First off, thank-you all for your comments & the MSK & Urology Times Links.
We also ran my husbands numbers through the MSK nomogram & got those same results. We were in the car for 3hrs for a pre-op PT appt in the city so my husband read all of your responses.
The article published Aug 16,2018 (RP as primary treatment for high risk PCa) and the most recent one
Feb 28/19 (RP vs RT) are of particular interest. My husband doesn't fit the cohort exactly, his PSA is much higher & we really cant know if his Lymph nodes are negative, but it does explain the pro-surgery mentality @the Prostate Center in cases like his.
Although we are leaning towards surgery & it is currently being booked, we have taken your advice and advocated for the referral to see an RO; but we were up against a blockade @the Prostate Center since Monday. Finally today they agreed to the referral. I guess most go w the advice of the surgeon and don't challenge. We are not trying to be difficult, or go against the grain, we just want to talk to an RO!
We are hopeful the scans are correct but we are very aware that if we go the surgical route he will likely need adjunct RT and ADT following surgery, & there's a slim chance of a cure. We have to be realistic.
The PT certainly gave us lots to think about
too. He's had pelvic floor physio before so he knew what the appt would involve, & had his coworkers in stitches the next day describing it to them!! She explained what he will be up against after surgery w muscle recovery, & gave him his exercises to do. He will likely be off work for nearly 3 months if all goes smoothly & longer w RT. He is a welder so the surgeon already said 3 months for sure.
We are starting to breathe easier, & laughing more again. Not an easy road but we're finding our way through.
Thanks again for the support so far, the updates and the info you've all shared.
This is a special place ~LjK
Jan/19 - PSA 150, CT - Clear, Bone Scan - Clear
Feb/19 - 12/14 Biopsies Positive( 4x3+3/ 1x3+4/ 2x4+4/ 5x4+5 )
Diagnosed: PCa High Risk/High Volume G8&9 Cores 55-80% affected.
MRI-Feb27/19-PCa appears prostate confined. No apparent PNI.
Post Edited (LadyJaneK) : 3/13/2019 6:51:27 PM (GMT-6)