All I ever wanted was for you and your husband to have the discussion. What you decide is up to you - all I can do is provide some input for the discussion. The way you wrote that post, you made it sound like you were going around your specialist doctor's recommendation to hear the recommendation you wanted to hear. It wasn't at all clear that your husband had much input. It now seems that I was only reacting to the way you wrote it, not what actually transpired. I am glad to hear that I was wrong, and apologize for any confusion I may have caused about
I have to respond publicly because you posted this publicly, and you guys continue to kidnap this thread to talk about
"meta-posts' (posts about
the writing of the posts) which I detest. Because I am the single largest poster on this site after Purgatory, I may be a frequent subject of discussion for the moderators behind the scenes (which I don't usually know about
). Perhaps because of that, I do agree that I get "special treatment" from the moderators, but I don't think I get favored
treatment. Quite the opposite. I think I am singled out for extra scrutiny and censure, and have noticed that my threads get locked when others cast ad hominems at me
. (Hint to those who want to have my threads locked: say something nasty about me.)
Some of you are allergic to all conflict, even when it is civil. Well, there are many controversial topics. And controversy and conflict is how issues get aired and examined. Get used to it.
The idea for this thread came about
in an email with Pratoman. We were discussing his edits, and it occurred to me that there was a larger issue that was worth discussing. It has been discussed in my live PC support groups a number of times, and I thought it was worth discussing here too. It was not meant to get around any edits done by a moderator - in fact, I got pre-authorization from him to bring it up. He didn't object to Part II - that was the part he left in. Kathy Bates? Really?
It's becoming increasingly clear to me that Healingwell is not the right board for me, especially with the new heavy-handed moderator. I have been posting on healthunlocked.com "advanced prostate cancer" board. I reach a wider audience there, and the board moderator has been incredibly supportive. There are still conflicts and controversies (and sometimes angry responses, especially from those who advocate untested and possibly dangerous self-treatments), but there is no censorship (even politics and religion have come up without the world ending). I haven't decided yet.
Allen - not an MD
•PSA=7.3, prostate volume=55cc, 8/17 cores G6 5-35% involvement
•SBRT 9 yr onc. results
•SBRT 7 yr QOL results
•treated 10/2010 at age 57 at UCLA,PSA now: 0.1,no lasting urinary, rectal or sexual SEsmy PC blog