Last week I had my PSA&T, three years post RP and two years post-RT. My PSA is still undetectable and testosterone is still at castrate level (up slightly from 11.4 to 14.8). We spoke extensively... he is my 4th urologist, the one who did my AUS two years ago. We discussed the US task force recommendations of 2012 and it's impact upon my diagnosis and treatment.
I wanted to discuss my ongoing low-T and had brought along printouts from Dr Morgentaler's video regarding the possible link between hypogonadism and prostate cancer. (Testosterone and Prostate Cancer: Is There a Link?
which is well worth watching!) and my suspicion that I have likely been hypogonadal for twenty years... the entire time period that I was seeing the urologist who had completely missed my PCa.
He reminded me that I am still at very high risk for recurrence and that he is totally opposed to any form of hormone supplementation... then abruptly ended our discussion and walked out. At the desk they told me to repeat the PSA&T in six months and schedule a return visit with the doctor in twelve months.
So instead of finding him interested in any of my ongoing problems, now I'm on my own for another year.
Just as well, as I have other health issues to address, as always seems to be the case. But when I got home and read about
the visit on the portal, he had written... He has a lot of regrets and frustrations about the initial diagnosis and management of his prostate cancer and discussed in detail. He does a lot of online research and focuses a lot of attention and time on researching diagnosis and treatment of prostate cancer. Recommend he focus on going forward with quality of life..."
Unfortunately, I gotta agree with him. Each time I check into one of the online prostate forums, I am reminded of all that I've been thru. So it may be better that I stop doing so. I will miss reading the perspectives of those gentlemen here who have pathologies far worse than my own, yet have accepted their fate with dignity and grace. I'm not saying that I'm leaving, but for the sake of keeping my head out of dark places, it is probably better that I become an infrequent lurker, at least for now.
Thanks for all of the information, inspiration and support (plus a few laughs) that many of you have given me over the last couple of years. Remember to keep 'no subject' going. What more can I say, but that I have nothing
more to say.