I was fortunate that my GP was conscientious, tested PSA's annually and in 2012 told me the computer spit out a notice that I should see a urologist because it was over 4. So I saw a Uro that had been treating me for over a decade. This was when he made the "it's nothing to be concerned about
" remark. Beginning of a long story.
Turned out as I later learned this was the same year the USPSTF began to discourage PSA screening. There was no so-called "joint decision making". A year later my PSA was 9.5... Again, it was my GP. This time my Uro did a biopsy which he told me was negative, nothing more. I tried to ask questions, based on my limited knowledge at the time, and he just gave me dismissive answers. I figured if he wasn't worried about
it, why should I?
Yes, just tough it out. That's what's expected of a male. When we moved I got a new GP. He asked me if I knew my PSA was 25, and I told him the story of the biopsy. He asked if I'd had an MRI before the biopsy. The next time I saw my Uro I asked about
the MRI and he just said that "requires special training" and left the room. When he returned he informed me that he was retiring and had health problems of his own.. Turns out it was Parkinson's.
That was the last time I saw him. His partner took over and within a month I had that MRI and a fusion biopsy. The rest is in my sig. I CONSTANTLY question what I could or should have done differently. If he could not do a fusion biopsy, why did he not refer me to someone else years earlier? My wife tells me that PD affects judgement. Should I sue the guy? How do I put a value on what I've been thru? Would I feel any better dragging an old man with Parkinson's into court? It would only force me to re-live everything that happened, and add to my own feelings of guilt... something else that I had done "wrong".
And that's exactly what I am trying to get away from. A month ago I was beginning to feel at peace. Then I come to HW and drop right back into the pit of despair once again. And while I am inspired by the courage of the G9-10 guys with nodes and mets, there are always a few vocal guys with low PSA's and a mid grade Gleason who profess that anyone who had surgery made a mistake.
I'm afraid that in my case it was NOT just a once and done. And I feel comradeship with some others here who have had a rough time of it. I try to be uplifting but usually just come off as whining.
The PCa experience had prepared me well for the second, third, and fourth cancers that I would be thrown into head first in the years since then. Now I know... Read everything. Don't believe the first or second doctor if something doesn't seem right. Some may view this as an obsession. But to me it was a lesson learned the hard way. "We won't get fooled again!"
2014-15: PSA's 9, 12, 20, 25, Neg DRE's, false neg TRUS biopsy
6/16: New Uro, MRI Fusion biopsy, 6+Gr4 Rt Base (2x40%+2x100) G8(4+4)
8/16: DaVinci RP, 3 foci EPE, PNI, 11 LN-, 53g, 25%, BL SVI, pT3b
1/17: Began Lupron ADT, PSA's ~.03
5/17: AMS800 implant, revised 6/17
8/17: 39 tx RapidArc IMRT (70 Gy)
1/18, 4/18, 7/18, 1/19: PSA's <0.008, T=9
2018: Dx Radiation Colitis & other weird stuff
Post Edited (RobLee) : 5/27/2019 7:18:34 AM (GMT-6)