Not a milestone to celebrate, but on this day 6 years ago my life was turned upside down.
I got "the call" at work, the day after my biopsy. The doctor asked how I was feeling, any side effects from the biopsy? I said no, nothing I hadn't experienced before. Then he said, "Do you have a few minutes to talk about
the results?". That couldn't be good.... and it wasn't....
I grabbed a piece of paper from the copier, found a pen, and went into a conference room. He gave me the numbers, and suddenly I felt very strange. It seemed that suddenly I could hear the world slowly revolving....
Six years later, after a lot of treatment and life-altering side effects, here I am. Still watching my PSA, still wondering when the other shoe will drop (all but certain with my diagnosis), and yet life is good. I just retired, I feel good, and life goes on. It seems like just a memory of a nightmare, but I do have some physical reminders it was all too real.
I've been on this forum almost without any break since, hoping to pay forward some of the support I got in those early very dark days. It was literally terrifying, and it took a lot of advice from doctors and from brothers on this forum to finally get a handle on it. Once treatment was selected and begun, the stress diminished greatly. After that, it has been the typical roller coaster of tests and results, some complications, and the ongoing mental challenge of living with this. I greatly value the friendships made through this forum especially.
All the best to everyone dealing with this beast. We can't know how our case will respond, what the best treatment may be, how our particular wonky cells will react to whatever our treatment may be. And yet, there is hope! I try to never lose sight of that. There is always hope.
55@Dx on 4/16/13. PSA 5.2, G9(5+4), PNI+, cT3a by MRI.
IGRT - 44 sessions (79.2 Gy, 50.4 Gy pelvic)
ADT2 - Lupron+Casodex (5/13-3/16)
8/13-5/16 <0.1 (ADT2)
5/16-3/17 recovering from ADT2
3/17-12/18 up and down ~ 0.6 - 1.0 (no TX)
latest 3/19 = 0.7My Story