To tell or not tell

Only if you're going to be treated by that URO again.

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I'll be in the shop.
Age 58, 52 at DX
PSA:
4.2 10/11, 1.9 6/12, 1.2 12/12, 1.0 5/13, .6 11/13,
.7 5/14, .5 10/14, .5 4/15, .3 10/15, .3 4/16, .4 10/16, .4 5/17, .3 10/17 .3 4/18
G 3+4
Stage T1C
2 out of 14 cores positive
Treatment IGRT - 2/2012
My latest blog post

What is it his business?

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Allen - not an MD
•PSA=7.3, prostate volume=55cc, 8/17 cores G6 5-35% involvement
•SBRT 9 yr onc. results •SBRT 7 yr QOL results
•treated 10/2010 at age 57 at UCLA,PSA now: 0.1,no lasting urinary, rectal or sexual SEs
my PC blog

I agree with 142 on this one..While you are probably done with that surgeon / uro, you just never know..Ask your RO to send a copy of your records to the surgeon. (He may have already done so)..It won't hurt anything to keep him/her in the loop..I can almost guarantee you before the RO treated you he obtained a complete copy of your records from the surgeon so the surgeon already is aware of your radiation treatment....

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Age now 75 . Diagnosed G-9 6/2010. RALP, Radiation failed
Lupron, Zytiga, PSA <0.1 10/16 no change <0.1 5/17 PSA 1.6 Chemo or Provenge next..Sept '17, PSA now 9.2. ADT including Zytiga has failed. Will investigate treatment options. 11/17 PET/CT clear, but 4 new bone mets..Going to try Xtandi and see how I respond to that..3/2018 PSA now 54, chemo next. 5?10/18, PSA 200, Dosetaxel started..

After you finish the radiation treatment, you won't really have anything more to do with the RO. I continue to see my URO, even though he doesn't have anything to do with cancer treatment after surgery is done, and he is the one who orders my periodic PSA tests. If your URO is offended that you sought RT before he thought it was needed, that's a good sign you need a new one.

Post Edited (fiddlecanoe) : 8/14/2018 7:43:07 AM (GMT-6)

If for no other reason, I would send him data as a common courtesy, assuming of course you have any kind of relationship with him/her.

This speaks to another issue/question that we deal with.... who’s your quarterback? I recall asking my Uro/Surgeon , when I first visited with him, what happens after the surgery? He said, you see me, I’ll be your quarterback, I’ll be your Urologist, and help you through any issues, after the surgery, and beyond.

The truth is, in this disease, at least for the guys here, we are our own quarterback. There is not one doctor that oversees our PC treatment, maybe some of us talk to our PC , but they know less then many of us here.
So because of the lack of black and white for follow up treatment if needed, we are in charge.

That’s a good enough reason though, IMO, to keep the primary treating doc informed along the way. You never know when you may want to consult him/her

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I am not a doctor, just another guy without a prostate
Dx Age 64 Nov 2014, PSA 4.3
BX 3 of 12 cores positive original pathology G6
RALP with Dr Ash Tewari Jan 6, 2015
Post surgical pathology G7 (3+4), - ECE, - Margins, -LN, -SV (+ frozen section apex converted to negative)
PSA @ 6 weeks 2/15, .<02, remained <0.02 until January 2017, .02, repeat Feb 2017, still .02. May 2017-.033, August 2017- .033 November .046, March 2018 .060. June 2018 .068
Decipher test, low risk, .37 score
My story.... tinyurl.com/qgyu3xq

FWIW, the Uro who did my RP is a thousand miles from where I now live. I liked him and he treated me well. I wish he was still my doctor. I ended up with him when his partner retired, and he too would retire eventually anyway. So it was time to find a new Uro.

My current Uro is the one who did my AUS. I was not real happy with how that went. No, scratch that. I am very displeased with how that went. And now when I go to him with a problem he just brushes it aside. I get the feeling he prefers to work on patients who are sedated and doesn't know how to handle a conscious human being. He's a nice guy but I'm afraid not a very good doctor.

Time to move on and find another one, I suppose.

My RO who was right around the corner to our new home also retired this past year. No major impact there, though I will be stopping by his office today to ask about getting a copy of my mapping CT which might be useful as a baseline for comparison to last week's abdominal CT.