It’s go time. My SRT setup and first treatment is at 9pm tomorrow night. This week will pretty much suck, as they couldn’t get me in for morning appointments. So I’m all over the map. Monday 9Pm, tues 3:30 pm Wednesday 7:20 pm, etc. then starting with treatment number 7, it’s 7:20am each morning.
Things I wonder about
How am I going to be able to control whether I can empty my bowels before each treatment. Especially at 9pm and 7:20 each morning.
When the hell am I going to see my RO? I haven’t seen him since before I made my decision to do adt and SRT. Will I be seeing him (Zelefsky at MSKCC) each week, or the radiation nurse?
Can I eat before my treatments this week with the crazy schedule? Tomorrow before my 9pm treatment I have a 6:30pm appt for my second Firmagon shot, and labwork. So I’ve got time to kill.
Are the effects of the Firmagon, cumulative? My only SE’s the first m0nth are hot flashes(not terrible) and about
a 6 pound weight gain (although that’s partly a result of crappy eating habits over the holidays.) should I expect things to get worse?
What’s the common follow up protocol. When your done with SRT, how soon/how often do you need to go in for follow up? Im finishing SRT Nov 16th, and plan to head down to Florida for the winter on Dec 1st. If they can’t refer me to someone down there or insist all labs (and the last two Firmagon monthly shots) done at their lab (which I know they prefer), then I guess I’ll hve to fly up for a day or two, occasionally, ugh.
I wonder about
lots of other things, but they are things that are just without answers for now.
I have to admit, even though I understand rom the posts here that the first couple of weeks of SRT is usually a non event, the tension has been building a bit over the last day or two.
I am not a doctor, just another guy without a prostate
Dx Age 64 Nov 2014, PSA 4.3
BX 3 of 12 cores positive original pathology G6
RALP with Dr Ash Tewari Jan 6, 2015
Post surgical pathology G7 (3+4), - ECE, - Margins, -LN, -SV (+ frozen section apex converted to negative)
PSA @ 6 weeks 2/15, .<02, remained <0.02 until January 2017, .02, repeat Feb 2017, still .02. May 2017-.033, August 2017- .033 November .046, March 2018 .060. June 2018 .068, July 2018 - .082, August 2018, .078, August 2018 - .08
Decipher test, low risk, .37 score
My story.... tinyurl.com/qgyu3xq
My PSA History - /drive.google.com/file/d/1ltbG8x-iyH3k9pEltudhXt9u1krRwJSH/view?usp=sharing
Post Edited (Pratoman) : 9/23/2018 8:29:44 AM (GMT-6)