Thanks for doing this Jim. Since I haven’t been posting as much lately, I might as well kick off part 5.
Well, by tomorrow at about
8AM, I’ll have completed 2 of my 8 weeks of scheduled SRT. It’s a grind, and a marathon, as I’ve been warned. Waking up at 4:15 every morning and leaving for the hospital between 5:30 and 6AM, then going straight to work 4 of the 5 days (another hour in the car) is getting old real fast. I’m wiped out at the end of the day. Can’t wait to see how I’m feeling after 6 weeks of this lol.
I’m having a hard time with the drinking. MSKCC wants us there an hour before our appointment. When we arrive we sit and they tell us when to start drinking (usually about
45 minutes) at that point we are told to empty the bladder, then drink 1 1/2 cups of water. Some days it works fine. But some days, I just don’t feel like my bladder is full, so I drink another half cup 15 minutes before my time. Then there is a delay and I am bursting, like ready to explode. Nurse told me to just drink the 1 1/2 cups and not worry about
how I feel, I don’t have to have a full bladder, it’s more important to be consistent. Any other guys being told this?
What I don’t get is, they do CT Scan once a week. The other days they don’t see the bladder. So what if I’m too full? Or not full enough? They wouldn’t know it. This makes me nervous.
Up until today, I had no hint of side effects. But today I went to the crapper 5 times. First two were normal. Last three were diarrhea. It seems a little early for this, I thought if I experienced urinary or bowel SE’s, it would be the last few weeks. So I’m hoping it’s coincidence and just a bad day, something I ate. But we’ll see.
Otherwise all is going smoothly. Firmagon SE’s aside from a reaction at the injection site, are just hot flushes followed by sweats, but short, and very light. And erections are harder to come by and even harder to keep. I am going full bore all day, at work, and at physical therapy, which I’m doing twice a week for my knee. Unfortunately the knee thing is keeping me from moving/walking as much as I’d like to.no problem with energy, despite sleeping 4 hours a night. Of course I collapse when I get home. No other issues.
MSKCC is a mill, as in a factory. It’s a bit of a cold feeling (which I’m sure is not the case at the smaller suburban
locations). It’s a much different experience walking into that place as a patient, vs as a family member or visitor, which I’ve done many times. But the people are amazing. From the receptionists, to the technicians, to the nurses, they are all warm, friendly, professional and competent. This makes it a little easier.
it for week two.
I am not a doctor, just another guy without a prostate
Dx Age 64 Nov 2014, PSA 4.3
BX 3 of 12 cores positive original pathology G6
RALP with Dr Ash Tewari Jan 6, 2015
Post surgical pathology G7 (3+4), - ECE, - Margins, -LN, -SV (+ frozen section apex converted to negative)
PSA @ 6 weeks 2/15, .<02, remained <0.02 until January 2017, .02, repeat Feb 2017, still .02. May 2017-.033, August 2017- .033 November .046, March 2018 .060. June 2018 .068, July 2018 - .082, August 2018, .078, August 2018 - .08
Decipher test, low risk, .37 score
My story.... tinyurl.com/qgyu3xq
My PSA History - /drive.google.com/file/d/1ltbG8x-iyH3k9pEltudhXt9u1krRwJSH/view?usp=sharing