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End of 2018 Update

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Prostate Cancer
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Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 12/25/2018 3:16 PM (GMT -8)
sorry for another long gap in updates, been rough for me most of this year

in October, was my 10th year with HW PC here. in November, was my 10th year post PC surgery, 9th year post salvage radiation, and 8th year post Urostomy surgery. still here.
saw my oncologist for 2nd visit of the year in october, PSA on the move again. 2 previous 6 month readings were at 23.xx, latest was 30.xx. considering i have have no other treatment since 2009, doctor thinks we will continue to watch and wait. he agrees i should be lighting up with scans, but still nothing showing up. feels its an unsual case, but said every case different.

my parkinson's is still the worse problem with me. another mostly "invisible" disease. lot more to PD than the obvious tremors. still stage III approaching stage IV. now having swallowing issues too, VA setting me for some help with that. balance issue major, have had several hard fall recently, yes, i am either with a cane or with a walker. never know which way i am going to fall down. some days, its like the entire world is tilted to the left by a few inches, weird.

hope everyone is having a good christmas or holiday if you prefer. i lurk here a few times a week, but seldom post, even this took a lot out of me.

david
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Bobbiesan
Regular Member
Joined : Mar 2012
Posts : 406
Posted 12/25/2018 3:59 PM (GMT -8)
David,

So glad to get an update from you. Bet there are many like me that think of you sometimes as we visit the board. You are definitely one of the old timers now. Don't worry about post frequency--everyone understands. You can't be on here daily if it's going to whack your energy level.

Well, good that your pc has moved to the background a little -- good scan results -- but awful it has been replaced by something even more wearing on a day to day basis. Really hope the VA gets you some help there.

Please be careful with the falls, and maybe 2019 will be manageable for you. That would be a change after some of the harrowing reports you've given in the past. Hope you have a better, uneventful, New Year.

Robert
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Tudpock18
Forum Moderator
Joined : Sep 2008
Posts : 5433
Posted 12/25/2018 4:37 PM (GMT -8)
David, I know it’s been a tough 10 years for you and I think of you often. Sorry for the Parkinson’s issues but glad you are hanging in there. Stop in whenever you can; you still have a lot of friends here that like to hear from you.

Merry Christmas and Happy New Year to you and your family.

Best regards,

Jim
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logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 12/25/2018 4:39 PM (GMT -8)
It s quite amazing...that psa is so low relative to the time passed...your mind still seems sharp..but the Parkinson..is more then tremors....very insidious.. Im sure there is a reason you do not just use the wheelchair and forget cane and walker...it would seem to be better...but you and your team know best...soldier on
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three 5's and a jack
Veteran Member
Joined : Jul 2017
Posts : 707
Posted 12/25/2018 4:40 PM (GMT -8)
I think of you often always wishing the best. It is the nature of things that we all suffer.........some more than others.
You are truly an inspiration and have been important to me over the last year and a half.

In my belief system it is how we deal with the hand that is dealt to us that is important, not the hand but the dealing with it.

May you be well in spirit if not in body.

Roger
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mattam
Veteran Member
Joined : Aug 2015
Posts : 4124
Posted 12/25/2018 5:05 PM (GMT -8)
David,

You continue to be a hero for me. I hope I can pull up that same resilience when it comes time for me to need it.

Thanks for your updates.
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browntrout
Veteran Member
Joined : Apr 2014
Posts : 683
Posted 12/25/2018 6:48 PM (GMT -8)
David: Was wondering when you would show up. Sorry to hear about PD issues. I sincerely hope the docs can help. Continued prayers coming your way.
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Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 9453
Posted 12/25/2018 7:45 PM (GMT -8)
David, you’ve been through so much, not much to say , just want to wish you some peace from all this in 2019
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InTheShop
Elite Member
Joined : Jan 2012
Posts : 11468
Posted 12/25/2018 7:52 PM (GMT -8)
good to hear from you. Hope you're having a good Christmas season.

You're always in my prayers,
Andrew
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Octorobo
Regular Member
Joined : May 2009
Posts : 438
Posted 12/25/2018 8:27 PM (GMT -8)
David
Merry Christmas. I am glad you had another Christmas to celebrate. Think of you often and certainly glad you took time to bring an update. Praying for a slow down in the progression of the effects of the PD.
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mspt98
Regular Member
Joined : Dec 2008
Posts : 458
Posted 12/25/2018 8:43 PM (GMT -8)
I always like hearing your updates over the years, wish there was something more they could help you with... my wife has developed a movement disorder similar to Parkinson’s disease (dystonia), plus I believe she has early dementia, she can no longer drive a car, uses a rolling walker in the afternoons. I guess we all just keep going the best we can...
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Saipan Paradise
Veteran Member
Joined : Sep 2017
Posts : 1371
Posted 12/25/2018 8:52 PM (GMT -8)
David, thank you for touching base with us. Always a treat to hear from you. Here's hoping 2019 goes gently for you.
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tdnjam
Veteran Member
Joined : Jan 2013
Posts : 586
Posted 12/25/2018 10:02 PM (GMT -8)
David, as always it's good to hear from you, even if it isn't good news. When visiting this board, I always check to see if you have posted anything first. I hope and pray 2019 gives you something to celebrate as you certainly deserve it.
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81GyGuy
Veteran Member
Joined : Oct 2012
Posts : 3572
Posted 12/26/2018 7:16 AM (GMT -8)
David -

Now let's see, so far people have said:

"So glad to get an update from you"
"Hope you have a better, uneventful, New Year"
"You are truly an inspiration"
"You continue to be a hero for me"
"Continued prayers coming your way"
"Always a treat to hear from you"

All I can say is ditto every bit of that. And add that I, as well, think of you often,
especially whenever I am signing on to the forum here, and wondering how you are doing.

When you are here with us, your presence is always an inspiration and encouragement.

Do come and post whenever you can. When you do so, it is always much appreciated.
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Wings of Eagles
Veteran Member
Joined : May 2013
Posts : 1227
Posted 12/26/2018 2:50 PM (GMT -8)
David,
Thanks for the updates and for all of your many posts ..about everything. You are a record breaking, record shattering inspirational example of fighting on, despite the attacks from every angle. Here is to repeat the well wishes of all the above thoughts that 81 GyGuy listed, hoping 2018 will be a healing well year, ...oh and one more..keep the Faith!
Wings aka Dan in So Cal
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GoBucks
Veteran Member
Joined : Jan 2018
Posts : 1268
Posted 12/26/2018 4:31 PM (GMT -8)
Ditto. Even mega ditto.
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maldugs
Veteran Member
Joined : Jun 2007
Posts : 813
Posted 12/29/2018 8:56 PM (GMT -8)
Hi David, old friend, good to hear from you, I don't come hear often, but decided to have a look as I am going back on the Androcur and Zoladex again due to my PSA rising to 9.36, it's been nearly 11 years since this all happened, and I am glad top have reached 78 years.
I do hope you have some relief from your problems, I know you will keep fighting on.

Best wishes, Mal.
profile picture
Sleepless09
Veteran Member
Joined : Jul 2009
Posts : 1268
Posted 1/1/2019 4:58 PM (GMT -8)
Hi David,
Ten years ago, come April, I found out I had PC, found HW and found YOU! You were my rock then and soon my hero which you remain today.

Blessings on the good ship Riley and all who sail with her,

Sheldon AKA Sleepless
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English Alf
Veteran Member
Joined : Oct 2009
Posts : 2237
Posted 1/2/2019 2:20 AM (GMT -8)
David,
My very best wishes for 2019.
Take care
Alf
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Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 1/7/2019 7:40 PM (GMT -8)
thanks to my old friends here and newer ones as well. some of you (a few) I met in person years ago, but most I have met online here. nice to be remembered.

my uro in 2008 estimated that I had 8-10 years, but he was wrong, despite failed surgery and failed radiation, and no other treatment since 2009. it's true that every case is different. even with as high a PSA as I have, I should have had visible mets by now, but I still don't.

unfortunately, my Parkinson's is proving to be far more damaging to me than the cancer(s) I have dealt with since 1998. I have now started having almost daily hallucinations, not scary but unsettling. Neuro said as long as I can tell in the end that they are not real, and assuming they don't upset me too much, just have to live with them.

to amuse myself, decided to buy another new car again. since 2012 this will be my 5th. people joke that I get rid of a car when the original tires start to wear out. come to think of it, they may be right, lol. getting ready to take delivery of a new Lincoln Continental. have had good luck with Lincolns.

All for now, took me forever to type this.
profile picture
logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 1/8/2019 6:27 AM (GMT -8)
Pure Luxury those continentals...Years ago went on a 5 week train ttip cross country with our 3 sons...rented a white continental in DC and cruised all over from R.I. I was raised in Galilee across the channel from Jerusalem...Yep a fishing village....that should raise pun intended ya'll thoughts about a 75 year olds purported messianic complex...no Im not nuts...its simply where I was raised not too far from peace dale...south county...R.I.. south of providence.I digress...from R.I to Manhatten to Gettysburg...batta boom ...batta bing...great car...Ok off to walk on water on my standup paddle board(SUP)I got casey59 hooked on em...back in the day...then enjoy some fish and wine with my friends...hope I have enuff...speaking of standup...Im ready for my routine about gyms and surfing...thanks for the space Purgatory...no worries...I got ya covered...enjoy the new ride is it white or a little silver and a little gold...life is way to short to take oneself too serious...after all ..you only die once...you live forever...live a little...in what ever state you reside...true story tho told...tounge in cheek...maybe...ric flair yada yada all the you's are generic not personal...ok head stop swiveling..your working radar(the eye in the sky) not the tower...(Phallic Symbol no that's sky scrapers)...ok I.ll stop..mods edit delete its early may catch one readers I and will get a bucket of chuckle's sweetness
profile picture
mattam
Veteran Member
Joined : Aug 2015
Posts : 4124
Posted 1/8/2019 6:46 AM (GMT -8)
David,
I can’t articulate exactly why, but your posts help me. I was feeling a little dark this morning and you brought me up. Thanks.

I hope you enjoy that Lincoln!
profile picture
Bohemond
Veteran Member
Joined : Apr 2012
Posts : 1453
Posted 1/8/2019 12:35 PM (GMT -8)
David,
Good to hear the update, even if the news isn't better. I remember your long battle with the VA about your benefits when I first arrived here and a few online exchanges we had about the reports we coastal surveillance types would get from you VP sailor in the sky types. Enjoy your new Lincoln. You've earned it.
Jim
profile picture
logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 1/8/2019 5:37 PM (GMT -8)
Commander Cody...Hotrod Lincoln...come on 81 gy or somebody get dem lyrics to us...I got this junk computer...cant do crap with it,,,I don't care how detailed someone explains how to make a link or cut and paste...I stay stoopid...blissfully so...
profile picture
logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 1/8/2019 5:45 PM (GMT -8)
I will not submit...I will not change my password...I wiil not klump klump to your demands...Daisy..Daisy...give me your answer true...Im half crazy...all for the love of you...back...back you varmit...Hal...Hal...open the pod bay door Hal...sorry Dave ...I can't do that...it sweetly and seductively coo's
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