My eight weeks of ART finally got underway nearly one full year after RP (a lot happened during that year) and despite being put on a special low fiber low gas diet, I began having bowel issues midway thru the second week... explosive gas, frequent diarrhea, tenesmus and mucous discharge. My RO seemed unconcerned and merely said that "some bowel disruption is to be expected".
Several times I was so dehydrated from diarrhea that the techs told me if I came in that way the next day they would not treat me. Fortunately I made it every day. But half way thru the eight weeks, hurricane Irma knocked out power for much of the state, and the clinic staff brought us in over the weekend to get additional treatments in anticipation of the outage.
I was to drink a quart (32oz) water two hours before Tx and hold it, which was not a problem because I needed an artificial sphincter implant before I could start RT. But drinking that much water in an hour made me nauseous and I found drinking 12 oz fruit punch with 20oz water worked well.
By the third or fourth week I usually needed a nap after treatment. I am retired and the clinic is just around the corner from my home, so I would just drive home and sleep for an hour or two. Weeks 7 and 8 were the worst for fatigue, and by this time I was bleeding rectally. The RO recommended that I remain on the special diet for a month afterwards. Two weeks after completing ART I began anticonvulsant therapy for glossopharyngeal neuralgia. That was Halloween 2017.
A month later our younger son and his family joined us for Thanksgiving and a week at Universal Studios in Orlando. I do remember sitting out some of the rides but for the most part I was able to stay awake and enjoy the parks with the grandkids. Those plans had been made long before my PCa diagnosis and nothing was going to make me miss out on it. But I remember having read other guys say that the fatigue lasted 4-6 weeks after the end of RT and that's pretty much what I experienced too.
Six months after completion I had a colonoscopy and was diagnosed with radiation colitis (pelvic radiation disease). Another six months I had surgery to remove an abdominal mass and Dx'd with sclerosing mesenteritis. During that first year post-RT I had diminished urinary capacity and reduced urine flow (peeing more often but lesser volume), but that seems to have largely returned to normal just recently. My RO retired soon after my Tx and I never saw him or another RO again. And there was no bell to ring at the end of the eight weeks.
2014-15: PSA's 9, 12, 20, 25, Neg DRE's, false neg TRUS biopsy
6/16: MRI Fusion biopsy, 6/16 Grp4 Rt Base, 2x40%+2x100% G8(4+4)
8/16: DaVinci RP, 3 foci EPE, PNI, 11 LN-, 53g, 25%, BL SVI, pT3b
1/17: 18 months Lupron, PSA's ~.03
5/17: AMS800 implant, revised 6/17
8/17: 39 tx RapidArc IMRT (70 Gy)
1/18, 4/18, 7/18, 1/19: PSA's <0.008, T=9
2018: Dx Radiation Colitis and some other weird stuff
Post Edited (RobLee) : 4/26/2019 8:38:02 PM (GMT-6)