Posted 6/22/2019 12:10 PM (GMT -6)
Your drop in PSA is encouraging!
I don't have results yet, but my main oncologist recently suggested I do a genetic test, with the idea that the results could show that medications used in other forms of cancer, MIGHT have potential benefit for me, based on my specific genetic components.
The fact that my grandfather, my father, and then I have all been diagnosed with cancer, makes this step relevant to me. Three generations in a row ...
It's exciting to think that medications used in OTHER forms of cancer could have cross-benefits for other forms of cancer.
So far, I have undergone a genetic test based on a tissue sample. This new one is based on blood work, taken at the lab. The data that is determined later this summer has the potential to help me, as well as others. I like that idea.
Along with my main oncologist, I also agreed to try three different forms of ADT shots, and we found that the third one, in my particular case, lowered the testosterone level more consistently than the other forms of ADT shots. My original urologist refused to try anything other than LUPRON. That was the day I made an appointment with my oncologist. I met with him and within the same week, he had me starting as his first patient on the "early chemo plan" which had just been recommended, based on released studies. I appreciate having a doctor who looks for windows in my treatment, rather than closed doors.
A couple of times a year, I also travel to Mayo Clinic in Rochester, Minnesota. They have an option for patients, in which you can agree to have your medical data entered with complete privacy, to create a larger data bank, to help others, now and in the future. These are some "small steps" that I have taken, with the idea of helping other brothers and comrades. Your participation in this new study is admirable, and I want to thank you for sharing your experiences with the new medication regimen.
I give thanks to everyone who has ever participated in any study or clinical trial --- in the past, the present, and in the future. Something is learned from each person who participates in any form of research.
Stay strong, stay determined, and let us know how you are faring!
With my best,
CYCLONE ~ Iowa State University
PSA At Diagnosis In Year 2013 : 138
Initial Diagnosis: Advanced Prostate Cancer, With Metastases In Both Lungs
Age At Diagnosis: 48 years
ADT Treatments: LUPRON, FIRMAGON, & currently ZOLADEX
Subsequent Treatments: Chemotherapy (TAXOTERE) & ZYTIGA & RADIATION
Additional Consultant - Dr. KWON - Mayo Clinic
Current PSA Level: < 0.10 - Undetectable Range - Treatments Ongoing