This forum saved me from having surgery - telling me to get a second opinion from Dr. Epstein.
The second opinion advice has pretty much become standard advice on this forum. And while sometimes I worry that we start parroting one another too much, clearly it can make a difference, as it did for you. I also remember a guy here from a few years ago that had a low volume G6 that we encouraged to: 1) get a second opinion and 2) consider AS. He did neither, had surgery and his post surgical pathology showed no cancer. That's obviously an extreme example and the guy had every right to take the actions he thought best for himself. But a second opinion sure would have been nice.
BTW, I had the opposite experience as you--I got an upgrade from Epstein...Michael, I also heard about
the person whose post pathology was negative. I understand that pathologists don't examine the entire prostate so I wonder if there was a tumor that they could have missed.
I believe that about
30% of men who have prostatectomies get upgraded and a much smaller percentage (10%??) get downgraded. I also understand that about
25% of prostatectomies require additional treatment - SRT/HT. Those are scary numbers.
PSA - May 2014 - 2.1, Oct. 2015 - 3.4, April 2016 - 4.0, Oct. 2016 - 2.5, April 2017 - 2.9, Oct. 2017 - 3.4, May 2018 - 3.5
Age 68 - Active Surveillance
Prostate: 54 grams
TRUS Biopsies: May 27, 2016 & July 29, 2016
May 27, 2016: Gleason 7 (3+4) in 1 core, less than 5%, Dr. Epstein review - inconclusive, MSK review - Gleason 6.
July 29, 2016: Gleason 6 in 1 core, less than 5%, 3 Path. Agree.