Posted 12/8/2018 2:47 AM (GMT -7)
Firstly Welcome Mumbo,
I'm not a regular poster at HW anymore, as it is now nearly 10 (yes TEN) years since I was diagnosed and RALPed in Amsterdam. (I'm a Brit that lives in the Netherlands). But the fact that I'm nearly 10 yeras on is kind of why I'm replying to you, as while all our stories are a bit different it might help to hear from someone that is a long way down the journey.
Things will get better, eg I got to a point very quickly where I was not incontinent and had no ED, but yes they can also get worse, as I also found my PSA going up so I needed SRT, and that then made the incontience return a little and resulted in a bit of ED. But I have had an undetectable PSA for so long that the Uro and RT docs said they no longer needed to see me. (I just get a PSA test done once a year via my GP). Sure life's not perfect, but to be honest when was life ever perfect!
In passing, for anyone else experiencing your back ache after RALP tell your docs and get some meds. I was told that there was no need to be in any pain at any time, and assorted pain meds were made available for me to take home in case they were needed (along with additional meds to take with them to protect my stomach from the pain meds). Also it can help to try to get rid of the CO2 by massaging your chest regularly as soon asyou can after surgery, or get someone to do it. I could hear the bubbles of gas moving about! I was able to walk up three flights of stairs to my flat the day after surgery (there was no elevator in my block!).
So I hope you have a really good journey!
All the Best