Over the years the HWPC site has had many interesting thread comments from men highlighting that the post-treatment “outcomes” surveys they participate in don’t seem to be asking the questions which are meaningful to men suffering from PC-treatment side effects, particularly sexual side effects. (You can take my word that there have been “many,” or you can do a site search yourself.) Generalizing, there are a lot of “Yeah, but…” member comments about
the outcomes surveys.
For the last decade plus, statistician Dr Andrew Vickers (PhD, not MD) has been a key figure bringing rigor to research in the field of prostate cancer. He’s done a lot of work while at MSKCC to strengthen their efforts to safely reduce PC overtreatment and bolster the quality of their AS protocols, and his work has influenced the USPSTF. In the current Journal of Clinical Oncology
he raises significant questions on the topic of post-treatment “patient-reported outcomes” (PROs). Key point: the survey questions (again, particularly those on sexual side effects) tend to be from the doctor’s point of view rather than the patient’s point of view...exactly aligning, in my humble opinion, with the "Yeah, but..." sentiment expressed here at HWPC.
No PROs changes to report yet, but I feel good that Dr Vickers is on it…he’s done a LOT of good for PC patients over the years. I look forward to the continuous improvement in this area. Read his JCO article HERE
Post Edited (Blackjack) : 7/11/2019 11:28:59 AM (GMT-6)