That's some great info, CAdogsRus.
I also have Aetna PPO with a $5K deductible, which I will pay in a heartbeat if they don't nickel and dime me on getting the best treatment, as supported by scientific evidence. So glad to hear they didn't do that to you.
Why did you decide to go with IMRT instead of SBRT for your combo therapy?
Did you have any interaction with Dr. Arno Mundt of the UCSD radiation oncology department?
I have heard of the San Diego support group, the Informed Prostate Cancer Support Group, https://ipcsg.org/ I just missed the July meeting. The speaker at the August meeting is Dr. Chris Kane of UCSD, who is supposed to be one of the top PC surgeons in SD, so I am planning to attend.
I was very interested in SBRT but I couldn't find anyone that offered brachy boost with SBRT, and the Ascend trial (I think I've got the right one) strongly favored the addition of brachy.
I almost went to see the third party radiation group affiliated with Palomar as they said they would offer SBRT (not everyone does SBRT with high risk), but I cancelled after I got concerned reading some things on Palomar and being concerned about
whether it was wise to not be at a NCCI facility.
I've heard good things about
Dr Fuller, and he did a gave a good presentation at a recent Saturday at the SD support group I mentioned.
I know of Dr Mundt, but I'm seeing Dr Einck. From what I discerned at the SD meetings (there's easily 70 to 100 who attend, many spouses as well), the UCSD group and Dr Fuller receive positive reviews.
And back on Aetna, my plan was a $4000 deductible, I pretty much paid all until that point. Then they covered 70% until I hit the $7150, now they pay everything -- thank goodness. For example, for PC purposes, not ED, I'm on 5 mg of Cialis. I just got a 90 day refill -- $0 to me, insurance paid $1364!!! But Aetna has been covering everything and in some cases they say it's not chargeable by the facility and I owe nothing.
I will likely be at the SD August meeting. If I am, you might spot my Mini Cooper with the dog on the back -- it's hard to miss. I'll be in the middle of my radiation -- I have my planning scan Monday, then 7 to 10 days later start 25 treatments of IMRT, Monday thru Friday. I'm cautiously optimistic that all goes well as 3 months into Lupron my side affects have been minimal. Right now, the thing I look forward to least is the one day of the brachy seeds implant -- that doesn't read like it's a lot of fun. But all in all, I think my route looks easier than surgery not to mention G9 likely would still be radiation after surgery.
If I can answer more questions, let me know. Off to dinner in South Park at Eclipse Chocolate and Bistro, highly recommended.
PSA 4.1 11/2017 (age 63)
DRE 1/2018, nodule one side
PSA 8.1 1/2018
mpMRI 2/2018, PIRAD 5
Biopsy 2/2018, 12 core + 2 target cores
DX 3/2018 (age 63)
Initial G8 @ UCSD
UPGRADED to G9 (4 cores 4+5, 1 core 4+4, 5 cores 4+3) 6/18 @ JHU
PSA 7.2 3/2018, 1.73 6/2018, 1.38 7/2018
3 month Lupron shot 4/2018, 7/2018
Investigated SBRT RT option, chose IMRT
IMRT to start 8/2018, LDR Brachy after IMRT