So what do you think of websites such as this one, that provide reviews written by patients describing their experiences, good or bad, with all sorts of medications?https://www.askapatient.com/
Sort of a "rate-a-drug" website.
"This is the best med I've ever taken! It cured my problem in no time!" Or "Terrible side effects! Don't even go near the bottle!"
Sort of akin to the doctor-rating sites, I suppose, where patients (or former patients) write up reviews of physicians, maybe assigning a certain number of stars to the doc, based on their experiences.
Personally, I'm more comfortable with the doctor-rating sites, but even there one should read with caution what other people are saying. Maybe I would look for a pattern in the reviews, not relying on any single one.
But with medication reviews, I just have a greater suspicion. I guess because med reactions can vary so much between individuals, and one person's experience may be entirely irrelevant to another's.
At least with doctors, if a patient, or especially a number of patients, insist that Doctor A has a terrible bedside manner, then maybe that's somewhat believable.
A couple of other things. The first is that I searched the above website looking for some sort of disclaimer, something to the effect of "... the opinions expressed on this site are those of the posters, and do not reflect medical advice ... (etc.)" Didn't find it. I found that a little surprising.
The other was that when I came up with a quick list in my mind of PCa meds that I could think of offhand (my list was Zytiga, Lupron, Xtandi, Provenge and Casodex) to search on this site, I found reviews for Lupron and Casodex, but not for the others. That probably doesn't mean anything. Or maybe it's just that those of us taking such meds have more important things to do than writing reviews of them for a website.
Anyway, would you be willing to put any faith in med-reviewing websites such as the above? Or would you want to submit a testimonial, good or bad, to one of them about
a med that you have taken ?
Chronic prostatitis (age 60 on)
BPH w/ urinary obstruction, 6/2011
Ongoing high PSA, 7/2011-12/2011
Biopsy, 12/2011: positive 3/12 (90%, 70%, 5%)
Gleason 6(3+3), T1c
No mets, PCa likely still organ contained
IMRT w/ HT (Lupron), 4/2012-6/2012
PSAs (since post-IMRT): 0.1 or lower