shot next week. As for your worry about
the shot itself I hope my experience last week with my first Firmagon shot can allay your worry.
I had my first Firmagon shot -- actually two shots last week. Like you, I was worried anticipating the expected pain of the shots. I thought I was maintaining my James Dean "never let them see you sweat" cool, but my blood pressure on check-in gave me away. My usually normal BP set a new record of something like 155 over 80 -- though it was back down when the nurse practitioner checked it again 1/2 hour later.
As for the shots -- first the good news - they really didn't hurt. The nurse pinched some belly fat. For the first time I was grateful for actually having some belly fat. She did the second shot about
six inches away from the first one. The shots felt no worse than a typical jab in the arm for a blood test. Really! Even though the Firmagon has to be injected slowly - about
20 seconds -- there was no sensation of the fluid going in. As for the less good news - the next morning I had a burning sensation across my belly. I told my wife it felt like I came in second best in a knife fight, but it was probably more like a couple of bad bee stings. Tylenol took the edge off and once I was up and moving around I got used to it. It felt that way for two days. By day 3 the pain had cranked down by at least half. By day 4 I hardly felt it at all. To give the pain a number I'd call it maybe a 4 or 5 on a scale of 10.
All in all, the experience was not nearly as bad as I had expected. And since these initial shots total 240 milligrams and future treatments are single shots of only of 80 milligrams, this should be even more tolerable going forward.
-2002-PSA 9.4, 5 of 10 cores positive - 30-50%.
-RP 2002. PT3B N0 MX Gleason=7 (3+4), 75% left lobe; small focus rt lobe.
-PSA low of 0.01; slow rise to 0.4.
-SRT 2010. One lymph node targeted. Casodex during SRT
-PSA 0.00 thu 2014;
-0.02 Oct '14; 0.04 Apr '16; 0.51 Jan '17; 2.46 Jan '18, 4.19 Apr '18; 6.62 May '18
-Firmagon May '18 in control group of clinical trial
Post Edited (Bohemond) : 5/13/2018 7:59:26 AM (GMT-6)