Thanks, but on the other answers here psa still seems to have a connection to the development of the disease? I don't know what's correct here but his history is quite unusual. A normal person would probably not have lived as long as he has. Now his psa is over 4000, but I don't think they will measure it anymore
All I can say, again, is that I'm sorry.
It is correct that PSA has a "connection to the development of the disease," although it is meaningless to compare absolute values of PSA for various reasons, and meaningless to end-stage PC.
But you asked a different question. You asked: "Anyone with experience of how long time it took from they stopped treatment until they died?", and it seems that you were incorrectly given an impression (by only one poster, although it was repeated, only by him, several times) that PSA can be used as a leading indicator for pending death. I'll simply repeat that this is not correct...and I'm sorry that it seems you've been misled. This poster has given misleading, shoot-from-the-hip information—and been called-out for it—many times at this website.
It sounds, now, that you've gotten a very good list of indicators for how to gauge the final-stage decline...from my initial post and others who have added on. I hope that helps.
The pattern of your dad's case appears quite common; death from PC can often be very, very slow, but with good palliative care it does not have to be painful (it typically would be without morphine). In very different (less frequent) case circumstances, PC death can also come quickly; the indicators, BTW, are the same, they just come more rapidly. The book Being Mortal, and in particular the 2nd half of the book, gives outstanding guidance on how to improve the atmosphere for everyone involved
and help enable a dignified passing...it won't change the fact that he is dying, but it can
open his eyes, and in a different way
open your eyes, to his remaining days.When you say that death from Pc can be very slow, I guess you mean from the day you get the diagnos and not from the day you stop cancer treatment? If so, yes, he's had pc for 13 years, and that's a long time. Or did you mean from the day you stop treatment?
2005 - diagnosed metastatic pca in spine. PSA 2000. Gleason 7. Orchiectomy + taxotere. PSA down to almost undetectable
Oct -11: PSA 150, started casodex. Taxotere from oct -11 to feb -12. PSA down to 50 by april.
Oct- 12: - PSA increased to 300, ended casodex, started zytiga.
PSA stable at 60-80 from Oct -12- to feb-14
apr -14: - PSA 300, taxotere may-august.
jan-may 15 Xtandi, aug-jan 16 xofigo