She's now asking for recommendations for someone at UMass. She says Dana Farber is out of network. Do any of you know some knowledgeable ROs there?
Dr. Jesse Aronowitz. He did my salvage radiation in 2010 plus carefully targeting an enlarged lymph node. He was at the UMass Memorial campus in Worcester when I had my SRT. He is now at the new UMass cancer center that was built a couple of years ago at Marlborough hospital (which is part of the UMass system). When I saw him for a follow-up visit in Marlborough a few years ago he told me the new equipment installed when the Marlborough center
opened was a big notch up from the equipment used on me in 2010.
As others here have said - I can't urge strongly enough for your friend's husband to se an RO and also an MO to discuss appropriate treatment. From what the initial surgeon described, I think any other surgeon willing to attempt the same operation would be showing very bad judgment on two fronts 1) the previous surgeon described a situation that means high risk of perforating the rectum and/or incompletely removing the prostate, and 2) with a Gleason 9 and PSA of 26, the chance that the cancer isn't already out of the prostate is vanishingly small. Radiation plus ADT might still offer a chance of cure if the cancer is still confined to the pelvic area.
I'm sorry to hear Dana-Farber is out of network for them. I'm with a medical oncologist at D-F now and I can't say enough good things about
everyone in my treatment experience there, oncologist, case manager / scheduler, nurse practitioners, infusion nurses. Everyone friendly, supportive, and willing and able to answer questions.
-2002-PSA 9.4, 5 of 10 cores 30-50%
-RP 2002 PT3B N0 MX Gleason 3+4 75% left small focus rt
-low 0.01 slow rise to 0.4
-SRT 2010 1 lymph node. Casodex 3 months
-0.00 thu 2014
-0.02 Oct 14; 0.2 Oct 16; 0.51 Jan 17; 2.46 Jan 18,
-6.62 May 18 enlarged lymph node start Firmagon;
-0.45 Jun; 0.02 Aug '18;
-0.02 May '19 Start ADT vacation
Post Edited (Bohemond) : 6/20/2019 10:33:12 AM (GMT-6)