Sorry you're struggling so, but as others have said it probably doesn't matter a lot, though you do at least want to kick off the hormone therapy. That's going to be the foundation of just about
anything else you do.
Welcome to our forum too, and the G9/10 Crew. I'll add you to the roster on our thread that's meant for those of us facing this diagnosis. It's organized by Gleason score, then by diagnosis date. There are links to the guys first posts too, so you can look up some of their threads and see how they handled their situation. Here's the link:The Gleason 9 (and 10) Crew - Welcome and how ya doin'? (Part 3, continued thread)
Communication and scheduling seems to vary greatly by institution. All of my diagnosis and primary therapy was done at Vanderbilt, in Nashville, TN. They were prompt, thorough, and fast. From my first biopsy appointment it took all of 2 weeks to run through every test and start hormone therapy. Biopsy, results, MRI, results, T99 bone scan, results, uro onc consult, RO consult, even MO consult (for good measure), everything in two weeks. I didn't bug anyone there about
any of it. They followed up with me, and I got used to it. It did always take a couple of days for follow up PSA results, which was a little frustrating.
Now I'm at Univ of Michigan. They're good, but their communication is far less effective. It's gotten much better in the last year, though. Still, I have a standing order for PSA test every 3 months. So when I get it done, I notify the office and ask them to call me with the results (it only takes a couple of hours). I've taken to chiding them a little bit, just expressing that I am understandably a little anxious for the result and would appreciate not having to call them back to follow up on the request. In the last year or two they've become pretty good about
Unfortunately, our medical system does kind of need to be pushed by the customer. There's really no one on the institution's side that's looking out for you.
55@Dx on 4/16/13. PSA 5.2, G9(5+4), PNI+, cT3a by MRI.
IGRT - 44 sessions (79.2 Gy, 50.4 Gy pelvic)
ADT2 - Lupron+Casodex (5/13-3/16)
8/13-5/16 <0.1 (ADT2)
5/16-3/17 recovering from ADT2
3/17-7/18 ~ 0.6 - 0.8 (no TX)
10/18 = 1.0My Story
Post Edited (Redwing57) : 10/30/2018 8:50:44 AM (GMT-6)