Noggin - Sorry you have to join the AUS club. I hope it works out well for you. It looks like it's been nearly two years since your RT so I think you hit the nail on the head... if it isn't healed by now it likely won't be anytime soon.
No doubt you had an aggressive tumor at the base of your prostate, as indicated by your B-neck involvement. Unfortunately that also put you in the "false negative biopsy" club too. My current Uro tells me that it is nearly impossible to find such tumors on a standard biopsy. Rotten luck for us both. Hopefully you won't be joining the depression club too.
I've established an AUS support group on FB, but so far the membership is still just one. New members get the privilege of learning my real last name. BTW very few acquaintances know my real
first name. ;)
I had hoped FB might be a platform to share all the research I had done before my implant procedure, and maybe learn of a few other guys' experiences. The low turnout is probably indicative of the fact that most guys are pleased with their device and their implant procedure. It's not easy to get men to come out of the woodwork. Most of the closed groups to which I belong are 90% women, and I may eventually drop out.
Good luck with the implant... it is indeed a life changer.
2014-15: PSA's 9,12,20,25, Neg DRE's, false neg TRUS biopsy
6/16: MRI Fusion biopsy, 6+ Rt Base, 2x40%+2x100% G8(4+4)
8/16: DaVinci RP, 3 foci EPE, PNI, 11 LN-, 53g 25%, BL SVI, pT3b
1/17: 18 months Lupron, PSA's ~.03
5/17: AMS800 implant, revised 6/17
8/17: 39 tx RapidArc IMRT (70 Gy)
4/18 Dx Radiation Colitis
8/18 Dx mesenteric mass, surgery Mon Oct 29
1/18, 4/18, 7/18: PSA's 0.0, T=9
Post Edited (RobLee) : 10/27/2018 7:18:14 AM (GMT-6)