Update: 04-25-19

Saw my oncologist for my first of two yearly visits. Waiting for PSA results. In April 2018, it was 21.xx. In October 2018, it jumped to 31.xx, the largest increase in years. Doctor still wants to sit tight, until something shows up in a scan. Will have to wait to see what this last one reads. With PSA reading as high as mine, you would think I would be lighting up like a Christmas tree.

However, doctor ordered a new chest CT, deeply concerned about spot(s) on left lung. Before they thought it was scarring, but he said he ordered a 2nd opinion and it was really conflicting. He asked a lot about my prior smoking history, said it looks like lung cancer, but not sure. I only smoked from age 50 to age 62 (I know, what a dumb time to start), but didn't think I had smoked long enough for cancer.

My Parkinson's is still my worse malady. It's a horrible thing to live with, as it can effect every part of your body and thinking. Progressing quickly. Only so much that can be done, and I am doing it currently. As I type this, my hands are shaking so much, they keep jumping off the keyboard. BTW, don't go to lunch with me, if soup is on the menu, it will be all over the table, lol

Purgatory,
I hope you don’t mind me saying so - you’re a hero for me. Your resilience is amazing, and inspiring. I hope you can get a respite from some of those challenges.

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Part I
2015 (Age 54) PSA: 20.8
Bx: All cores high volume G7 (4+3)
RALP & Adjuvant RT
Pathology: G8 (4+4), focal areas of 5; Positive margins; 3 LNs negative
PSA nadir: 0.1
Steady PSA increase. June 2018: 22.3

Part II
2019
March: Lupron/Xtandi

Purgatory,

Glad to hear from you, my wife has a Parkinson’s related disease, dystonia, treated with same meds. She can no longer drive, confused from medication reaction, a medication removed, now she is clearer but must walk with rolling walker in the afternoons. She went from totally independent with all activities for decades on meds to moderately dependent on me for all activities. She was depressed before, more depressed now. I do get with angry with her since I continue to work to support her. I know you will persevere and be a survivor...

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My age= 52 at time of diagnosis
DRE=negative,
PSA went from 1.9 to 2.85 in one year, biopsy ordered,
2 cores positive, one 5%,one 25% G=6
Bilateral nerve sparing robotic surgery on 09/11/08, pathological stage T2A,
No signs of spread, organ confined,
all PSA'S 0 since surgery, diagnosed with low T, doing TRT now, still using trimix for ED

Purgatory, I'll "shout you" a beer any day if you ever come to Oz !

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2017: PSA 4.4, family history.MRI->lesions indicated.
Biopsy:carcinoma several cores, Gleason 3+4
open prostatectomy -> hist. report: pT2c, 2 pos margins. Gleason revised down to 3+3.
Navic. fossa stricture likely from catheter-> dilations ->urethroplasty op. 2018
PSA: Post surgery-Present: 0.01,0.012,0.025,0.03,0.02

David, As always it is good to hear from you. Although usually it is more bad news, I appreciate your taking the time to let us know because I do care and am concerned. In fact every time I sign on to this community I first search any update from you with hope that you are sharing good news. Regardless you continue to be in my prayers.
Jim

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Age 64, Diagnosed at 58
6/12-PSA 4.6, Biopsy 12/19/12 Positive 4 of 12
DaVinci 2-14-13
Updated Gleason 4+3=7
First post op PSA 4-5-13 Undetectable
15 month post op PSA 5-16-14 0.3
Started SRT 6-25-14
Ended SRT 8-12-14
1st post SRT PSA 9-24-14 0.1
1year post SRT PSA 9-18-15 <0.1
2 year post SRT 9-26-16 <0.1
31 month post SRT 5-1-17 <0.1
4 year post SRT 11-5-18 <0.1

Purgatory....blessed are the b@stards that grind it out. Never, ever give up. Lunch or dinner is on me anything, and I'm used to shaking. My BIL has had Parkinson's for 15 years, and he is doing OK.

Best of luck fighting the beasts!

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72years old @ Dx, LUTS for 7 years
Ulcerative Colitis since 1973
TURP 2/16, G3+4 discovered,
4 cores; G 3+3, one G3+4
RALP 7/17 G3+4 Organ confined, but...
<1mm positive margin on Epstein check
pT2c pNO pMn/a
PSA .54 4 months post RR
ercMRI & DCFPyL PET Scan @ NIH/NCI
1" tumor in cavity at apex No mets.
IMGT 70.2 GY, 2ADT, over 5/18
PSA <.006 9/18, .054 11/18, .070 12/18, .067 2/19