GFB, really sorry to hear this, it’s just a classic example of how perverse this disease can be, how frustrating and how the stated % chance of this or that means almost nothing when it comes to the individual.
Definitely consult with an MO. But I’d just mention, that my understand9ng is the Dr Aherling, at UC Irvine, will do removal of lymph nodes. I was told this third hand, so maybe not, but if it’s a road you are interested in pursuing, it might be worth a call. Speak to a top MO first though.
I am not a doctor, just another guy without a prostate
Dx Age 64 Nov 2014, PSA 4.3
BX 3 of 12 cores positive original pathology G6
RALP with Dr Ash Tewari Jan 6, 2015
Post surgical pathology G7 (3+4), - ECE, - Margins, -LN, -SV (+ frozen section apex converted to negative)
PSA @ 6 weeks 2/15, .<02, remained <0.02 until January 2017, .02, repeat Feb 2017, still .02. May 2017-.033, August 2017- .033 November .046, March 2018 .060. June 2018 .068, July 2018 - .082, August 2018, .078, August 2018 - .08
Decipher test, low risk, .37 score
My story.... tinyurl.com/qgyu3xq
My PSA History - /drive.google.com/file/d/1ltbG8x-iyH3k9pEltudhXt9u1krRwJSH/view?usp=sharing