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Looks like PC will soon take my friend

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Looks like PC will soon take my friend  
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BillyBob@388
Veteran Member
Joined : Mar 2014
Posts : 3536
Posted 12/20/2018 12:25 PM (GMT -7)
I visited a friend in the hospital a week or 2 back. This man is a member of the Sunday school class I have taught for years, the oldest group of men in the church. Many WW2 vets- 20-25+ years older than me(85-95 yrs old) with fascinating and historical stories to tell. For example, one guy was the platoon commander of the group the Russians first came into contact with in Germany in spring of 1945, a historical meeting. His little platoon took untold thousands of surrenders from heavily armed German soldiers who were anxious to surrender to the Americans rather than the Russians just across the river. Another worked on Tinian Island loading up the Enola Gay with the first atomic bomb on 6 Aug 45, and then again on 9 Aug 45. But I have had to watch as this greatest generation just gets smaller and smaller every year. My class is down from way over 10 some years ago to just 3 or 4 regulars. And none of them are looking any too spry. But just 3 or so years ago, we were all still meeting once a month for a Thursday night supper, in town or sometimes a group of 10-15 driving all over north MS in 3 different cars/trucks to go to some highly recommended restaurant.

So my friend was in the hospital, and I wasn't really sure what for other than some problem with his lungs, which was keeping him from getting the rehab he needed for his knees so he could get back to serving in church. On my visit I was told that the problem he had with his lungs was the tumors from his PC were all around his lungs. And they were trying to get his breathing in better shape so he could go on to his rehab as well as some sort of further treatment for his PC. That was their story, mostly from his wife, naturally many details about the PC were missing. All they knew was: it was PC.

But Henry did remind me that he had surgery for PC just a few months after I did, almost 5 years ago now. I had forgotten that as he has dealt with so many other health problems since then, and I have heard no more about his PC. And as so many of our other friends had died of many other things, some suddenly, at least one in his sleep. Another had started treatment for failed RT, with a BCR 6 years later. Immediately after starting the new(drug) treatment, he had various problems including a fall, ended up in the hospital for that. A few weeks later, back home, he got up one morning (to get ready for work at 90+ years old, could not stand retirement! ) and fell dead.

Just a week or back Henry actually did get out of the hospital and into a rehab facility, but that didn't last long. Today I got word he was back in ICU, but the plan was to get him into hospice. So, no good news there. And if this doesn't miraculously turn around, it appears he will be one of the group who dies of, rather than with, PC. But either way he has had a good life and done much good for others. I still hate to see another one go.
PSA 10.9 ~112013
Bx on 112013 at age ~65yrs, with 5 of 12 pos, G9(5+4), T2B.
RALP with lymph nodes at Vanderbilt 021914. (nodes clear, SV+, G9 down graded to 4+5, 1 focal margin )
only rare pad use after 1 year
PSA <.01 on 6/14 and all until 9/15 = .01, still .01 9/16, .02 on 3/17,6/17,10/17, .06 1/18, .06 4/18, <.05 7/18, .06 10/1

Post Edited (BillyBob@388) : 12/20/2018 12:31:30 PM (GMT-7)

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Sr Sailor
Veteran Member
Joined : Sep 2015
Posts : 569
Posted 12/20/2018 12:29 PM (GMT -7)
Thanks for the write up. May your friend rest in peace once he passes on.
DOB 1940
Dec 2012: GP felt a nodule and hardened prostate; confirmed by urologist
PSA: 11.9 ng/ml
Biopsy (3/1/2013): Several Gleason 4+5 loci (prostate=45 ml)
Stage: T2c
Transferred to RO
Casodex 1 month; then Lupron 5/13 through 12/14 (18 months total)
Jul-Sep 2013: SBRT (CyberKnife; 3 x 6.5 Gy) followed by IMRT (25 x 1.8 Gy)
Lowest PSA thereafter: 0.1 (3/20/15)
Latest (09/18) PSA = 1.4 ng/ml
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Saipan Paradise
Veteran Member
Joined : Sep 2017
Posts : 986
Posted 12/20/2018 1:12 PM (GMT -7)
Thanks for those reflections, BillyBob. I hope the end of the journey is peaceful for your friend.
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Michael_T
Veteran Member
Joined : Sep 2012
Posts : 3197
Posted 12/20/2018 1:32 PM (GMT -7)
Thanks for sharing that. Wishing peace to your friend.
Age 58, Diagnosed at 51
PSA 9.6, Gleason: 9 (5+4), three 7s (3+4)
Chose triple play of HDR brachy, IMRT and HT (Casodex, Lupron and Zytiga)
Completed HT (18 months) in April 2014
9/18: PSA = 0.06
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Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 6638
Posted 12/20/2018 3:27 PM (GMT -7)
Sorry to hear about your friend, Billy, I hope the rest of his journey is as comfortable as possible, and that he and his family find peace when it ends.
I am not a doctor, just another guy without a prostate
Dx Age 64 Nov 2014, PSA 4.3
BX 3 of 12 cores positive original pathology G6
RALP with Dr Ash Tewari Jan 6, 2015
Post surgical pathology G7 (3+4), - ECE, - Margins, -LN, -SV (+ frozen section apex converted to negative)
PSA @ 6 weeks 2/15, .<02, remained <0.02 until January 2017, .02, repeat Feb 2017, still .02. May 2017-.033, August 2017- .033 November .046, March 2018 .060. June 2018 .068, July 2018 - .082, August 2018, .078, August 2018 - .08
Decipher test, low risk, .37 score
My story.... tinyurl.com/qgyu3xq
My PSA History - /drive.google.com/file/d/1ltbG8x-iyH3k9pEltudhXt9u1krRwJSH/view?usp=sharing
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InTheShop
Elite Member
Joined : Jan 2012
Posts : 10369
Posted 12/20/2018 5:19 PM (GMT -7)
sad news about your friend.

It's never easy to lose someone like this.
I'll be in the shop.
Age 58, 52 at DX
PSA:
4.2 10/11, 1.9 6/12, 1.2 12/12, 1.0 5/13, .6 11/13,
.7 5/14, .5 10/14, .5 4/15, .3 10/15, .3 4/16, .4 10/16, .4 5/17, .3 10/17 .3 4/18, .4 11/18
G 3+4
Stage T1C
2 out of 14 cores positive
Treatment IGRT - 2/2012
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JNF
Veteran Member
Joined : Dec 2010
Posts : 4101
Posted 12/20/2018 7:23 PM (GMT -7)
Bless him and you. What a great friend to have and a reminder of what an insidious disease we have. I hope he finds peace on earth and in his ever lasting life.
PSA 59 on 8-26-2010 age 60. Biopsy 9-8-2010 12/12 positive, 20-80% involved, PNI in 3 cores, G 3+3,3+4,and 4+3=G7, T2b.
Eligard and Jalyn started on 10-7-2010. IMRT to prostate and lymph nodes started on 11-8-2010, HDR Brachytherapy December 6 and 13, 2010.
PSA < .1 since February 2011. Located in Cumming Georgia north of Atlanta
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Almost a 10
Veteran Member
Joined : Mar 2014
Posts : 978
Posted 12/21/2018 4:53 PM (GMT -7)
I am very sorry to hear about your friend. It sounds like he has led a long and productive life and has been active throughout, and while this disease is horrible, we will all succumb to something, but our memory will live on in the deeds done during our life. Wishing your friend peace and joy as he transitions from this life.
11/13 psa 240
DX 10/2013 PSA 187.5
PSA HIST 07/11,3.31;3/10,1.87,3/06,.87
Biopsy 10/28/13; 11/12 cores positive gs 9 (4+5)
BNSCN 12/09/2013 2 hot spots in spine
ADT 12/17/2013 22mg lupr, 50 mg Cas
RALP 2/19/14 NN,LVI,Path T3BNX,MX,
PSA 3/14 .6, 6/14<.1;9/14,;.6;12/14, 1.2;3/9/15 3.9;6/2/15 23
7/15 begin chemo
11/15 chemo fails begin Zytiga, with Zometa
01/16 psa <.1
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ddyss
Regular Member
Joined : Apr 2017
Posts : 419
Posted 12/22/2018 5:05 AM (GMT -7)
Sorry to hear about the state of your friend. Hope his last days are peaceful, painfeee and is surrounded with lots of love.
49 DX@48 PSA 03/17 4.45 DRE: Firm Right Base, 3 wk cypro, PSA 04/17: 3.2
04/18 Biopsy Right: Base 4+3, Middle 3+4, Apex: HPIN
Left 6 cores : -ve
5/20 MRI: Pirads 5, ECE:+ve
RALP 05/26 - Dr. Bhandari
Path: downgraded to 3+4 Stage T2C
Prostrate: 49g Tumor:20%
LN/SV/ECE: -ve PNI: +ve
Cath Removed : 6/1
Full continence: 7/4
PSA:
7/17,10/17, 1/18, 05/26, 8/26<0.006
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BillyBob@388
Veteran Member
Joined : Mar 2014
Posts : 3536
Posted 12/22/2018 7:16 AM (GMT -7)
Thanks for the comments, everyone! I wish folks in general knew more about their disease, though maybe it doesn't matter. In general, members of this forum are an educated bunch when it comes to PC. In general, the opposite is true for the general public. I guess that is natural.

All Henry or his wife know about his PC is that he had surgery shortly after I did- almost 5 years ago- , that itwas indeed PC, and that it is back and spread to his lungs.

My 80+ year old neighbor knows he has PC, and that he has an ever rising PSA, 20 something last time I asked him. No treatment, as far as I have been able to find out from him- must be at least 5 years now, maybe more. And apparently no symptoms yet, just keeps going about his business walking the neighborhood and working in his yard and in his shop. His wife died of Alzheimer's on New Years Day some years ago. Though I think he has a few lady friends from church, he ( and his Docs ) appear to think his PC is a battle not worth fighting in his case.

My other neighbor is closer to my age(69.9), maybe a bit younger, not sure. He went off to MD Anderson in TX for RP. He knew absolutely no details about his case. Finally, a year or two after his surgery, he got his path report and we went over it. I've forgotten some of the details now, I'm thinking a G7, but maybe he had 1 node? Everything looked pretty good except for that 1 node, and PSAs since RP have been low, but darn it I can't recall the details(that has been a few months). I was surprised that they did not already have him in for some more treatment though, due to that node. But he had no clue what any of it meant.

But I think that is the usual approach: just keep it simple, and leave it to the doctors.
PSA 10.9 ~112013
Bx on 112013 at age ~65yrs, with 5 of 12 pos, G9(5+4), T2B.
RALP with lymph nodes at Vanderbilt 021914. (nodes clear, SV+, G9 down graded to 4+5, 1 focal margin )
only rare pad use after 1 year
PSA <.01 on 6/14 and all until 9/15 = .01, still .01 9/16, .02 on 3/17,6/17,10/17, .06 1/18, .06 4/18, <.05 7/18, .06 10/1

Post Edited (BillyBob@388) : 12/22/2018 7:19:06 AM (GMT-7)

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BillyBob@388
Veteran Member
Joined : Mar 2014
Posts : 3536
Posted 12/23/2018 8:13 PM (GMT -7)
Well, I was notified yesterday (Sat afternoon) that Henry passed at 0330 Saturday morning. Boy, that was fast, he was only a day or two in hospice, had been sent from the hospital to rehab just a day or 2 before that. I feel bad for the man who called me to tell me. He and Henry go so back, way, way back. And that man has "beat" so many different cancers and heart conditions that I have absolutely lost count. But ironically, I don't think PC was one of them!

To repeat, Henry had PC surgery shortly after I did. ( or at least I think it was RP, considering his age and health I'm surprised it wasn't RT) But I know nothing of the details, like gleason or stage. And neither did he.

Had another man in Sunday School large group(also older than me by quite a few years) stand up and give praise regarding his miracle, he went in to the hospital with cancer in November and a few days later came out without cancer. He didn't say what kind, but I recognized the docs name as a local uro, and he said there is now no sign of the cancer, so he is cured. Therefore I highly suspect he is talking about RP. Maybe he is G6 and is almost guaranteed cured, indeed. Or maybe he is G7 who was truly contained. Or maybe he is an even higher risk, but they really did catch it early enough and managed to remove it all. I hope so. But we all know that unless he is truly low risk, it is going to take a lot of future testing to make sure he is truly out of the woods. Of course, he may well be low risk, I hope so.

I'd like to know what they told Henry after his RP. Or what his stats were. But I probably never will. I really feel that the vast majority of PC patients remain in the dark about most details of this disease. And maybe they are just as well off? Ignorance is bliss? But I don't really believe that.
PSA 10.9 ~112013
Bx on 112013 at age ~65yrs, with 5 of 12 pos, G9(5+4), T2B.
RALP with lymph nodes at Vanderbilt 021914. (nodes clear, SV+, G9 down graded to 4+5, 1 focal margin )
only rare pad use after 1 year
PSA <.01 on 6/14 and all until 9/15 = .01, still .01 9/16, .02 on 3/17,6/17,10/17, .06 1/18, .06 4/18, <.05 7/18, .06 10/1
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Saipan Paradise
Veteran Member
Joined : Sep 2017
Posts : 986
Posted 12/23/2018 8:46 PM (GMT -7)
Sorry for your loss, BillyBob. Maybe it was a good thing he went fast.
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InTheShop
Elite Member
Joined : Jan 2012
Posts : 10369
Posted 12/23/2018 8:47 PM (GMT -7)
sad news. condolences on your loss.

Andrew
I'll be in the shop.
Age 58, 52 at DX
PSA:
4.2 10/11, 1.9 6/12, 1.2 12/12, 1.0 5/13, .6 11/13,
.7 5/14, .5 10/14, .5 4/15, .3 10/15, .3 4/16, .4 10/16, .4 5/17, .3 10/17 .3 4/18, .4 11/18
G 3+4
Stage T1C
2 out of 14 cores positive
Treatment IGRT - 2/2012
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ddyss
Regular Member
Joined : Apr 2017
Posts : 419
Posted 12/23/2018 9:11 PM (GMT -7)
Sorry about your friend billy bob , looks like he didn’t suffer too much and he made sure everyone was prepared for this eventuality. May he Rest In Peace.
49 DX@48 PSA 03/17 4.45 DRE: Firm Right Base, 3 wk cypro, PSA 04/17: 3.2
04/18 Biopsy Right: Base 4+3, Middle 3+4, Apex: HPIN
Left 6 cores : -ve
5/20 MRI: Pirads 5, ECE:+ve
RALP 05/26 - Dr. Bhandari
Path: downgraded to 3+4 Stage T2C
Prostrate: 49g Tumor:20%
LN/SV/ECE: -ve PNI: +ve
Cath Removed : 6/1
Full continence: 7/4
PSA:
7/17,10/17, 1/18, 05/26, 8/26<0.006
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island time
Veteran Member
Joined : Dec 2014
Posts : 1741
Posted 12/23/2018 10:24 PM (GMT -7)
Sorry to hear about your friend BillyBob. It’s tough losing a friend.

And I know the feeling of “wishing to know more”. At one of my rentals, a retaining wall fell. The gentleman that’s fixing it, I’ve been told, was told he “had about a year” to live because of PCa. I dropped by to see him but, he wasn’t on the job site that day. I’m wondering how they came to the “about a year to live” prognosis? Sounds strange and I wanted to hear his story.

Anyway, again, I’m sorry about your friend BillyBob.
PSA 2010 thru 2014...4.0 +/- .7
Dx 12/14 @ 56 yo...2 cores G6 <5%, 1 core G6 20%, 1 core HGPIN.
RALP 11/25/15...3+4. 3 to 5 mm surgical margin 15% involvement pT2+
G6 at margin. 5% grade 4 cells. PSA's....2/16-.01...4/16-.00...7/16-.00...10/16-.01...1/17-.01...4/17-.02...7/17-.02
10/17-.02...01/18-.05...03/18-.014...04/18-.02...07/18-.047...10/18-.028
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Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 6638
Posted 12/24/2018 9:29 AM (GMT -7)
So sorry Billybob. I know it hits close to home
I am not a doctor, just another guy without a prostate
Dx Age 64 Nov 2014, PSA 4.3
BX 3 of 12 cores positive original pathology G6
RALP with Dr Ash Tewari Jan 6, 2015
Post surgical pathology G7 (3+4), - ECE, - Margins, -LN, -SV (+ frozen section apex converted to negative)
PSA @ 6 weeks 2/15, .<02, remained <0.02 until January 2017, .02, repeat Feb 2017, still .02. May 2017-.033, August 2017- .033 November .046, March 2018 .060. June 2018 .068, July 2018 - .082, August 2018, .078, August 2018 - .08
Decipher test, low risk, .37 score
My story.... tinyurl.com/qgyu3xq
My PSA History - /drive.google.com/file/d/1ltbG8x-iyH3k9pEltudhXt9u1krRwJSH/view?usp=sharing
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logoslidat
Veteran Member
Joined : Sep 2009
Posts : 6412
Posted 12/24/2018 10:29 AM (GMT -7)
memories are...in...fact...truth and myth...closer to the real...than all our dreams schemes and flying machines...may WE rest in that peace...think of loved ones...past present and future...never cease...never cease...no decease or lease...on this way...we are bought together...

Forgive double negatives...they are self forgiving...irregardless...tee hee
gleason 9 contained stopped psa testing jan 2015 with two consecutive psa's a year apart at 0.15
surgery 10/09 only treatment...eyes wide open...no sand...gonna live til I die...not the reverse forgive my virtues as well as my sins...

Post Edited (logoslidat) : 12/24/2018 3:15:43 PM (GMT-7)

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BillyBob@388
Veteran Member
Joined : Mar 2014
Posts : 3536
Posted 12/24/2018 11:02 AM (GMT -7)
Thanks, every one, for the kind words! If I have to go from PC or anything really, and if offered a choice ( ;) ), going fast like Henry did would be my choice.
PSA 10.9 ~112013
Bx on 112013 at age ~65yrs, with 5 of 12 pos, G9(5+4), T2B.
RALP with lymph nodes at Vanderbilt 021914. (nodes clear, SV+, G9 down graded to 4+5, 1 focal margin )
only rare pad use after 1 year
PSA <.01 on 6/14 and all until 9/15 = .01, still .01 9/16, .02 on 3/17,6/17,10/17, .06 1/18, .06 4/18, <.05 7/18, .06 10/1
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Wings of Eagles
Veteran Member
Joined : May 2013
Posts : 813
Posted 12/24/2018 1:22 PM (GMT -7)
Billy Bob,
Sorry for the loss of your friend, I know how that feels , as I also lost three friends this past few months to cancer. I wish I could have one more talk with each of them. Just realize what effect Henry had on you ,cherish only the good memories, and take that with you as part of your character now. Take care my brother, cherish those you love,
Wings aka Dan
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Purgatory
Elite Member
Joined : Oct 2008
Posts : 25418
Posted 12/25/2018 4:06 PM (GMT -7)
very sorry to read about the loss of your friend, may he RIP, and may his family find peace via their memories of his rich life. all cancer is evil, PC or the many others. it's a shame when anyone has to deal with the scourge.
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garyi
Veteran Member
Joined : Jun 2017
Posts : 1246
Posted 12/26/2018 1:14 PM (GMT -7)
Like everyone, sorry about you losing Henry, BB, but at least he went relatively quickly. I hope I do also, but not anytime soon.

We'll ALL die, either of PCa, or from something else.

RIP, Henry.
72years old @ Dx, LUTS for 7 years
Ulcerative Colitis since 1973
TURP 2/16, G3+4 discovered,
4 cores; G 3+3, one G3+4
RALP 7/17 G3+4 Organ confined, but...
<1mm positive margin on Epstein check
pT2c pNO pMn/a
PSA .54 4 months post RR
ercMRI & DCFPyL PET Scan @ NIH/NCI
1" tumor in cavity at apex No mets.
2ADT; IMGT 70.2 GY, over 5/18
PSA <.006 9/18, .054 11/18, .070 12/18
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