Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies & Asthma Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Fatigue Crohn's Disease Cystic Fibrosis Depression Diabetes Epilepsy
Fibromyalgia General Chronic Illness GERD & Acid Reflux Headaches & Migraines Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Parkinson's Disease Prostate Cancer

Chronic Illness Blog »
All Health Conditions »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

All Support Forums »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Health Conditions
    • Chronic Illness Blog
    • Allergies & Asthma
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Fatigue
    • Crohn's Disease
    • Cystic Fibrosis
    • Depression
    • Diabetes
    • Epilepsy
    • Fibromyalgia
    • General Chronic Illness
    • GERD & Acid Reflux
    • Headaches & Migraines
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Parkinson's Disease
    • Prostate Cancer
  • Support Forums
    • All Support Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
  • Connect With Us
    • Facebook
    • Twitter
    • Pinterest
    • LinkedIn
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

1 year post SBRT bad news results!!

Chronic Illness Forums
>
Prostate Cancer
>
1 year post SBRT bad news results!!  
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
Sr Sailor
Veteran Member
Joined : Sep 2015
Posts : 573
Posted 12/19/2018 3:20 PM (GMT -7)
Yes; that's a nice 'seasonal' present.
Do you feel any different (T=292) compared to (roughly) two months ago (T= 572)?
DOB 1940
Dec 2012: GP felt a nodule and hardened prostate; confirmed by urologist
PSA: 11.9 ng/ml
Biopsy (3/1/2013): Several Gleason 4+5 loci (prostate=45 ml)
Stage: T2c
Transferred to RO
Casodex 1 month; then Lupron 5/13 through 12/14 (18 months total)
Jul-Sep 2013: SBRT (CyberKnife; 3 x 6.5 Gy) followed by IMRT (25 x 1.8 Gy)
Lowest PSA thereafter: 0.1 (3/20/15)
Latest (09/18) PSA = 1.4 ng/ml
profile picture
Frostypro
Regular Member
Joined : Jun 2017
Posts : 64
Posted 12/19/2018 4:29 PM (GMT -7)
Honestly no. I dont feel any real difference. I ran a fitness test today and virtually all scores remain the same as they were in October. In fairness, I was just getting over a two month long battle with c-diff when my T was that high. But still, no differnce in my general laziness ability.
05/2017 PSA 5.1 Biopsy 4of12 (3+4) Decipher .27
09/2017 SBRT at age 40 (Dr King UCLA)
12/2017 3mo PSA 2.5 T 245
03/2018 6mo PSA 1.6 T 288
06/2018 9mo PSA 2.8. T 330
10/2018 1 yr PSA 3.4 T 572
12/2018 14mo PSA 0.9 T 292
profile picture
Fauntleroy
Regular Member
Joined : Dec 2012
Posts : 427
Posted 12/19/2018 4:42 PM (GMT -7)
It's been said that the up and down bounces before dropping lower, result in a better long term outlook for a cure, compared to mine, which has been undetectable since the end of treatment. Never had a bounce
So if that's true you have something extra to be thankful for
profile picture
Paxton
Veteran Member
Joined : Aug 2016
Posts : 1226
Posted 12/19/2018 6:14 PM (GMT -7)
GO FROSTY! ! !

And, I'd second the advice that if Dr. King isn't concerned, neither are you.

Great news. It should help brighten up your holidays, no?
Age 68 at Dx
PSA history: 2000-2012 0.9-1.2; 06/2012 started T replacement
2013-2015 3.0-3.3 (new normal); 11/2015 4.6; 05/2016 5.7
Biopsy: 12-core biopsy 07/2016; 3 cores G3+3, 5% or less; 1 core 3+4, 15%; 1 core HGPIN; 2% of gland involved. Summary G3+4.
CyberKnife SBRT with Dr. Hirsch; start 11/15/16, finish 11/23
profile picture
Paxton
Veteran Member
Joined : Aug 2016
Posts : 1226
Posted 12/19/2018 6:24 PM (GMT -7)
GO FROSTY ! ! !

Bet that brightens up your holidays!
Age 68 at Dx
PSA history: 2000-2012 0.9-1.2; 06/2012 started T replacement
2013-2015 3.0-3.3 (new normal); 11/2015 4.6; 05/2016 5.7
Biopsy: 12-core biopsy 07/2016; 3 cores G3+3, 5% or less; 1 core 3+4, 15%; 1 core HGPIN; 2% of gland involved. Summary G3+4.
CyberKnife SBRT with Dr. Hirsch; start 11/15/16, finish 11/23
profile picture
three 5's and a jack
Veteran Member
Joined : Jul 2017
Posts : 651
Posted 12/19/2018 6:48 PM (GMT -7)
Frosty: Excellent Excellent Excellent. A very good lesson on the bouncy ride some get out of RT.
May you continue to be well.

Roger
69yo at DX
PSA Pre TX 6.47 to 5.56
DX 8/11/17 5/16 cores positive all on left
L mid/base 4/6 4+3=7 25% of core
L apex 1/2 3+4=7 30% of core
SBRT Dec 2017 3625 cGY 5 fractions Swedish Seattle Dr. Robert Meier
Post TX Lab#1 3mon 2.03 6mon 2.20 9mon 1.03
Lab#2 3mon 1.82 6mon 1.30 9mon 1.00
profile picture
BillyBob@388
Veteran Member
Joined : Mar 2014
Posts : 3538
Posted 12/19/2018 7:37 PM (GMT -7)

Frostypro said...
UPDATE: I just got my 14 month PSA results. I just couldn't wait for the 15th month because I was sweating so hard over the rather large bounce (+1.8) I had. I swear this doom and gloom anxiety will kill me long before PCa can. Anyway I'm back to trending in the right direction now with 0.9 being my latest result. I'm left to assume my big bounce was due to the c-diff infection and/or that unexplained spike in Testosterone. Or maybe something else with my own journey. Either way I'm extremely pleased right now and feel I can breath easy for at least a little while. Thank you guys for your support.

*notes to self: Say my prayers... and trust Dr. King. If he isn't worried, I shouldn't be worried.

.9? Well if that ain't some fantastic holiday news! Makes it seem like indeed all the many variables we discussed played a part. Glad to hear it!
PSA 10.9 ~112013
Bx on 112013 at age ~65yrs, with 5 of 12 pos, G9(5+4), T2B.
RALP with lymph nodes at Vanderbilt 021914. (nodes clear, SV+, G9 down graded to 4+5, 1 focal margin )
only rare pad use after 1 year
PSA <.01 on 6/14 and all until 9/15 = .01, still .01 9/16, .02 on 3/17,6/17,10/17, .06 1/18, .06 4/18, <.05 7/18, .06 10/1
profile picture
Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 6642
Posted 12/19/2018 7:58 PM (GMT -7)
Great news, glad you are back on track Frosty.
I am not a doctor, just another guy without a prostate
Dx Age 64 Nov 2014, PSA 4.3
BX 3 of 12 cores positive original pathology G6
RALP with Dr Ash Tewari Jan 6, 2015
Post surgical pathology G7 (3+4), - ECE, - Margins, -LN, -SV (+ frozen section apex converted to negative)
PSA @ 6 weeks 2/15, .<02, remained <0.02 until January 2017, .02, repeat Feb 2017, still .02. May 2017-.033, August 2017- .033 November .046, March 2018 .060. June 2018 .068, July 2018 - .082, August 2018, .078, August 2018 - .08
Decipher test, low risk, .37 score
My story.... tinyurl.com/qgyu3xq
My PSA History - /drive.google.com/file/d/1ltbG8x-iyH3k9pEltudhXt9u1krRwJSH/view?usp=sharing
✚ New Topic ✚ Reply
12

Forum Information

Currently it is Thursday, February 21, 2019 5:15 AM (GMT -7)
There are a total of 3,042,529 posts in 332,463 threads.
View Active Topics

Who's Online

This forum has 163284 registered members. Please welcome our newest member, HarryWilson.
144 Guest(s), 5 Registered Member(s) are currently online.  Details
trailguy, Bullekideambule, Lynnwood, Jerry_Delaware, halbert




HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
FacebookFacebook TwitterTwitter PinterestPinterest LinkedInLinkedIn
© 1997-2019 HealingWell.com LLC All Rights Reserved.